Cancer Stage Knowledge and Desire for Information: Mismatch in Latino Cancer Patients?

Costas-Muñíz, Rosario; Sen, Rohini; Leng, Jennifer; Aragones, Abraham; Ramirez, Julia; Gany, Francesca

doi:10.1007/s13187-013-0487-8

Cited by 53 publications

(71 citation statements)

References 26 publications

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“…For example, in a previous population-based survey, we found that Latina and African American breast cancer patients less often understood the survival benefit of treatment options than their white counterparts (29). Other researchers have similarly shown that patients who are less educated, who face language barriers, or who have low health literacy or numeracy, have lower knowledge about their treatments than their counterparts (30–33). Reasons for knowledge gaps are likely multi-factorial and relate to historical, language, or socio-demographic reasons.…”

Section: The Role Of the Patient: Drawing On A Conceptual Framewormentioning

confidence: 97%

Cultural challenges to engaging patients in shared decision making

Hawley

Morris

2017

Patient Education and Counseling

115

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Objective Engaging patients in their health care through shared decision-making is a priority embraced by several national and international groups. Missing from these initiatives is an understanding of the challenges involved in engaging patients from diverse backgrounds in shared decision-making. In this commentary, we summarize some of the challenges and pose points for consideration regarding how to move toward more culturally appropriate shared decision-making. Discussion The past decade has seen repeated calls for health policies, research projects and interventions that more actively include patients in decision making. Yet research has shown that patients from different racial/ethnic and cultural backgrounds appraise their decision making process less positively than do white, U.S.-born patients who are the current demographic majority. Conclusion While preliminary conceptual frameworks have been proposed for considering the role of race/ethnicity and culture in healthcare utilization, we maintain that more foundational and empirical work is necessary. We offer recommendations for how to best involve patients early in treatment and how to maximize decision making in the way most meaningful to patients. Innovative and sustained efforts are needed to educate and train providers to communicate effectively in engaging patients in informed, shared decision-making and to provide culturally competent health care.

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Section: The Role Of the Patient: Drawing On A Conceptual Framewormentioning

confidence: 97%

Cultural challenges to engaging patients in shared decision making

Hawley

Morris

2017

Patient Education and Counseling

115

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“…An inaccurate understanding of prognosis can influence the treatment choices parents make for their children. 10,11 Minority patients are also more likely to have language barriers and need an interpreter, which may impact communication experiences. 9,10 However, minority patients are also less likely to want information about prognosis and are more likely to desire a more passive role in decision making than whites.…”

Section: Introductionmentioning

confidence: 99%

“…5,6 In the adult cancer setting, minority race and ethnicity are associated with lower prognostic knowledge, 7 poorer understanding of the goals of treatment, 8 and less participation in decision making. 11,12 Whether lower understanding primarily reflects patient preferences remains unclear even among adults, in which this issue has been more extensively studied. 10,11 Minority patients are also more likely to have language barriers and need an interpreter, which may impact communication experiences.…”

Section: Introductionmentioning

confidence: 99%

“…9,10 However, minority patients are also less likely to want information about prognosis and are more likely to desire a more passive role in decision making than whites. [6][7][8][9][10][11] We know very little about how these findings in adults apply to the pediatric cancer setting. 11,12 Whether lower understanding primarily reflects patient preferences remains unclear even among adults, in which this issue has been more extensively studied.…”

Section: Introductionmentioning

confidence: 99%

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Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity

Ilowite

Cronin

Kang

et al. 2017

Cancer

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“…Furthermore, like their Latino counterparts, they faced higher rates of unemployment; made less than $10,000 annually; and had extremely low education levels. In another study with Latino cancer patients in New York City, close to two-thirds of the sample had considerably low knowledge of the different stages of cancer [26]. Limited knowledge about cancer may have deleterious effects in prevention, treatment and disease management.…”

Section: Discussionmentioning

confidence: 99%

The Smoking Behaviors and Cancer-Related Disparities Among Urban Middle Aged and Older Men Involved in the Criminal Justice System

et al. 2014

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This study examined cancer knowledge, mental health and smoking in formerly incarcerated men. The Cancer-Health Research Study with Formerly Incarcerated Men in New York City used a cross-sectional research design to examine knowledge and cancer prevention (CKP) outcomes among 259 justice-involved males, ages 35-67. CKP was assessed using items from the National Cancer Institute's Health Information National Trends Survey. Psychological symptoms were examined using the Brief Symptom Inventory. Of the 259 men who completed the survey, 76% of the respondents self-reported as current smokers. Current smokers smoked between one and 40 cigarettes per day. The mean number of cigarettes smoked per day was 10.37 (SD = 6.76). Sixty-three percent (n=165) of the respondents underwent cancer-screening tests. CKP scores ranged from two to 28; the mean was 15.05 (SD=5.49), indicating that the men scored very low in terms of CKP. CKP was negatively associated with the number of cigarettes smoked per day, τ = -.13, p = .01; participants with high knowledge scores smoked less daily. These results have important implications for enhancing access to cancer-health education in justice-involved settings.

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Cancer Stage Knowledge and Desire for Information: Mismatch in Latino Cancer Patients?

Cited by 53 publications

References 26 publications

Cultural challenges to engaging patients in shared decision making

Cultural challenges to engaging patients in shared decision making

Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity

The Smoking Behaviors and Cancer-Related Disparities Among Urban Middle Aged and Older Men Involved in the Criminal Justice System

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