Comparing measurement properties of EQ-5D-Y-3L and EQ-5D-Y-5L in paediatric patients

Fitriana, Titi Sahidah; Purba, Fredrick Dermawan; Rahmatika, Rina; Muhaimin, Riski; Sari, Nur Melani; Bonsel, Gouke J.; Stolk, Elly; Busschbach, Jan J. V.

doi:10.1186/s12955-021-01889-4

Cited by 21 publications

(27 citation statements)

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“…It seems that the number of levels determining the scale influenced how respondents interpreted the labels, which could be attributed to ‘response spreading’ [ 51 ]. Notably, in our earlier report on the EQ-5D-Y self-report version, the ceiling did not differ significantly between the EQ-5D-Y-3L and the EQ-5D-Y-5L [ 24 ]. This finding suggests that adults use the context of the level range more than do children, regardless of the label wordings.…”

Section: Discussionmentioning

confidence: 99%

“…Acutely ill patients can be defined as those who were hospitalized for sudden illnesses such as dengue, typhus, etc. [ 24 ]. All children were between 8 and 16 years old.…”

Section: Methodsmentioning

confidence: 99%

“…Participants were recruited from five hospitals located in Jakarta and Bandung, Indonesia. The children’s details have been reported elsewhere [ 24 ].…”

Section: Methodsmentioning

confidence: 99%

“…Thus, the labels of level 1(L3)-2(L3)-3(L3) are not semantically equal to 1(L5)-3(L5)-4(L5), but rather to 1(L5)-2(L5)-4(L5). For a detailed description of adjustments made in the Indonesian translation of levels, please refer to Fitriana et al [ 24 ]. Hence, in Indonesia the logical possible pathways of the redistribution from EQ-5D-Y 3-level to 5-level are 1(3L)-1(5L); 1(3L)-2(5L); 2(3L)-2(5L); 2(3L)-3(5L); 3(3L)-3(5L); 3(3L)-4(5L); 3(3L)-5(5L).…”

Section: Methodsmentioning

confidence: 99%

“…Recently we have reported on the reliability, validity, and responsiveness of two self-report versions of the youth quality of life questionnaire EQ-5D-Y developed by the EuroQol Group: the EQ-5D-Y-3L and the EQ-5D-Y-5L in Bahasa Indonesia (for Indonesia) [ 24 ]. While the EQ-5D-Y-3L is currently the only official EQ-5D-Y version, the EuroQol group is testing whether the expansion of the level structure from 3 to 5 response levels would improve the instrument’s performance.…”

Section: Introductionmentioning

confidence: 99%

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EQ-5D-Y-3L and EQ-5D-Y-5L proxy report: psychometric performance and agreement with self-report

Fitriana

Purba

Stolk

et al. 2022

Health Qual Life Outcomes

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Background Self-report is the standard for measuring people’s health-related quality of life (HRQoL), including children. However, in certain circumstances children cannot report their own health. For this reason, children’s HRQoL measures often provide both a self-report and a proxy-report form. It is not clear whether the measurement properties will be the same for these two forms. We investigated whether it would be beneficial to extend the classification system of the EQ-5D-Y proxy questionnaire from 3 to 5 response levels. The agreement between self-report and proxy-report was assessed for both EQ-5D-Y measures. Methods The study included 286 pediatric patients and their caregivers as proxies. At three consecutive measurements—baseline, test–retest and follow-up—the proxies assessed the child’s HRQoL using the EQ-5D-Y-3L, EQ-5D-Y-5L, the PedsQL Generic, and matched disease-specific instruments. The proxy versions of EQ-5D-Y-3L and EQ-5D-Y-5L were compared in terms of feasibility, distribution properties, convergent validity, test–retest and responsiveness. Agreement between both EQ-5D-Y proxy versions to their respective self-report versions was assessed at baseline and follow-up. Results The proportion of missing responses was 1% for the EQ-5D-Y-3L and 1.4% for the EQ-5D-Y-5L. The frequency of health state with no problems in all dimensions (11111) was slightly lower for the EQ-5D-Y-5L (21.3% vs 16.7%). Regarding the convergent validity with the PedsQL and disease-specific measures, the proxy versions of EQ-5D-Y-3L and EQ-5D-Y-5L had similar magnitudes of associations between similar dimensions. The means of test–retest coefficients between the two versions of the EQ-5D-Y proxy were comparable (0.83 vs. 0.84). Regarding reported improved conditions, responsiveness of the EQ-5D-Y-5L proxy (26.6–54.1%) was higher than that of the EQ-5D-Y-3L proxy (20.7–46.4%). Except for acutely ill patients, agreement between the EQ-5D-Y-5L proxy and self-reports was at least moderate. Conclusions Extending the number of levels of the proxy version of EQ-5D-Y can improve the classification accuracy and the ability to detect health changes over time. The level structure of EQ-5D-Y-5L was associated with a closer agreement between proxy and self-report. The study findings support extending the EQ-5D-Y descriptive system from 3 to 5 levels when administered by a proxy, which is often the case in the pediatric population.

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Section: Discussionmentioning

confidence: 99%

“…Acutely ill patients can be defined as those who were hospitalized for sudden illnesses such as dengue, typhus, etc. [ 24 ]. All children were between 8 and 16 years old.…”

Section: Methodsmentioning

confidence: 99%

“…Participants were recruited from five hospitals located in Jakarta and Bandung, Indonesia. The children’s details have been reported elsewhere [ 24 ].…”

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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