Collaboration and Trust in Healthcare Innovation: The eDiaMoND Case Study

Abstract

This paper presents findings from an investigation into requirements for collaboration in e-Science in the context of eDiaMoND, a Grid-enabled prototype system intended in part to support breast cancer screening. Detailed studies based on ethnographic fieldwork reveal the importance of accountability and visibility of work for trust and for the various forms of 'practical ethical action' in which clinicians are seen to routinely engage in this setting. We discuss the implications of our findings, specifically for the prospect of using distributed screening to make more effective use of scarce clinical skills and, more generally, for realising the Grid's potential for sharing data within and across institutions. Understanding how to afford trust and to provide adequate support for ethical concerns relating to the handling of sensitive data is a particular challenge for e-Health systems and for e-Science in general. Future e-Health and eScience systems will need to be compatible with the ways in which trust is achieved, and practical ethical actions are realised and embedded within work practices.

Value-based requirements engineering: method and experience

“…While this focus is useful in exploring more wide ranging ethical and political implications of value (e.g. [58]), it does not give specific guidance about how to interpret values. The extension of value-sensitive design to worth maps [24] adopts a similar hunch list approach to create diagrams of user values and their possible implications; however, this approach does not offer any specific taxonomy of worth or value-related issues.…”

Facilitating technology adoption in the NHS: negotiating the organisational and policy context – a qualitative study

“…88,[112][113][114][115] This study is therefore supplemented by complementary work on boundary spanning work, 116,117 ideas underpinning risk communication 60 and research on the adaptation of work practices to new technologies. [118][119][120][121] All of these conceptual tools highlight the strategic role of human actors and, therefore, complement ANT, as indicated in the following section.…”

Discovering affect-laden requirements to achieve system acceptance

“…Jorgensen and Bossen [16] proposed executable use cases coupled to validation via informal animated diagrams for RE in pervasive healthcare. Garde and Knaup [13] argued for a grounded theory approach to RE in healthcare domains to deal with the complexity of the domain and socio-political issues; while participatory design [23] and ethnographic approaches [15] have been applied successfully in healthcare. Cysneiros [8] reviewed a variety of requirements elicitation techniques which could be applied to healthcare, suggesting that technique combination might be more effective.…”