Better monitoring of abused children by designing a child abuse surveillance system: Determining national child abuse minimum data set

Abstract

Background: Monitoring the trend of child abuse can significantly help in measuring the magnitude of the problem and understanding its recurrence. The minimum data set (MDS) is a set of elements of each domain that provides the basis for decision-making. This study was conducted to determine the comprehensive national minimum data set for child abuse surveillance system (CASS) in Iran. Methods: This is a cross-sectional descriptive study. Data were gathered from the selected countries and child abuse registry and surveillance systems. The MDS questionnaire was designed based on a review of the publications and experts' opinions. The final data elements of the CASS were determined using the Delphi technique by visiting pediatricians. Results: In total, 147 data elements were included in the Delphi survey. The data elements of the CASS were classified into seven categories as follows: demographic data, incident related data, medical history, diagnostic tests, incident nature, therapeutic measures, and other required data. Conclusion: The existence of national MDS as the core of the child abuse surveillance program is essential and leads to appropriate decisions in this regard. The MDS can meet the needs of Zahra Karbasi and Maliheh Kadivar should be considered joint first author.

Development and Validation of the Iranian Neonatal Prematurity Minimum Data Set (IMSPIMDS): A Systematic Review Using Focus Group Discussion and the Delphi Technique

“…In another study in 2020, the Neonatal Abstinence Syndrome Minimum Data Set (NAS-MDS) was developed, and MDS was divided into two main categories for mothers and infants (31). Consequently, an MDS was designed for child abuse, in seven categories as follows: demographic data, incident-related data, medical history, diagnostic tests, incident nature, therapeutic measures, and other required data (33). In this research, MDS for prematurity was classified into 11 classes for mother (demographic, prenatal, pregnancy, delivery, and childbirth) and newborn (demographic, admission, birth, NICU admission, interventions, discharge, alerts and reminders, and reporting).…”

“…Several methods can be used to determine and develop an MDS, such as interviewing experts in each area, reviewing literature and documents, and available systems and the data sets (28,30,33). This research is a cross-sectional study performed in 2020.…”

Modeling of Child Stress-State Identification Based on Biometric Information in Mobile Environment

“…Owing to the increasing frequency of incidents and accidents affecting children, social attention to the safety of children has increased [1][2][3]. Accordingly, there has been an increasing demand for technologies that can determine the state of a child in real time.…”

Development a national minimum data set for poisoning registry in Iran

“…Using an MDS for surveillance reports as an effective tool for delivering high-quality care is essential. [24][25][26] The aim of MDSs is to determine data elements that should be considered for each patient and to provide consistent definitions of the necessary information for common terminology. 27 One of these standards is the International Classification of Diseases (ICD) system developed by WHO.…”

“…Development and implementation of an MDS is the first and most important step in collecting accurate, standardized, and comparable data at regional, national, and international levels, which can be applied to collect data in a specific scope. Using an MDS for surveillance reports as an effective tool for delivering high‐quality care is essential 24‐26 . The aim of MDSs is to determine data elements that should be considered for each patient and to provide consistent definitions of the necessary information for common terminology 27 …”