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citations
Cited by 9 publications
(6 citation statements)
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References 6 publications
(6 reference statements)
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“…The median duration of HEN significantly increased from 8.1 months (IQR 4.5–23.5) to 6 years (IQR0, 1–18.7) and this underlines the need for paediatric HAN centres to arrange transitional care of patients who survive through adolescence into adulthood. There are no guidelines or publications on transition of patients on enteral nutrition to adult healthcare services, while there are a few publications on HPN patients [ 17 , 13 ]. Transition of young patients suffering of chronic conditions, especially if congenital or infrequent in the adult services that need lifelong nutritional support, is one of the greatest challenges for health services and clinicians.…”
Section: Discussionmentioning
confidence: 99%
“…The median duration of HEN significantly increased from 8.1 months (IQR 4.5–23.5) to 6 years (IQR0, 1–18.7) and this underlines the need for paediatric HAN centres to arrange transitional care of patients who survive through adolescence into adulthood. There are no guidelines or publications on transition of patients on enteral nutrition to adult healthcare services, while there are a few publications on HPN patients [ 17 , 13 ]. Transition of young patients suffering of chronic conditions, especially if congenital or infrequent in the adult services that need lifelong nutritional support, is one of the greatest challenges for health services and clinicians.…”
Section: Discussionmentioning
confidence: 99%
“…No guidelines have yet been provided about this process. The British Association of Parenteral and Enteral Nutrition (BAPEN) and the British Society of Paediatric Gastroenterology and Nutrition (BSPGHAN) investigated this issue sending a dedicated questionnaire to their members [89]. The main findings are summarized in Box 3.…”
Section: Transition From Childhood To Adulthood Of Cif Patientsmentioning
confidence: 99%
“…Results of the BAPEN/BSPGHAN survey on transition of care from paediatric age group to adulthood [89] 1) Transition can take as long as two years and is greatly facilitated by the appointment of an identified key worker for the young person. 2) Psychological issues need to be addressed prior to transition.…”
Section: Boxmentioning
confidence: 99%
“…Communication between pediatric and adult centers is improved when at least 1 consultant from each center is present during patient care meetings during the transition period. In addition, it was suggested that one should aim to keep the same infusion pump after transition …”
Section: Transitioning Pn Supportmentioning
confidence: 99%
“…In addition, it was suggested that one should aim to keep the same infusion pump after transition. 16…”
Section: Transitioning Pn Supportmentioning
confidence: 99%