2021
DOI: 10.1111/hsc.13464
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Abstract: Health and social care services can enhance the community experiences of people with Alzheimer's disease and their caregivers but making decisions about service use is complex. Using a grounded theory methodology, we explored service use decisionmaking in 40 spousal and adult children caregivers for people with Alzheimer's disease across the caregiving and disease trajectory. Participants' perception of their initial service interactions influenced their decision-making process and use of services. Difficultie… Show more

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Cited by 9 publications
(12 citation statements)
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“…Additionally, support is needed to help caregivers navigate the healthcare system to find health and community resources that appropriately meet their needs and contribute to their own well-being. 38 Professional system navigator roles are increasingly being integrated into the healthcare system to aid patients and their caregivers with hospital to home transitions. 39 Our group has previously identified health system-related challenges caregivers to VAIs experience, including a lack of access to referrals.…”
Section: Discussionmentioning
confidence: 99%
“…Additionally, support is needed to help caregivers navigate the healthcare system to find health and community resources that appropriately meet their needs and contribute to their own well-being. 38 Professional system navigator roles are increasingly being integrated into the healthcare system to aid patients and their caregivers with hospital to home transitions. 39 Our group has previously identified health system-related challenges caregivers to VAIs experience, including a lack of access to referrals.…”
Section: Discussionmentioning
confidence: 99%
“…Although previous literature suggests dementia caregivers also have support needs that cross the care continuum (Kokorelias et al, 2020), PN programs for adults with complex care needs tend to be specific to particular parts of the illness trajectory or time-limited (Kokorelias, Gignac, et al, 2021). In a recent grounded theory study, caregivers to persons with Alzheimer's disease identified the need for professional navigational support to assist as their service and support needs evolve across the caregiving trajectory (Kokorelias, Gignac, et al, 2021). New and emerging PN programs to support persons with dementia are encouraged to provide support over long periods of time.…”
Section: Discussionmentioning
confidence: 99%
“…Participants also highlighted that the unpredictable nature of dementia could mean that home support needs were not anticipated during hospitalizations and thus, navigators should be available to help when unexpected needs do arise. Although previous literature suggests dementia caregivers also have support needs that cross the care continuum (Kokorelias et al, 2020), PN programs for adults with complex care needs tend to be specific to particular parts of the illness trajectory or time-limited (Kokorelias, Gignac, et al, 2021). In a recent grounded theory study, caregivers to persons with Alzheimer’s disease identified the need for professional navigational support to assist as their service and support needs evolve across the caregiving trajectory (Kokorelias, Gignac, et al, 2021).…”
Section: Discussionmentioning
confidence: 99%
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“…However, there are important gaps in our understanding of interactions, including care encounters, follow-up, and any informal conversations, between caregivers of persons living with dementia and important health and community-based services and providers. Previous research on caregivers of persons living with dementia has focused on interactions with healthcare providers in a given setting (primary care, inpatient, home care, skill nursing facility, assisted living) (Fortinsky, 2001; Granbo et al, 2019; Haley et al, 1992; Mueller et al, 2021; Stephan et al, 2015), despite providers recognizing they often spend limited time with patients and families and lack awareness of community resources (Jensen & Inker, 2015), or barriers and facilitators to service use (Biegel et al, 1993; Hochgraeber et al, 2017; Kokorelias et al, 2022; Macleod et al, 2017; Sutcliffe et al, 2015; Winslow, 2003). However, caregivers of persons living with dementia experience a range of interactions with providers and services across care settings through the progression of dementia.…”
mentioning
confidence: 99%