Coping Strategies in Mothers of Children with Heart Defects: A Closer Look Into Spirituality and Internet Utilization

Sira, Natalia; Desai, Priti P.; Sullivan, Kathryn J.; Hannon, David W.

doi:10.1080/01488376.2014.908808

Cited by 21 publications

(36 citation statements)

References 53 publications

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“…This finding is in line with previous studies conducted on participants with different chronic illnesses, such as heart disease and cancer, in different Arab and Islamic countries (Al-Azri et al, 2014;Najafi Ghezeljeh & Emami, 2014;Rahnama et al, 2015). Religious faith as a source of support is not only limited to Islam; it also features in the lives of people with chronic illness from other religious backgrounds, such as Christianity, Hinduism, and Judaism (Reynolds, Mrug, & Guion, 2013;Selway & Ashman, 1998;Sira, Desai, Sullivan, & Hannon, 2014). Moreover, religious beliefs have been found to play a vital role in the mental and physical health of patients with chronic illness, as their faith helps them to accept their illness and learn to cope with it (Babamohamadi, Negarandeh, & Dehghan-Nayeri, 2011;Hosseini, Sharif, Ahmadi, & Zare, 2010;Nabolsi & Carson, 2011).…”

Section: Findings From the Viewpoint Of The Ecological Modelsupporting

confidence: 91%

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

et al. 2018

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Section: Findings From the Viewpoint Of The Ecological Modelsupporting

confidence: 91%

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

et al. 2018

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“…Some improvement in the QOL in the mothers over time can be observed due to the use of adaptive or maladaptive coping strategies. 35 In the present study, significant number of mothers reported their QOL as poor or very poor, minimum in psychological health followed by the environmental domain. The reason for having poor QOL in environmental domain could be due to nonavailability of nearby hospital, and poor transport facility as most of them were from outside of city and faced problems in coming for followups.…”

Section: Discussionmentioning

confidence: 49%

Developmental Status of Children Operated for Esophageal Atresia with or without Tracheoesophageal Fistula Along with Maternal Stress, Their Quality of life, and Coping Abilities at AIIMS, New Delhi

et al. 2018

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Introduction Esophageal atresia with or without tracheoesophageal fistula (EA with or without TEF) is one of the neonatal surgical emergencies requiring surgical intervention in the early neonatal period, influencing the developmental outcome in the operated children. This study was aimed to assess the developmental status of children operated for EA with or without TEF along with maternal stress, their quality of life (QOL), and coping abilities. Materials and Methods A descriptive cross-sectional survey was conducted on 51 children aged up to 5 years after EA with or without TEF repair and their mothers' in a tertiary care facility. The tools used were, namely, demographic datasheet of child and mother, anthropometry assessment, Developmental Assessment Scale for Indian Infants, and modified Vineland Social Maturity Scale for the developmental evaluation, Child Behavior Checklist (1.5–5 years) caregiver report form, Parental Stress Scale, WHOQOL BREF, and Coping Strategies Checklist. Results The majority of children had low weight (47.1%) and height (31.4%), for reference age. The overall and social developmental delay was observed in 40.7 and 37.5% of children, respectively, and few children (7.4%) had behavioral problems in the borderline range. Among the mothers, 47% had moderate stress and relatively poor QOL in environmental (60.1 ± 18.9) and psychological (60.8 ± 18.8) domains. The most commonly used coping strategy by the mothers was an emotional outlet (29.4%). Conclusion Developmental delay was present in children operated for EA with or without TEF caused significant stress among mothers, affecting their QOL for which the emotional outlet was the most commonly used coping strategy.

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“…While most parents accessed some form of support, they still acknowledged that other people did not truly understand what they were experiencing unless they had gone through a similar experience themselves: "Seek out other parents who have gone through it, and talk with them. Nobody that hasn't gone through it will understand what you are going through" (Sira et al 2014).…”

Section: Support Systemsmentioning

confidence: 99%

“…For some parents, the anonymity and availability of online support groups helped them to cope in a way that suited them: "I do not utilize in-person groups… however, I love my online family!" (Sira et al 2014).…”

Section: Support From Peers and Familymentioning

confidence: 99%

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Coping in Parents of Children with Congenital Heart Disease: A Systematic Review and Meta-synthesis

2019

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Objectives Congenital heart defects (CHD) can be detected at ultrasound but are sometimes not diagnosed until birth, which can cause stress and heightened emotion within the family. Parents face challenges including dealing with surgical procedures for their child and integrating healthcare management into family life. The aim of this review was to understand parental coping with their child's CHD. Methods Six databases were systematically searched to identify qualitative studies relating to parental coping in the context of having a child with CHD and which met inclusion criteria. Studies were subject to quality appraisal using Walsh and Downe's checklist, and synthesised using Noblit and Hare's meta-ethnographic approach. Results The synthesis of 22 studies reporting on 704 parents' accounts showed that parent coping fell within four overarching themes: Emotional Responses, Support Systems, Parental Management and Avoidance. These four themes contained 13 subordinate themes. Conclusions Parental psychosocial coping varies over time from diagnosis, through surgery to childhood. Common themes were evident, but individuals employed their own styles and strategies based on prior experience, availability of social support, personal characteristics and beliefs. Parents tried to maintain a sense of normality, integrating CHD into their lives without it having a major impact except at times of transition and hospitalisation when they had to call on additional strategies or support to manage this stress. This review offers clear guidance to clinical services on how best to support parents and families. Keywords Family • Adjustment • Cope • Child • CHD Congenital Heart Disease (CHD) is one of the most common types of birth defects, affecting 8 per 1000 babies born globally (Bernier et al. 2010), and prevalence has increased over time (van der Linde et al. 2011). As there are many variations of CHD which sometimes occur in combination and with differing severities, prognosis and treatment may vary between individuals. NICE guidance (National Institute for Health and Care Excellence 2016) advises that "children, young people and their parents or carers may need support,

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Coping Strategies in Mothers of Children with Heart Defects: A Closer Look Into Spirituality and Internet Utilization

Cited by 21 publications

References 53 publications

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

Developmental Status of Children Operated for Esophageal Atresia with or without Tracheoesophageal Fistula Along with Maternal Stress, Their Quality of life, and Coping Abilities at AIIMS, New Delhi

Coping in Parents of Children with Congenital Heart Disease: A Systematic Review and Meta-synthesis

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