Concurrent Validity of the Functional Independence Measure for Children (WeeFIM(™)) and the Pediatric Evaluation of Disabilities Inventory in Children with Developmental Disabilities and Acquired Brain Injuries

Ziviani, Jenny; Ottenbacher, Kenneth J.; Shephard, Karin; Foreman, Samantha; Astbury, Wendy; Ireland, Penny

doi:10.1300/j006v21n02_08

Cited by 37 publications

(25 citation statements)

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“…The PEDI is a norm-referenced assessment used primarily in acute and post-acute rehabilitation settings to examine functional skills and caregiver assistance in three subdomains: mobility, self-care, and social functioning (Haley et al, 1992). It has been used in many studies with children with TBI and other acquired brain injuries, and has established evidence of reliability, validity, and responsiveness to change during inpatient rehabilitation and post-discharge follow-up (Bedell, 2008;Coster et al, 1994;Dumas et al, 2001Dumas et al, a, b,2004Fragala et al, 2002;Haley et al, 1992Haley et al, , 2003Khoteri et al, 2003;Nichols and Case-Smith, 1996;Tokcan et al, 2003;Ziviani et al, 2001). The PEDI is recommended for children in acute and rehabilitation settings and for post-discharge follow-up.…”

Section: Adaptive and Daily Living Skillsmentioning

confidence: 99%

Recommendations for the Use of Common Outcome Measures in Pediatric Traumatic Brain Injury Research

McCauley

Wilde

Anderson

et al. 2012

Journal of Neurotrauma

281

207

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This article addresses the need for age-relevant outcome measures for traumatic brain injury (TBI) research and summarizes the recommendations by the inter-agency Pediatric TBI Outcomes Workgroup. The Pediatric Workgroup's recommendations address primary clinical research objectives including characterizing course of recovery from TBI, prediction of later outcome, measurement of treatment effects, and comparison of outcomes across studies. Consistent with other Common Data Elements (CDE) Workgroups, the Pediatric TBI Outcomes Workgroup adopted the standard three-tier system in its selection of measures. In the first tier, core measures included valid, robust, and widely applicable outcome measures with proven utility in pediatric TBI from each identified domain including academics, adaptive and daily living skills, family and environment, global outcome, health-related quality of life, infant and toddler measures, language and communication, neuropsychological impairment, physical functioning, psychiatric and psychological functioning, recovery of consciousness, social role participation and social competence, social cognition, and TBI-related symptoms. In the second tier, supplemental measures were recommended for consideration in TBI research focusing on specific topics or populations. In the third tier, emerging measures included important instruments currently under development, in the process of validation, or nearing the point of published findings that have significant potential to be superior to measures in the core and supplemental lists and may eventually replace them as evidence for their utility emerges.

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Section: Adaptive and Daily Living Skillsmentioning

confidence: 99%

Recommendations for the Use of Common Outcome Measures in Pediatric Traumatic Brain Injury Research

McCauley

Wilde

Anderson

et al. 2012

Journal of Neurotrauma

281

207

View full text Add to dashboard Cite

show abstract

“…Lower socioeconomic status (SES) is a powerful predictor, especially of poor language and social competence. Additionally, age relates to outcomes with improvement in self-care skills as children get older (Msall et al, 1994;Ziviani et al, 2001).…”

Section: Risk Factors For Poor Adaptationmentioning

confidence: 99%

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

Heffelfinger

Koop

Fastenau

et al. 2008

J Int Neuropsychol Soc

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Adolescents with spina bifida (SB) vary in their ability to adapt to the disease, and it is likely that numerous risk and protective factors affect adaptation outcomes. The primary aim was to test neuropsychological impairment, exemplified herein by executive dysfunction, as a risk factor in the Ecological Model of Adaptation for Adolescents with SB. Specific hypotheses were that: (1) executive functioning predicts the adaptation outcome of functional independence in adolescents with SB; (2) executive functioning mediates the impact of neurological severity on functional independence; and (3) family and adolescent protective factors are related to functional independence and moderate the relationship between executive functioning and functional independence. Forty-three adolescents aged 12-21 years completed neuropsychological measures and an interview that assessed risk, adolescent and family protective factors, and functional independence. Age, level of lesion, executive functioning, and the protective factor adolescent activities were significantly correlated with the functional independence outcome. In hierarchical regression analysis, the model accounted for 61% of the variance in functional independence outcomes. Executive functioning mediated the impact of neurological severity on functional independence. (JINS, 2008, 14, 793-804.)

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“…This instrument has been tested and shown to be valid and reliable for children more than 6 months old with neurodevelopmental disabilities including spina bifida and Down syndrome. [27][28][29][30][31][32] WeeFIM is a self-administered parent instrument composed of 18 items and 6 domains (self-care, sphincter control, transfers, locomotion, communication, and social cognition). 33 The WeeFIM allows patients to be stratified into areas of function from severely impaired to normal.…”

Section: Instruments and Study Outcomesmentioning

confidence: 99%

Quality of life of children with neurological impairment who receive a fundoplication for gastroesophageal reflux disease

Srivastava

Downey

Feola

et al. 2007

Journal of Hospital Medicine

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BACKGROUNDChildren with neurological impairment (NI) commonly have gastroesophageal reflux disease (GERD) treated with a fundoplication. The impact of this procedure on quality of life is poorly understood.OBJECTIVESTo examine the quality of life of children with NI who have received a fundoplication for GERD and of their caregivers.METHODSThe study was a prospective cohort study of children with NI and GERD who underwent a fundoplication at a children's hospital between January 1, 2005, and July 7, 2006. Quality of life of the children was assessed with the Child Health Questionnaire (CHQ) and of the caregivers with the Short‐Form Health Survey Status (SF‐36) and Parenting Stress Index (PSI), both at baseline and 1 month after fundoplication. Functional status was assessed using the WeeFIM®. Repeated‐measures analyses were performed.RESULTSForty‐four of the 63 parents (70%) were enrolled. The median WeeFIM® score was 31.2 versus the age‐normal score of 83 (P = .001). Compared with the baseline scores, mean CHQ scores improved over 1 month in the domains of bodily pain (32.8 vs. 47.5, P = .01), role limitations–physical (30.6 vs. 56.6, P = .01), mental health (62.7 vs. 70.6, P = .01), family limitation of activities (43.3 vs. 55.1, P = .03), and parental time (43.0 vs. 55.3, P = .03). The parental SF‐36 domain of vitality improved from baseline over 1 month (41.3 vs. 48.2, P = .001), but there were no changes from baseline in Parenting Stress scores.CONCLUSIONSParents reported that the quality of life of children with NI who receive a fundoplication for GERD was improved from baseline in several domains 1 month after surgery. The quality of life and stress of caregivers did not improve in nearly all domains, at least in the short term. Journal of Hospital Medicine 2007;2:165–173. © 2007 Society of Hospital Medicine.

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Concurrent Validity of the Functional Independence Measure for Children (WeeFIM(™)) and the Pediatric Evaluation of Disabilities Inventory in Children with Developmental Disabilities and Acquired Brain Injuries

Cited by 37 publications

References 0 publications

Recommendations for the Use of Common Outcome Measures in Pediatric Traumatic Brain Injury Research

Recommendations for the Use of Common Outcome Measures in Pediatric Traumatic Brain Injury Research

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

Quality of life of children with neurological impairment who receive a fundoplication for gastroesophageal reflux disease

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