Consenso nacional de dieta Atkins modificada

Vaccarezza, María; Agustinho, Ariela; Alberti, Miguel; Argumedo, Laura; Armeno, Marisa; Blanco, Virginia; Bouquet, Cecilia; Cabrera, Analía; Caraballo, Roberto; Caramuta, Luciana; Cresta, Araceli; Grandis, Elizabeth S. De; Demartini, Martha Graciela; Díez, Cecilia; Diz, Mariana; Dlugoszewski, Corina; Escobal, Nidia; Ferrero, Hilario; Galicchio, Santiago; Gambarini, Victoria; Gamboni, Beatriz; Gonzalez, Lara; Guisande, Silvina; Hassan, Amal; Matarrese, Pablo; Mestre, Graciela; Pesce, L; Ríos, Viviana Graciela; Semprino, Marcos; Sosa, Patricia; Toma, Marisol; Viollaz, Rocío; Paníco, Luis

doi:10.33588/rn.6208.2015447

Cited by 3 publications

(1 citation statement)

References 32 publications

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“…Over the years, there has been an increase in commercially available ready‐to‐eat ketogenic products, but reimbursement of these products and disposals for blood glucose and ketones test varies by healthcare system. It would be helpful to inquire about the coverage for ketogenic products as “food for special medical purpose” and how this impacts adherence in different countries to ensure comprehensive and accessible care for individuals on KDTs.Guidelines and shared protocols are very important at national and international levels and, in addition to the recently updated international recommendations, 1 we have other national guidelines 4 , 5 , 6 , 7 , 8 with specific recommendations for etiology, 9 , 10 age, 11 and diet administration. 12 Nevertheless, guidelines for ‘specific needs’ are still lacking, and as ketogenic dietary therapies are spreading, scenarios such as KDT management in the emergency room, during surgery, and during pregnancy are common and highly relevant.…”

Section: Discussionmentioning

confidence: 99%

Unraveling unmet needs in ketogenic dietary services: An ERN EpiCARE survey

De Giorgis,

Pasca,

Aznar‐Lain

et al. 2024

Epilepsia Open

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The implementation and potential of ketogenic dietary therapies (KDTs) have changed over time. The organization of KDT services, the availability of multidisciplinary teams, resources and support for patients and families still vary widely around the world. This diversity is reflected by a lack of consistency in reported outcomes, optimization of using KDT and KDT compliance. To highlight the unmet needs for KDT services, the ERN EpiCARE Ketogenic Dietary Therapy Special Interest Group (KDT SIG) conducted an online survey on KDT implementation and utilization, addressing the following topics: Use and completeness of guidelines and protocols; assessment of compliance and outcome parameters, sustainability and inclusivity in daily life. Consistently reported unmet needs included the lack of psychological support and resources to measure and improve adherence to KDT, the lack of inclusion strategies, and shared guidelines and protocols adapting to specific needs. Future interventions should focus primarily on educational and informative measures together with creation of shared protocols for complex care.Plain Language SummaryThis study provides the results of a survey compiled by clinicians and patients representatives belonging to ERN Epicare, designed to unravel unmet needs from both patients' and healthcare practitioners' perspectives during ketogenic dietary therapies (KDT) provision. Importantly, results show the need to create new shared protocols and guidelines meant for KDT use in complex care situations and to develop future strategies initiatives to support patients improving their social inclusivity.

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