Communication That Changes Lives: Social Support Within an Online Health Community for ALS

Loane, Susan Stewart; D’Alessandro, Steven

doi:10.1080/01463373.2012.752397

Cited by 35 publications

(38 citation statements)

References 30 publications

(67 reference statements)

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“…This finding is in line with the suggestion that virtual communities are common knowledge-sharing tools (Chen, Chang & Liu, 2012). As indicated by Loane & D'Alessandro (2013), dynamic interchangeable health information and socio-psychological support are main determinants of virtual community for patients with SCI. The information can also often related to sustaining care and a better quality of life of the disease.…”

Section: Discussionsupporting

confidence: 86%

“…Additionally, engaging and giving new experiences to patient with SCI can be improve commitment and life willingness to overcome the trauma disorders and marginalized community. In conclusion, the results of this study highlight that some of potential approaches that can make life livable for patients with SCI and also their relatives, as concluded by Loane and D'Alessandro (2013).…”

Section: Discussionsupporting

confidence: 59%

See 1 more Smart Citation

A Netnographic Study on Virtual Community of Patients with Spinal Cord Injury (SCI) in Turkey

Argan¹,

Argan²,

Özer³

2016

J Internet Appl Manage

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Section: Discussionsupporting

confidence: 86%

Section: Discussionsupporting

confidence: 59%

A Netnographic Study on Virtual Community of Patients with Spinal Cord Injury (SCI) in Turkey

Argan¹,

Argan²,

Özer³

2016

J Internet Appl Manage

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“…A range of computer-mediated social support groups are developed to deal with various conditions including self-injury (Haberstroh & Moyer, 2012), Amyotrophic Lateral Sclerosis which is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord (Loanea & D'Alessandroa, 2013), suicidal individuals (Gilat, Tobin & Shahar, 2011), metastatic breast cancer (Vilhauer, McClintock & Matthews, 2010), issues related to membership of a stepfamily (Christian, 2005), and male infertility (Malik & Coulson, 2008). The benefits of computer-mediated social support groups are not only to accommodate the individuals suffering the illness/conditions but also the parents, family and carers.…”

Section: Computer-mediated Social Support Groupmentioning

confidence: 99%

Social Support Exchanges in Facebook Social Support Group

Mustafa

Short

Fan

2015

Procedia - Social and Behavioral Sciences

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Much research has been carried out looking into the psychological effects of Facebook usage. Research reveals that Facebook use can influence subjective wellbeing, either positively or negatively. Few studies have investigated the use of Facebook for online social support groups, but none has yet looked into social support group for parents of children with Autism Spectrum Disorder (ASD) particularly in Asian context. The aim of this preliminary study was to examine the types of support being exchanged on Facebook and the frequency of the postings. Using the deductive thematic analysis, 320 Facebook postings made by members of an online social support group were analysed during a two weeks period. The results show that sharing of personal experience is the purpose of common postings, accompanied with other themes on social support. Facebook social support group can provide great avenue for these parents and can also be extended to cater for other groups.

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“…In addition to being a valuable resource for seeking health information, social support for chronic health difficulties may be another reason for joining an online communities [27]. Receiving social support is particularly important for an individuals' well-being, by reducing stress and increasing adherence to treatment plans [15].…”

Section: Peer and Social Supportmentioning

confidence: 99%

“…In fact, greater social involvement online may lead to better selfmanagement, physical health, and emotional well-being [9 28]. Although participation in online communities may not cure chronic health difficulties, the support from social connections may help improve the quality of life for older adults [27], thus it is essential to thoroughly understand the types of support being shared and received in online health communities. As previous studies have shown, individuals often go online to receive support for the information received from providers [19 21 22 33] and to receive social support to reduce adjustment difficulties that often coincide with chronic health difficulties [34][35][36][37][38].…”

Section: Peer and Social Supportmentioning

confidence: 99%

Understanding Why Older Adults With Type 2 Diabetes Join Diabetes Online Communities: Semantic Network Analyses (Preprint)

Lewis¹,

Gee²,

Ho³

et al. 2018

Preprint

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Objective: As individuals age, chronic health difficulties may disrupt physical and social well-being. Individuals can turn to online communities to interact with similar peers, which may help buffer negative effects resulting from health difficulties. However, because the specific resources sought remain unclear, the present study investigated the reasons that older adults join a Diabetes Online Community (DOC). Method: We used semantic network analyses to categorize the reasons participants provided for joining during the sign-up process. Results: The most frequent reasons for joining were: to seek information about their health condition, to help with self-management of health difficulties, for feelings of informational and social support, and for having a community with whom to share. Women were more likely to go online for sharing/companionship and information/social support reasons, whereas men were more likely to go online for general information and self-management reasons. Conclusion: This study shows the reasons individuals seek to join a DOC, for increased information and support regarding chronic health difficulties. Practice Implications: Practitioners may want to consider ways to promote access to online communities among their older patients as a source of health information and a resource to provide a sense of community.

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Communication That Changes Lives: Social Support Within an Online Health Community for ALS

Cited by 35 publications

References 30 publications

A Netnographic Study on Virtual Community of Patients with Spinal Cord Injury (SCI) in Turkey

A Netnographic Study on Virtual Community of Patients with Spinal Cord Injury (SCI) in Turkey

Social Support Exchanges in Facebook Social Support Group

Understanding Why Older Adults With Type 2 Diabetes Join Diabetes Online Communities: Semantic Network Analyses (Preprint)

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