Anxiety and Depression in Caregivers of Terminally Ill Cancer Patients: Impact on Their Perspective of the Patients' Symptom Burden

Goerth, Kathrin; Bokemeyer, Carsten; Mehnert, Anja

doi:10.1089/jpm.2013.0038

Cited by 59 publications

(45 citation statements)

References 29 publications

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“…Our findings are consistent with previous research that suggests a high prevalence of anxiety and depression in family caregivers of palliative patients in home-based care (Cora et al, 2012;Oechsle et al, 2013;Payne & Grande, 2013;Pitceathly & Maguire, 2003). Our findings are consistent with previous research that suggests a high prevalence of anxiety and depression in family caregivers of palliative patients in home-based care (Cora et al, 2012;Oechsle et al, 2013;Payne & Grande, 2013;Pitceathly & Maguire, 2003).…”

Section: Discussionsupporting

confidence: 92%

“…Providing care at home can itself be a source of stress, which in palliative situations is increased by awareness of a terminal diagnosis. Because of the physical and emotional burden of care, they often suffer from distress (Ando, Ninosaka, Okamura, & Ishi, 2013;Götze, Brähler, Gansera, Polze, et al, 2014;Oechsle, Goerth, Bokemeyer, & Mehnert, 2013). Because of the physical and emotional burden of care, they often suffer from distress (Ando, Ninosaka, Okamura, & Ishi, 2013;Götze, Brähler, Gansera, Polze, et al, 2014;Oechsle, Goerth, Bokemeyer, & Mehnert, 2013).…”

Section: Family Caregiversmentioning

confidence: 99%

“…dened by the experience of helplessness and the approaching death of their relative(Oechsle et al, 2013). Factors influencing psychological distress (anxiety/ depression) in bereaved family caregivers (t2), N = 72…”

mentioning

confidence: 99%

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Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

et al. 2016

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We examined psychological parameters in family caregivers of palliative cancer patients before and after the death of the patients. Caregivers' data about depression and anxiety (Hospital Anxiety and Depression Scale), quality-of-life (Short Form-8 Health Survey), and social support (Oslo Social Support Scale) were collected at the beginning of home care (t1) and 2 months after the patient had died (t2). Regression models were employed to examine factors related to depression and anxiety in the bereaved caregivers. We interviewed 72 relatives, who were the primary caregiver of a patient. One-third (31.9%) of caregivers had high anxiety levels and 29.2% had high depression levels (t1, cut-off = 10). At t2, anxiety and depression had decreased significantly. There were no changes in quality-of-life over time. At both points of assessments, quality-of-life was lower than in the general population. Relevant factors for higher anxiety and depression in the bereaved caregivers were high levels of distress at t1, insufficient social support and low physical function. Bereaved caregivers were particularly depressed when they had been the spouse of the patient. Healthcare professionals should consider social isolation of caring relatives both during homecare and afterwards. Thus, it seems to be important to routinely offer support to spouses.

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Section: Discussionsupporting

confidence: 92%

Section: Family Caregiversmentioning

confidence: 99%

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Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

et al. 2016

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“…Some authors indicated that cancer care affects all aspects of the cancer patient and patient's family including psychological, physical, social, financial and spiritual well-being (Girgis & Lambert 2009;Stenberg et al 2010;Lee et al 2013). Thus, while the prevalence of anxiety and depression among cancer caregivers ranges from 10% to 53%, the ratio among partners of cancer patients ranges from 16% to 56% (Raveis et al 1998;Kozachik et al 2001;Girgis & Lambert 2009;Stenberg et al 2010;Lee et al 2013;Oechsle et al 2013;Utne et al 2013). Girgis and Lambert (2009) have reported that caregivers of cancer survivors experience social and personal loss.…”

Section: Introductionmentioning

confidence: 99%

Depression and socio-economical burden are more common in primary caregivers of patients who are not aware of their cancer: TURQUOISE Study by the Palliative Care Working Committee of the Turkish Oncology Group (TOG)

Tanrıverdi

Yavuzşen

Turhal

et al. 2015

Eur J Cancer Care (Engl)

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In this study, we aimed to determine the personal, social and economic burden and the frequency of depression, as well as in caregivers of cancer patients who are being treated with chemotherapy in Turkey. The study is designed as a cross-sectional survey study using a 5-point Likert-type response scale, and the last part of the questionnaire includes the Beck Depression Inventory. The depression rate was found to be 64% (n = 476) among all subjects (n = 968), with 91% of those with depression demonstrating signs of mild depression. In this study, a significant difference was found between the presence of depression and age (young), sex (female), educational level (high), economic status (low), financial loss during treatment, patient's lack of knowledge about his/her diagnosis, metastatic disease and short survival time. In addition, 64% of all subjects had concerns of getting cancer, and 44% of all subjects had feelings of anger/rage against other people. In a multivariate regression analysis, the patient's lack of knowledge of the diagnosis was the independent risk factor. In conclusion, depression incidence and burden rate increased among cancer caregivers, and care burden was highly associated with depression. Accordingly, approaches to reducing the psycho-social effects of cancer should focus intensively on both the patients and their caregivers in Turkey.

