Childhood Illness-Related Parenting Stress: The Pediatric Inventory for Parents

Streisand, Randi; Braniecki, Suzanne; Tercyak, Kenneth P.; Kazak, Anne E.

doi:10.1093/jpepsy/26.3.155

Cited by 352 publications

(405 citation statements)

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“…One of the assets of the PIP is that parents are asked to rate both the frequency of stressful illness-related events and the difficulty they experience with these events. PIP total scores correlated significantly with a generic measure of state anxiety and parenting stress within a childhood oncology population [23].…”

Section: Introductionmentioning

confidence: 94%

“…Parents experiencing most emotional problems at diagnosis and during treatment continue to report high levels of distress, even after treatment ends [12,22]. Mothers tend to report more stress than fathers [7,19] and younger parents and parents of younger children report more stress than parents of older children [23].…”

Section: Introductionmentioning

confidence: 99%

“…Several questionnaires have been developed specifically for parents of children with cancer or children undergoing stem cell transplantation [28][29][30][31][32][33]. The Pediatric Inventory for Parents (PIP) [23] was designed to examine areas of stress and concern in parents of children with a medical illness. It has been proven a reliable instrument for examining parent's report of stress related to caring for a child with a serious illness, such as cancer [22,23], diabetes [34] and sickle cell disease [35].…”

Section: Introductionmentioning

confidence: 99%

“…The Pediatric Inventory for Parents (PIP) [23] was designed to examine areas of stress and concern in parents of children with a medical illness. It has been proven a reliable instrument for examining parent's report of stress related to caring for a child with a serious illness, such as cancer [22,23], diabetes [34] and sickle cell disease [35]. One of the assets of the PIP is that parents are asked to rate both the frequency of stressful illness-related events and the difficulty they experience with these events.…”

Section: Introductionmentioning

confidence: 99%

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Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

et al. 2010

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Egeler, R. M. (2010). Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study. Psycho-oncology, 19(4), 368-375. DOI: 10.1002/pon.1571 Copyright Other than for strictly personal use, it is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), unless the work is under an open content license (like Creative Commons).Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim.Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. AbstractObjectives: Diagnosis and treatment of childhood cancer are continuous stressors in the lives of the entire family involved. Disease-related tools for the assessment of parental stress and adaptation are scarce. For that reason, the Pediatric Inventory for Parents (PIP), a diseaserelated measure, was translated into Dutch and its psychometric qualities were determined to prove its value. Methods: The PIP and three other measures (State-Trait Anxiety Inventory, General Health Questionnaire and Parenting Stress Index, Short Form) were administered to 174 parents of 107 children diagnosed with cancer in three university medical centers in the Netherlands.Results: Internal consistency (Crohnbach's a 5 0.94 and 0.95) and test-retest reliability (Pearson's r between 0.67 and 0.87) of the Dutch PIP total scales are satisfactory. Validity was illustrated by a high correlation between PIP-scores and anxiety and general stress. Confirmatory factor analysis showed acceptable fit to the data for the original four-factor and the one-factor models; the four-factor model showed slightly better fit.Conclusion: The PIP can be used in clinical practice to assess disease-related parental stress. Further psychometric testing is highly recommended.

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Section: Introductionmentioning

confidence: 94%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

et al. 2010

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“…The Pediatric Inventory for Parents (PIP; Streisand et al 2001) was used to measure caregiver stress related to caring for a child with an illness. The PIP is a self-report measure with four subscales (communication, medical care, emotional distress and role function) and overall total difficulty and total frequency scores.…”

Section: Parenting Stressmentioning

confidence: 99%

Treatment Adherence and Psychological Wellbeing in Maternal Carers of Children with Phenylketonuria (PKU)

et al. 2017

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Phenylketonuria (PKU), a rare metabolic disorder, causes cognitive impairment unless treated with a strict, protein-restricted diet, but few studies have examined the relationship between treatment compliance and parental wellbeing. In the present study, 46 primary caregivers of children with PKU completed measures of psychological distress, parenting stress (related to caring for a child with an illness), resilience, perceived social support and child dependency. Treatment adherence was assessed using the proportion of blood phenylalanine concentrations within target range in the preceding year. Results indicated that 59% of caregivers showed clinical levels of psychological distress, which was predicted by their parenting stress and resilience. Whilst the proportion of blood phenylalanine concentrations in range was not associated with parental distress, it was predicted by child age and caregiver's perceived support from family. Despite experiencing high levels of distress, the results indicated that caregivers' ability to adhere to treatment was not affected. Interventions to reduce parenting stress and boost caregiver resilience may have a positive effect on parental wellbeing. Additionally, interventions to promote treatment adherence benefit parents of older children, with a focus on promoting support from family members. Further research with larger sample sizes and longitudinal designs is needed to further establish causal mechanisms.

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Medical Outcomes, Quality of Life, and Family Perceptions for Outpatient vs Inpatient Neutropenia Management After Chemotherapy for Pediatric Acute Myeloid Leukemia

Getz

Szymczak

et al. 2021

JAMA Netw Open

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IMPORTANCE Pediatric acute myeloid leukemia (AML) requires multiple courses of intensive chemotherapy that result in neutropenia, with significant risk for infectious complications.Supportive care guidelines recommend hospitalization until neutrophil recovery. However, there are little data to support inpatient over outpatient management. OBJECTIVETo evaluate outpatient vs inpatient neutropenia management for pediatric AML. DESIGN, SETTING, AND PARTICIPANTSThis cohort study used qualitative and quantitative methods to compare medical outcomes, patient health-related quality of life (HRQOL), and patient and family perceptions between outpatient and inpatient neutropenia management. The study included patients from 17 US pediatric hospitals with frontline chemotherapy start dates ranging from January 2011 to July 2019, although the specific date ranges differed for the individual analyses by design and relative timing. Data were analyzed from August 2019 to February 2020. EXPOSURES Discharge to outpatient vs inpatient neutropenia management. MAIN OUTCOMES AND MEASURESThe primary outcomes of interest were course-specific bacteremia incidence, times to next course, and patient HRQOL. Course-specific mortality was a secondary medical outcome. RESULTSPrimary quantitative analyses included 554 patients (272 [49.1%] girls and 282 [50.9%] boys; mean [SD] age, 8.2 [6.1] years). Bacteremia incidence was not significantly different during outpatient vs inpatient management (67 courses [23.8%] vs 265 courses [29.0%]; adjusted rate ratio, 0.73; 95% CI, 0.56 to 1.06; P = .08). Outpatient management was not associated with delays to the next course compared with inpatient management (mean [SD] 30.7 [12.2] days vs 32.8 [9.7]days; adjusted mean difference, −2.2; 95% CI, −4.1 to −0.2, P = .03). Mortality during intensification II was higher for patients who received outpatient management compared with those who received inpatient management (3 patients [5.4%] vs 1 patient [0.5%]; P = .03), but comparable with inpatient management at other courses (eg, 0 patients vs 5 patients [1.3%] during induction I; P = .59). Among 97 patients evaluated for HRQOL, outcomes did not differ between outpatient and inpatient management (mean [SD] Pediatric Quality of Life Inventory total score, 70.1 [18.9] vs 68.7

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Childhood Illness-Related Parenting Stress: The Pediatric Inventory for Parents

Cited by 352 publications

References 25 publications

Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

Treatment Adherence and Psychological Wellbeing in Maternal Carers of Children with Phenylketonuria (PKU)

Medical Outcomes, Quality of Life, and Family Perceptions for Outpatient vs Inpatient Neutropenia Management After Chemotherapy for Pediatric Acute Myeloid Leukemia

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