Children's knowledge of cancer and its treatment: Impact of an oncology camp experience

Bluebond-Langner, Myra; Perkel, Dale; Goertzel, Ted G.; Nelson, Kevin L.; McGeary, Joan

doi:10.1016/s0022-3476(05)82876-8

Cited by 84 publications

(64 citation statements)

References 6 publications

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“…Regarding research on children's camp programs, three of these studied cancer patients only [11, 13,29], three included siblings in the study population or studied siblings alone [39,49,52], and two studied the entire family [7,48]. These studies are outlined in Table 1.…”

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

“…Both used a combination of case study and quasiexperimental designs enrolling 50 campers with cancer [13]. Data was collected using ethnographic field observations and structured, openended interviews with the children 1 month before and 6 months after camp, as well as a parent questionnaire before and after camp.…”

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

“…Data was collected using ethnographic field observations and structured, openended interviews with the children 1 month before and 6 months after camp, as well as a parent questionnaire before and after camp. The first study aimed to determine whether cancer and its treatment was informally discussed by children at camp, what kind of information was exchanged during these discussions, and how these interactions might effect the children's understanding of cancer and its treatment [13]. Ethnographic results showed that children engaged in informal discussions of cancer and its treatment and that information on a variety of topics ranging from medical procedures to prognosis was exchanged.…”

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

“…The second study, conducted at the same time, by Bluebond-Langer et al [13] aimed to investigate the peer relationships developed among campers. Interviews were used to assess the children's views of camp, their relationships with their peers, and the impact of camp on these aspects.…”

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

“…They also mentioned that knowing other children with cancer sparked concern about their own condition, although the data postcamp showed that concern about own condition actually decreased by 6%. Both Bluebond-Langer et al studies [13] are limited by their methods in that only 59% of the total camper population was included in the study due to geographic proximity to the interviewers, and no control group was studied. However, trained interviewers and observers were used for data collection.…”

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

See 4 more Smart Citations

Camping programs for children with cancer and their families

Martiniuk

2003

Supportive Care in Cancer

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This paper presents an introduction to the role of camping programs for children with cancer and their families and a hypothesized theory of action. Nine previously published studies investigating recreation-based summer camps for children with cancer and their families are summarized. Overall, these programs appear to be effective; however, an overall conclusion is difficult to state due to variations in design, heterogeneity of subjects, and differences in the definition of camp programs. The lack of knowledge regarding the efficacy of these programs is identified as the largest deficiency in the current literature on this topic. Future research needs in this area are discussed.

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Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

Section: Previous Research On Cancer Camp Programsmentioning

confidence: 99%

See 3 more Smart Citations

Camping programs for children with cancer and their families

Martiniuk

2003

Supportive Care in Cancer

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Lifetime Burden of Psychological Symptoms, Disorders, and Suicide Due to Cancer in Childhood, Adolescent, and Young Adult Years

et al. 2023

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ImportanceA cancer diagnosis and treatment may result in highly traumatic periods with lasting psychological consequences for children, adolescent, and young adult patients with cancer (CYACs). Early identification and management may prevent long-term psychological morbidity and suicide.ObjectiveTo analyze risk, severity, and risk factors for depression, anxiety, psychotic disorders, and suicide in CYACs and noncancer comparators.Data SourcesLiterature search of PubMed, MEDLINE, Embase, PsycINFO, CINAHL, and PubMed Central from January 1, 2000, to November 18, 2022.Study SelectionFull-length articles in peer-reviewed journals that measured and reported risk and/or severity of depression, anxiety, psychotic disorders, and suicide mortality in CYACs and a noncancer comparator group.Data Extraction and SynthesisPreferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) reporting guidelines were followed with prospective PROSPERO registration.Main Outcomes and MeasuresRisk ratios (RRs) were used for dichotomous outcomes, and standardized mean differences (SMDs) were used for continuous outcomes. SMDs were defined as follows: 0.2, small; 0.5, medium; and 0.8, large. Sources of heterogeneity and risk factors were investigated using sensitivity, subgroup, and meta-regression analyses.ResultsFrom 7319 records, 52 studies were included. Meta-analyses revealed that CYACs were at increased lifetime risk of severe symptoms or a disorder of depression (RR, 1.57; 95% CI, 1.29-1.92), anxiety (RR, 1.29; 95% CI, 1.14-1.47), and psychotic disorders (RR, 1.56; 95% CI, 1.36-1.80) relative to both matched controls and their siblings. Overall suicide mortality was not significantly elevated (RR, 1.63; 95% CI, 0.78-3.40). The mean severity of depression was found to be elevated in CYACs receiving treatment (SMD, 0.44; 95% CI, 0.13-0.74) and long-term survivors (SMD, 0.18; 95% CI, 0.02-0.33). The mean severity of anxiety was found to be elevated only during treatment (SMD, 0.16; 95% CI, 0.03-0.20).Conclusions and RelevanceFindings of this systematic review and meta-analysis suggest that CYACs may experience lasting psychological burden long into survivorship. Timely identification, preventive efforts, and psycho-oncological intervention for psychological comorbidity are recommended.

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