Data confidentiality and data handling in research: a workshop
report

Hinds, Alison

doi:10.14236/jhi.v16i4.707

Cited by 6 publications

(4 citation statements)

References 2 publications

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“…11 History SARMA was originally developed as an agentbased system where each patient was represented by a software agent, which performed data extraction and communication on behalf of patients being screened for trial participation.…”

Section: Box 1 Consent For Consentmentioning

confidence: 99%

Desktop software to identify patients eligible for recruitment into a clinical trial: using SARMA to recruit to the ROAD feasibility trial

Treweek¹,

Pearson²,

Neville³

et al. 2010

Journal of Innovation in Health Informatics

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Background Recruitment to trials in primary care is often difficult, particularly when practice staff need to identify study participants with acute conditions during consultations. The Scottish Acute Recruitment Management Application (SARMA) system is linked to general practice electronic medical record (EMR) systems and is designed to provide recruitment support to multi-centre trials by screening patients against trial inclusion criteria and alerting practice staff if the patient appears eligible. For patients willing to learn more about the trial, the software allows practice staff to send the patient's contact details to the research team by text message. Aim To evaluate the ability of the software to support trial recruitment. Design of study Software evaluation embedded in a randomised controlled trial.

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Section: Box 1 Consent For Consentmentioning

confidence: 99%

Desktop software to identify patients eligible for recruitment into a clinical trial: using SARMA to recruit to the ROAD feasibility trial

Treweek¹,

Pearson²,

Neville³

et al. 2010

Journal of Innovation in Health Informatics

View full text Add to dashboard Cite

show abstract

“…4 What these technologies should be was debated in appropriate depth in last year's journal. [5][6][7][8] Finally, Gibson-White and Majeed remind us of the importance of primary care records for research, and that this is a strength of the UK which we need to further develop. 9 …”

Section: Secondary Use Of Routinely Collected Data For Researchmentioning

confidence: 99%

In this issue: use of electronic patient record (EPR) system data for emergency care, quality improvement and research - things not to take for granted

Lusignan¹

2009

Journal of Innovation in Health Informatics

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“…16 Routinely collected primary care data have been described as 'Goldmines for research', 17 yet many of us involved in research find it time consuming to get through the approval process.…”

Section: Consensus Statement On Using Routinely Collected Data For Rementioning

confidence: 99%

Using routinely collected patient data with and without consent: trust and professionalism

Lusignan¹

2008

Journal of Innovation in Health Informatics

View full text Add to dashboard Cite

Data confidentiality and data handling in research: a workshop report

Cited by 6 publications

References 2 publications

Desktop software to identify patients eligible for recruitment into a clinical trial: using SARMA to recruit to the ROAD feasibility trial

Desktop software to identify patients eligible for recruitment into a clinical trial: using SARMA to recruit to the ROAD feasibility trial

In this issue: use of electronic patient record (EPR) system data for emergency care, quality improvement and research - things not to take for granted

Using routinely collected patient data with and without consent: trust and professionalism

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