Body mapping as a participatory method to explore health provider beliefs and understanding about sexual and reproductive health and rights in Timor-Leste

Henderson, Helen; Silva, Alexandrina Marques da; Silva, Mariano da; Xavier, Helio Afranio Soares; Mendonca, Silvina Amaral; Araújo, Rui Maria de; Vaughan, Cathy; Bohren, Meghan A

doi:10.1016/j.ssmqr.2022.100205

Cited by 6 publications

(3 citation statements)

References 15 publications

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“…Illustrating flares was not the original goal of this research, but it was important for participants as part of their body mapping process. We would suggest adapting the silhouettes to include one raised arm and including more language to reassure participants that artistic ability is not required for the body maps, a common theme in other body map studies (Henderson et al 2023;de Souza et al 2021). Because this was the first body map study for people with HS, future studies should reiterate the purpose of body mapping, remind participants that it is more than just indicating where HS symptoms appear on the body, and consider video recording the instructions so participants can follow along with the prompts more easily.…”

Section: Discussionmentioning

confidence: 99%

“It’s Like Having an Uncontrolled Situation”: Using Body Maps to Understand the Embodied Experiences of People with Hidradenitis Suppurativa, a Chronic Dermatological Condition

Ingraham,

Duong,

Hann

2024

Social Sciences

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Hidradenitis suppurativa (HS) is a chronic, inflammatory, and often debilitating skin condition that includes painful “flares” in the groin, genital, and underarms. (1) Background: Patients with HS have the highest reported mental health comorbidities among dermatological conditions. Qualitative social science research about HS is limited, so this study aimed to understand the lived experiences of people with HS through body mapping. Body mapping is a participatory research process where participants illustrate a drawing of their body with images, symbols, and words that represent their embodied experience. (2) Methods: This study recruited 30 participants from a previous survey about HS experiences. Participants selected from pre-made body silhouettes based on their body shape, illustrated a body map about their HS experience, then shared their body map during in-depth interviews. Interviews and body maps were analyzed with the same codebook created with inductive and deductive codes. (3) Results: The body map drawings yielded rich visual data and the mapping process helped participants express their HS experiences in unique ways that cannot always be captured with textual data alone. (4) Conclusions: This study adds to the limited social science literature about HS and introduces body mapping as a relevant qualitative method for exploring chronic dermatological conditions.

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Section: Discussionmentioning

confidence: 99%

“It’s Like Having an Uncontrolled Situation”: Using Body Maps to Understand the Embodied Experiences of People with Hidradenitis Suppurativa, a Chronic Dermatological Condition

Ingraham,

Duong,

Hann

2024

Social Sciences

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“…Practically, this means we prioritised the involvement of people, groups and organisations most affected by the health problem (access to SRHR in Timor-Leste) in all stages of the research cycle (study design–data collection–data management–data analysis–communication and action of research findings) [ 22 ]. We also used participatory research methods in our study, including our use of body mapping and multilingual panel translation processes [ 23 , 24 ]. These methods provided flexibility, time, and scope for participants to engage in the research in ways they controlled and found acceptable.…”

Section: Methodsmentioning

confidence: 99%

“…IDIs consisted of semi-structured open-ended questions followed by body mapping activities involving male and female body templates [ 24 ].…”

Section: Methodsmentioning

confidence: 99%

‘It depends on who is asking and why they will use it’: Access to male condoms in Timor-Leste

Henderson,

Soares Xavier,

Mendonca

et al. 2023

PLOS Glob Public Health

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The uptake of male condoms remains markedly low in The Democratic Republic of Timor-Leste (Timor-Leste), an island nation in South-East Asia. To understand why, we conducted participatory and operational research about beliefs, understanding and access to male condoms from both a community and healthcare provider perspective. We held 14 participatory group discussions (PGDs) with 175 community participants (84 men, 91 women; aged 18–72) across seven municipalities (Ainaro, Baucau, Bobonaro, Dili, Lautem, Manufahi, and Oecusse) in 2019. We held individual in-depth interviews (IDIs) with 24 healthcare providers working in the same community catchment areas as the PGDs. Two counsellors, four doctors, fifteen midwives, and three nurses participated (16 women, 8 men; aged 25–56 years). Data were analysed using reflexive thematic analysis. PGD and IDI participant awareness, understanding and beliefs about male condoms were diverse. Male condoms were often discussed as something negative and taboo, and as something that is highly regulated and discouraged within society and the health system. However, many PGD and IDI participants also challenged this narrative by providing a more rights-based perspective about universal access to sexual and reproductive health information and services, including male condoms. Insights from our research have been used to inform programmatic decision-making in Timor-Leste, including health promotion and service delivery initiatives. Our findings can be further used to inform national health policy, healthcare provider training, and advocacy and communication work.

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Towards a better tomorrow: addressing intersectional gender power relations to eradicate inequities in maternal health

Bohren,

Iyer,

Barros

et al. 2024

eClinicalMedicine

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Body mapping as a participatory method to explore health provider beliefs and understanding about sexual and reproductive health and rights in Timor-Leste

Cited by 6 publications

References 15 publications

“It’s Like Having an Uncontrolled Situation”: Using Body Maps to Understand the Embodied Experiences of People with Hidradenitis Suppurativa, a Chronic Dermatological Condition

“It’s Like Having an Uncontrolled Situation”: Using Body Maps to Understand the Embodied Experiences of People with Hidradenitis Suppurativa, a Chronic Dermatological Condition

‘It depends on who is asking and why they will use it’: Access to male condoms in Timor-Leste

Towards a better tomorrow: addressing intersectional gender power relations to eradicate inequities in maternal health

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