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“…Como consequência, a própria assistência prestada pode ter sua qualidade afetada. Habitualmente representado pelo segmento leigo, numa condição de assistência informal, o cuidador assume novas responsabilidades, de maneira que a sobrecarga de trabalho, o tempo insuficiente para o lazer e para o cuidado com sua própria saúde irão apresentar fatores de risco para o desenvolvimento de depressão e ansiedade (12)(13) . Ademais, a sobrecarga está correlacionada diretamente com o estado geral de saúde do cuidador, de modo que aspectos emocionais, psicológicos e financeiros tendem a estar abalados (14)(15)(16) .…”

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Sobrecarga E Depressão Em Cuidadores De Pacientes Oncológicos Em Tratamento Quimioterápico

Bianchin¹,

Silva²,

Fuzetto³

et al. 2015

ACS

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ResumoIntrodução: O aumento da expectativa de vida nos países em desenvolvimento nas últimas décadas, somado às políticas públicas de prevenção e promoção de saúde, está associado com a elevação dos índices de prevalência e de incidência de doenças crônicas e degenerativas, com destaque para o câncer. Consequentemente, cresce a demanda por cuidadores de pacientes oncológicos. Nesse contexto, a sobrecarga de trabalho, o estresse e o tempo insuficiente para o lazer e para o cuidado com sua própria saúde são fatores de risco para depressão, ansiedade e acometimento da qualidade de vida do cuidador. Objetivo: Avaliar a presença de depressão e de sobrecarga em cuidadores de pacientes oncológicos em tratamento quimioterápico correlacioná-las entre si e analisar qualitativamente os dados sociodemográficos obtidos. Casuística e Métodos: Estudo descritivo, exploratório e com amostragem de conveniência. Cinquenta e seis cuidadores responderam na forma de entrevista individual ao Inventário de Depressão de Beck e a Escala de Sobrecarga de Zarit. Para a estatística inferencial foram utilizadas as análises de Correlação de Pearson e Spearman, de acordo com a natureza dos dados. Resultados: Depressão foi encontrada em 12,5% dos entrevistados. Disforia foi constatada em 7,1% deles, dos quais 75% eram do sexo feminino. As mulheres representaram 78,6% dos cuidadores que participaram da pesquisa e a média de idade dos entrevistados foi de 47,03 anos, com desvio padrão de 1,764. Sobrecarga foi encontrada em 3,57% dos cuidadores. Dos participantes, 100% eram cuidadores informais e apresentavam algum grau de parentesco com o paciente. Resultados significativos foram obtidos ao correlacionar sobrecarga e depressão (p<0,05). Conclusão: Sobrecarga e depressão são fatores modificadores da sáude e da qualidade de vida do cuidador, capazes de afetar a dinâmica familiar e a própria assistência prestada ao paciente oncológico. Cabe-nos inferir a importância da orientação e do acompanhamento multidisciplinar voltados para o cuidador, intervindo no desenvolvimento da depressão e da sobrecarga nessa população. Descritores: Neoplasias; Cuidadores; Quimioterapia; Depressão. Abstract Introduction:The increase in life expectancy in developing countries in recent decades, along with the public policy of health prevention and promotion, is associated with an increase in prevalence and incidence rates of chronic and degenerative diseases, especially cancer. Consequently, the demand grows for caregivers of cancer patients. Work overload, stress, and insufficient time for leisure, as well as the time to care for their own health are risk factors for depression, anxiety, and decrease of the caregiver's quality of life. Objective: The present study aims to evaluate and show a correlation between depression and burden in caregivers of cancer patients receiving ongoing chemotherapy treatment and to analyze the socio-demographic data obtained. Patients and Methods: This is a descriptive and exploratory study with random sampling. The study sample included 5...

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Anxiety and Depression in Caregivers of Terminally Ill Cancer Patients: Impact on Their Perspective of the Patients' Symptom Burden

Abstract: Integrative palliative care should offer psychooncological care for the caregivers on a routine basis to avoid misleading perspectives possibly influencing end-of-life treatment decisions.

Cited by 59 publications

References 29 publications

Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

Depression and socio-economical burden are more common in primary caregivers of patients who are not aware of their cancer: TURQUOISE Study by the Palliative Care Working Committee of the Turkish Oncology Group (TOG)

Sobrecarga E Depressão Em Cuidadores De Pacientes Oncológicos Em Tratamento Quimioterápico

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