2017
DOI: 10.1590/0104-07072017001110016 View full text |Buy / Rent full text
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Abstract: Objective: to understand the experience of the family caregiver of the child in conservative renal treatment.Method: a qualitative study. Participants consisted of 11 family caregivers of children in conservative renal treatment in the South of Brazil, during the period of April to August of 2015. For the collection of the information, semi-structured interviews were carried out, whose data were recorded. For the analysis of the information, transcription of the interviews was used, codification, and organizat… Show more

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“…In a study conducted with family caregivers of children undergoing renal conservative treatment in a pediatric nephrology service in southern Brazil, it was also shown that when the suspected malformation occurs during pregnancy, the mother begins to imagine various diseases, arousing unexpected feelings from confirmation of the diagnosis. 23 In a group of pregnant women, a sense of insecurity was also aroused by so many uncertain news, 16 matching the results found in this search.…”
Section: Discussionsupporting
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“…In a study conducted with family caregivers of children undergoing renal conservative treatment in a pediatric nephrology service in southern Brazil, it was also shown that when the suspected malformation occurs during pregnancy, the mother begins to imagine various diseases, arousing unexpected feelings from confirmation of the diagnosis. 23 In a group of pregnant women, a sense of insecurity was also aroused by so many uncertain news, 16 matching the results found in this search.…”
Section: Discussionsupporting
“…How communication of the diagnosis of a congenital malformation or chronic disease occurs is very important for the family members. During this time, dialog must make explanations understandable, 10/14 while also providing solace for feelings of guilt, uncertainty, grief, and fear, 24 This did not happen in several statements of the interviewed mothers.…”
Section: Discussionmentioning
“…Quando, inicialmente, a cronicidade da criança é desconhecida o seu diagnóstico gera medo às famílias, sendo mais difícil a aceitação da doença. O desconhecimento sobre a condição crônica da criança é caracterizado como uma situação de vulnerabilidade cultural, pois a carência de informações reflete em prejuízos emocionais, cognitivos, atitudinais e referentes às relações sociais (Collins et al, 2016;Lise et al, 2017).…”
Section: Discussionunclassified
“…36 At the same time that they feel themselves without a support base, this confrontation becomes necessary, in terms of having the strength to take care of the child, as something imperative. 38 In addition, faced with the existential situation, there are countless uncertainties regarding the future of these children.…”
Section: Discussionmentioning