Bereaved parents' perspectives on their needs

D’Agostino, Norma Mammone; Berlin-Romalis, D; Jovcevska, Vesna; Barrera, Maru

doi:10.1017/s1478951508000060

Cited by 80 publications

(95 citation statements)

References 43 publications

(55 reference statements)

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“…Yleensä tuella nähdään olevan posi tiivinen vaikutus terveyteen (30,33,34). Esimer kiksi surututkimuksissa on voitu havaita, että tuen saamisella on vaikutusta surun kokemiseen (13,38) ja surusta selviytymiseen (14,16,39).…”

Section: Tuki Lapsen Kuoleman Jälkeenunclassified

Vanhempien parisuhteeseensa toivoma tuki lapsen kuoleman jälkeen

Manninen¹,

Kaunonen²,

Aho³

2017

SLA

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Lapsen kuoleman tiedetään vaikuttavan vanhempien parisuhteeseen. Kuitenkaan vanhempientoiveita parisuhteen tukemiseen liittyen lapsen kuoleman jälkeen ei ole tutkittu. Tämä tutkimus onosa laajempaa tutkimusta, jossa selvitettiin lapsen kuoleman vaikutuksia esimerkiksi vanhempienparisuhteeseen. Tämän osatutkimuksen tarkoituksena oli kuvata vanhempien parisuhteeseensatoivomaa tukea lapsen kuoleman jälkeisessä elämäntilanteessa. Vastaajina tässä tutkimuksessaolivat vanhemmat (n=236), joilla oli omakohtainen kokemus lapsen kuolemasta. Tutkimusaineistokerättiin surujärjestöjen verkkosivujen kautta sähköisellä lomakkeella ja analysoitiin käyttäeninduktiivista sisällönanalyysia. Lapsen kuoleman kokeneet vanhemmat toivoivat parisuhteeseensatukea pariskuntana elämässä eteenpäin menemiseen. Tuki pariskuntana elämässä eteenpäinmenemiseen muodostui toiveesta saada huomioivaan kanssakäymiseen perustuvaa tukea,kokemuksen jakamiseen perustuvaa tukea, pariskunnan arkea helpottavaa tukea, ammattilaistenantamaa tukea ja parisuhdetta lujittavaa tukea. Tämän tutkimuksen perusteella voidaantodeta, että lapsen kuoleman jälkeen tukea parisuhteeseen saadaan vähemmän, kuin toivotaan.Vanhempien toivoma tuki sisältää aineettoman, mutta myös hyvin konkreettisen tuen saamisensekä läheisiltä, että ammattilaisilta.

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Section: Tuki Lapsen Kuoleman Jälkeenunclassified

Vanhempien parisuhteeseensa toivoma tuki lapsen kuoleman jälkeen

Manninen¹,

Kaunonen²,

Aho³

2017

SLA

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“…8,16,18,19,43,66 Many parents have a need to continue a relationship with the hospital staff and perceive this relationship as an extension of caring and acknowlegment. 8,10,16,66,67 The ongoing need for support following a child's death is illustrated by the subsequent encounter with Jamie's family.…”

Section: Ongoing Support and Lasting Communicationmentioning

confidence: 99%

Caring for Pediatric Patients’ Families at the Child’s End of Life

Mullen

Reynolds

Larson

2015

Critical Care Nurse

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Nurses play an important role in supporting families who are faced with the critical illness and death of their child. Grieving families desire compassionate, sensitive care that respects their wishes and meets their needs. 1-5 Some nurses feel anxiety related to the experience of death and are inadequately prepared to provide end-of-life care. 3,6,7 We begin by presenting a case that illustrates a family's response when faced with such a life-altering event and the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience. Next, we review practical strategies that nurses can use to communicate with patients' families at the end of a child's life. We also provide additional strategies to provide compassionate, sensitive care that respects a family's wishes and attends to the needs of the family. Finally, we describe a bereavement program designed to facilitate lasting communication with the grieving family. This article has been designated for CE credit. A closed-book, multiple-choice examination follows this article, which tests your knowledge of the following objectives:1. Describe the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience 2. Discuss strategies to provide compassionate care that respects a family's wishes and attends to the needs of the family throughout the end-of-life experience 3. Identify strategies that nurses can use to communicate with patients' families at the end of a child's life CE Continuing Education 46

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“…In a study examining parental perspectives regarding bereavement services from a pediatric oncology treating center, D'Agostino et al interviewed 7 parents whose children had died from cancer (D'Agostino et al, 2008). Parents perceived flexible and continuous bereavement services from the treating hospital as a necessary transition to community services.…”

Section: Introductionmentioning

confidence: 99%

Parents Who Have Lost a Child to Cancer: What Do They Really Need?

Flahault

Seigneur²,

Laurence³

et al. 2015

PSYCH

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In a sample of parents who lost a child to cancer, we investigated their needs before and after their child's death and how these needs were fulfilled. We met parents of AYA (adolescents and young adults) between 15 and 25 years old, who died in Curie Institute between 2000 and 2003. Twentyone families agreed to participate in this study between October 2005 and April 2006. When a family agreed to participate, a semi-structured interview was held in the psycho-oncology unit of the Curie Institute. This interview was audiotaped and then retranscribed for analysis. Data were subjected to the Grounded theory method, a systematic and standardized method of semantic data analysis. Three prominent themes emerged from our thematic data analysis: first, the importance of psychological care during the terminal phase of the child's disease and after the child's death, reported by 95% of parents; second, the need to be listened to and to be understood by the medical team (97% of parents); third, the need for information from the medical team. A big discrepancy was observed between psychological support expectations and the proportion of parents who actually consulted or participated in bereavement groups. Our study clearly demonstrates that parents who lose a child through cancer have particular needs and therefore deserve special attention.

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Bereaved parents' perspectives on their needs

Abstract: Transitional multimodality bereavement services offered by the treating hospital will improve the quality of life of bereaved families.

Cited by 80 publications

References 43 publications

Vanhempien parisuhteeseensa toivoma tuki lapsen kuoleman jälkeen

Vanhempien parisuhteeseensa toivoma tuki lapsen kuoleman jälkeen

Caring for Pediatric Patients’ Families at the Child’s End of Life

Parents Who Have Lost a Child to Cancer: What Do They Really Need?

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