Caloric Intake and Eating Behavior in Infants and Toddlers With Cystic Fibrosis

Abstract

, and observations that their child has a poor appetite (32%) and would rather drink than eat (32%). Parents of children with CF chose a greater number of mealtime strategies and feelings as problems and reported more frequently using problematic strategies at mealtimes than did parents of controls. Examples of problematic strategies and feelings for parents of infants and toddlers with CF included feeling anxious/frustrated when feeding their children (37%), not feeling confident that their child eats enough (32%), and using coaxing to get their child to take a bite (26%). For the entire sample, a positive correlation of 0.29 was found between the number of mealtime behavior problems reported by parents and meal duration, suggesting the co-occurrence of problematic mealtime behavior with longer meal duration. No relationship was found between the number of child mealtime behavior problems reported by parents and the number of calories consumed during the filmed meal. For the CF sample, a correlation of ؊0.26 between children's weight percentile for age and the filmed meal duration was found, suggesting a tendency for meal duration to increase as children's weight for age decreases. Post-hoc analyses were conducted comparing infants and toddlers with previously reported samples of preschool and school-aged children on meal duration. Results demonstrated that in each group, children with CF had longer meals than age-matched controls.Conclusions. Our findings reveal significant deficits in achieving dietary recommendations for many families of infants and toddlers with CF. Only 11% of infants and toddlers with CF met the CF dietary recommendation of at least 120% of the RDA/day for energy. In addition, infants and toddlers were found to derive only 34% of their daily calories from fat, compared with the recommended 40% needed for a moderate to high fat diet.

Warm Parenting Associated with Decreasing or Stable Child BMI during Treatment

“…Prior studies have indicated that parent-child behaviors during a meal are similar across three different tapings. [39][40][41] As such, only one taping was performed for each family.…”

Standards of care for patients with cystic fibrosis: a European consensus

“…cognitive-behavioral techniques to managing procedural distress [22] and feeding behavior problems [23,24]. In addition the center psychologist should address psychological factors associated with chronic pain and the effects of segregation, provide a consultation and supervision service to other CF team members, and undertake dissemination of the psychological effects of living with CF within the team.…”

Clinic consultations with children and parents on the dietary management of cystic fibrosis

“…However, children's actual dietary intakes are consistently reported as falling short of these recommendations (Stark, Mulvihill, Jelalian, Bowen, Powers, Tao et al 1997;Powers, Patton, Byars, Mitchell, Jelalian, Mulvihill et al 2002). The practice of self management has been advocated as an approach to helping children with CF increase their calorie intakes (Luder et al 1989) by educating them and their parents to actively partake in self monitoring, decision making and in communicating with professionals (Bartholomew et al, 1991).…”