Crianças com câncer e suas famílias

Nascimento, Lucila Castanheira; Rocha, Semíramis Melani Melo; Hayes, Virginia E.; Lima, Regina Aparecida Garcia de

doi:10.1590/s0080-62342005000400014

Cited by 57 publications

(65 citation statements)

References 24 publications

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“…Transition is a dynamic and regular process, marked by relational and personal changes in the attempt to find new support resources (9)(10)(11) . For the family, transition is difficult and exhausting.…”

Section: Analysis and Discussionmentioning

confidence: 99%

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The meaning of neutropenia and homecare needs according to caregivers of children with cancer

Gelesson

Hiraishi

Ribeiro

et al. 2009

Rev. Latino-Am. Enfermagem

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Section: Analysis and Discussionmentioning

confidence: 99%

“…For the family, transition is difficult and exhausting. There are moments of anguish, concern and stress, which require the family to reformulate its routine so as to take care of the child and adapt to a new routine that permits maintaining the family unit (10)(11) .…”

Section: Analysis and Discussionmentioning

confidence: 99%

The meaning of neutropenia and homecare needs according to caregivers of children with cancer

Gelesson

Hiraishi

Ribeiro

et al. 2009

Rev. Latino-Am. Enfermagem

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“…[10][11][12][13][14] In view of the problem's dimensions, however, research still has not answered the gaps in knowledge and care practice, mainly concerning infant cancer.…”

Section: Introductionmentioning

confidence: 99%

Câncer no lactente: readaptações na vida familiar

Quirino

Collet

2012

Texto contexto - enferm.

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ABSTRACT:The aim of this qualitative case study was to capture the daily life of families of infants with cancer. The empirical data were collected through semi-structured interview with three mothers in the period from May to June 2010. The interpretation of the data followed the basic rules of thematic analysis. The results showed that cancer represents an impact for the family, whose restructuring is promptly necessary in order to meet the needs of the sick child. In this scenario, the mother is seen as the foundation to monitor the child, affecting care for the home and for her other children. The mother experiences a huge burden that involves emotional distress, besides physical exhaustion. The whole family suffers due to the disease of the infant and, in order to alleviate the suffering, the health team needs to use strategies that strengthen the links with the family. DESCRIPTORS:Cancer. Infant. Family. Professional-family relations. CÂNCER NO LACTENTE: READAPTAÇÕES NA VIDA FAMILIARRESUMO: Pesquisa qualitativa do tipo estudo de caso que objetivou apreender o cotidiano da família do lactente com câncer. Os dados empíricos foram coletados por meio de entrevista semiestruturada com três mães, no período de maio a junho de 2010. A interpretação dos dados seguiu os fundamentos da análise temática. Os resultados demonstraram que o câncer representa um impacto para a família cuja reestruturação é prontamente necessária para atender às necessidades do filho doente. Nesse cenário, a mãe é compreendida como o alicerce no acompanhamento do filho, comprometendo o cuidado do lar e dos demais filhos. A mãe vivencia uma sobrecarga descomunal que envolve sofrimento emocional, além de desgaste físico. Toda a família sofre com o adoecimento do lactente e para amenizar esse sofrimento a equipe de saúde deve utilizar estratégias que fortaleçam os vínculos com a família. DESCRITORES:Câncer. Lactente. Família. Relações profissional-família. CÁNCER EN EL LACTANTE: READAPTACIONES EN LA VIDA FAMILIARRESUMEN: Investigación cualitativa de tipo estudio de caso que objetivó aprender el cotidiano de la familia del lactante con cáncer. Los datos empíricos fueron recolectados por medio de entrevistas semiestructuradas con tres madres en el período de mayo a junio del 2010. La interpretación de los datos siguió los fundamentos del análisis temático. Los resultados demonstraron que el cáncer representa un impacto para la familia cuya reestructuración es imprescindible para atender las necesidades del hijo enfermo. En ese escenario, la madre es comprendida como la base en el acompañamiento del hijo, comprometiendo el cuidado del hogar y de los demás hijos. La madre vivencia una sobrecarga descomunal que envuelve sufrimiento emocional, además de desgaste físico. Toda familia sufre con la enfermedad del lactante, y para amenizar ese sufimiento, el equipo de salud debe utilizar estrategias que fortalezcan los vínculos con la familia. DESCRIPTORES:Cancer. Lactante. Familia. Relaciones profesional-familia.

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“…It can transmit the safety and care that a child needs a lot in this situation and the presence of family collaborators is essential for full treatment (Mello & Valle, 1999;Nascimento, Rocha, Hayes, & Lima, 2005).…”

mentioning

confidence: 99%

“…This grief can be both for the profession the mother will have to abandon in order to accompany the child in the medical consultations, and for the role of the father that will be modifi ed, including activities that were not previously their responsibility. Furthermore, there is grief for the loss of the home environment due to staying for long periods in clinics or hospitals, grief for the childhood routine, for the loss of regular visits to the school, for the frequent games with friends and grief for the youthful body that will undergo changes with the sessions of radiotherapy or chemotherapy (Nascimento et al, 2005).…”

mentioning

confidence: 99%

Childhood Cancer: Meanings Attributed to the Disease by Parent Caregivers

Quintana

Wottrich

Camargo

et al. 2013

Paidéia (Ribeirão Preto)

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This study aimed to comprehend the meanings that parents/caregivers of children and adolescents diagnosed with cancer attribute to their child’s disease. It is a qualitative, exploratory/descriptive study. Data were collected through group discussions and individual interviews with the parents/caregivers of children/adolescents and categorized using content analysis. The impressions of the researchers were recorded in a field diary, contributing to the data analysis. The results indicate that the disease and treatment involve periods of psychological suffering that affect the family structure. Cancer was reported as a real enemy to be fought through coping or avoidance, which generates expectations about the future and causes feelings of fear, as well as hope. It was concluded that the childhood cancer causes repercussions in the family relationships, the recognition of which can contribute to both the preparation of professional teams who work with this population, as well as the public health policies developed.

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Crianças com câncer e suas famílias

Abstract: Rev Esc Enferm USP2005; 39(4):469-74.Crianças com câncer e suas famílias 469 CHILDREN WITH CANCER AND THEIR FAMILIES NIÑOS CON CÁNCER Y SUS FAMILIAS

Cited by 57 publications

References 24 publications

The meaning of neutropenia and homecare needs according to caregivers of children with cancer

The meaning of neutropenia and homecare needs according to caregivers of children with cancer

Câncer no lactente: readaptações na vida familiar

Childhood Cancer: Meanings Attributed to the Disease by Parent Caregivers

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