Consumer Participation in Cancer System Planning

Gray, Ross E.; Fitch, Margaret I.; Greenberg, Marlene; Shapiro, Sharon

doi:10.1177/082585979501100406

Cited by 11 publications

(20 citation statements)

References 5 publications

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“…Perceptions of challenging impacts of involvement were often associated with the professionals participants were interacting with. We have seen how involved people affected by cancer can hear troubling or distressing things about cancer when engaged in work with cancer professionals, as reported previously 49 . Professionals can also convey an attitude that suggests that involvement is a peripheral activity or that involvement is a low priority.…”

Section: Discussionsupporting

confidence: 64%

Service user involvement in cancer care: the impact on service users

Cotterell

Harlow

Morris

et al. 2010

Health Expectations

163

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Section: Discussionsupporting

confidence: 64%

Service user involvement in cancer care: the impact on service users

Cotterell

Harlow

Morris

et al. 2010

Health Expectations

163

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“…The involvement of cancer patients in policy-making activities in Canada, for example, was initiated in 1989 as part of the Cancer 2000 project for national cancer systems coordination (Gray et al, 1995). Regional initiatives followed.…”

Section: Discussionmentioning

confidence: 99%

Interprofessional collaboration with service users in the development of cancer services: The Cancer Partnership Project

Sitzia

Cotterell

Richardson

2006

Journal of Interprofessional Care

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Patient and Public Involvement (PPI) is a cornerstone of UK National Health Service (NHS) policy. The Cancer Partnership Project (CPP) is the leading national PPI initiative in cancer care. The CPP espouses a "partnership" model, with a "Partnership Group" - collaborative service improvement groups formed of NHS staff and service users - in each of 34 cancer networks in England. These groups aim to enable service users to influence local cancer service development and thereby improve the effectiveness of services. We interviewed 59 cancer service users and NHS staff in a reflective evaluation of CPP. Groups were active and visible in 30 networks, their main activities being: providing an accessible source of consumer opinion; prolific networking and representation; patient information and communication projects; and lobbying for service improvements. The groups exhibited some significant tensions. The motivations of professional staff varied markedly, and "obligatory" involvement as part of a person's job was counter-productive when not coupled with a "personal" belief in the value of PPI. Other controversial areas were the disclosure by patients' of personal health and treatment experiences, and emotional attachment to the group. It was concluded that partnership groups represent a useful PPI model, but more attention generally should be paid to the complexities of PPI and timescales required for meaningful cultural change.

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“…Factors to consider for participant recruitment include: ability to invest the time and energy and to communicate stakeholder issues (Gray et al. 1995, Smith 1997).…”

Section: Step 2: Identify Stakeholders and Recruit Participantsmentioning

confidence: 99%

“…Patients and families can provide a balance between medical and administrative viewpoints, increase awareness about the human dimension of health care, and identify inefficiencies and lack of coordination among health services (Gerteis et al. 1993, Gray et al. 1995).…”

Section: Step 2: Identify Stakeholders and Recruit Participantsmentioning

confidence: 99%

A framework for the introduction and evaluation of advanced practice nursing roles

Bryant‐Lukosius¹,

DiCenso²

2004

Journal of Advanced Nursing

343

277

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The process for implementing and evaluating APN roles is as complex and dynamic as the roles themselves. The PEPPA framework is shaped by the underlying principles and values consistent with APN, namely, a focus on addressing patient health needs through the delivery of coordinated care and collaborative relationships among health care providers and systems. Engaging environmental stakeholders as participants in the process provides opportunity to identify the need and shared goals for a clearly defined APN role. The process promotes increased understanding of APN roles and optimal use of the broad range of APN knowledge, skills, and expertise in all role domains and scope of practice. The steps for planning and implementation are designed to create environments to support APN role development and long-term integration within health care systems. The goal-directed and outcome-based process also provides the basis for prospective ongoing evaluation and improvement of both the role and delivery of health care services.

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Consumer Participation in Cancer System Planning

Cited by 11 publications

References 5 publications

Service user involvement in cancer care: the impact on service users

Service user involvement in cancer care: the impact on service users

Interprofessional collaboration with service users in the development of cancer services: The Cancer Partnership Project

A framework for the introduction and evaluation of advanced practice nursing roles

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