2021
DOI: 10.1371/journal.pone.0255265
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Abstract: Introduction Participatory research involving community engagement is considered the gold standard in Indigenous health research. However, it is sometimes unclear whether and how Indigenous communities are engaged in research that impacts them, and whether and how engagement is reported. Indigenous health research varies in its degree of community engagement from minimal involvement to being community-directed and led. Research led and directed by Indigenous communities can support reconciliation and reclamati… Show more

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Cited by 11 publications
(7 citation statements)
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References 102 publications
(200 reference statements)
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“…Academics led peer-reviewed publications though some included local public and political entities as coauthors. All these findings were consistent with systematic reviews in Canada183 184 and elsewhere 185 186…”
Section: Discussionsupporting
confidence: 89%
See 1 more Smart Citation
“…Academics led peer-reviewed publications though some included local public and political entities as coauthors. All these findings were consistent with systematic reviews in Canada183 184 and elsewhere 185 186…”
Section: Discussionsupporting
confidence: 89%
“…The review covered articles between 2010 and 2022, excluding earlier relevant articles. Our conclusions are about the current literature, although reviews without date restrictions reached similar findings 183 184 188. Since we focused on Inuit communities in Canada, results cannot be generalised without caution to other Circumpolar regions or Indigenous communities with historical, social contexts and research practices.…”
Section: Discussionmentioning
confidence: 56%
“…Specific to Indigenous women involved in Indigenous health research, Anderson and Cidro's [2] findings link to the systemic complexities entangled with gendered experience of community-engaged research. They and other scholars [30] point to the implications and future directions to address the structural inequities involved in Indigenous health research and to be grounded in Indigenous women's perspectives. A gendered view is needed to address gendered-violence and "to build a decolonial feminist resistance" [31].…”
Section: Discussionmentioning
confidence: 99%
“…This finding aligns with several recent systematic reviews on community participation. 4,14,[30][31][32] A 2015 research synthesis reported that 95% of initiatives they reviewed engaged communities in implementing interventions, and only 18% involved them in identifying and defining problems. 4 A 2020 systematic review on community participation in humanitarian settings reported limited evidence on involvement of communities in framing issues or designing solutions.…”
Section: Discussionmentioning
confidence: 99%
“…They also mentioned that presence of women in Boma health committees was limited despite the requirement that one-third of the members were women. 31 Resource Mobilisation Proponents of the Alma Ata approach to primary healthcare have long warned against policy shifts that presume spontaneous community participation in healthcare without funding provisions. [40][41][42] The BHI is predominately dependent on external funding and expects the lower levels of government to contribute financially to the implementation of the policy.…”
Section: Political Organization and Leadershipmentioning
confidence: 99%