Affiliate stigma and depression in caregivers of children with Autism Spectrum Disorders in China: Effects of self-esteem, shame and family functioning

Zhou, Ting; Wang, Yiting; Cui, Yi

doi:10.1016/j.psychres.2018.03.071

Cited by 111 publications

(91 citation statements)

References 39 publications

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“…Caregivers who prescribed to a supernatural explanation for their child's condition were also more likely to report affiliate stigma (Tilahun et al, 2016). More recently, in a group of ASD caregivers from China, self-esteem negatively, and feelings of shame positively, predicted reports of affiliate stigma (Zhou et al, 2018). These studies however, much like earlier research involving caregivers of schizophrenia patients, recruited predominately from China and India, with one study recruiting from Ethiopia.…”

Section: Introductionmentioning

confidence: 77%

Caregivers’ characteristics and family constellation variables as predictors of affiliate stigma in caregivers of children with ASD

Lovell

Wetherell

2018

Psychiatry Research

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Affiliate stigma is one risk factor for psychological distress in familial caregivers. Few studies however, and none involving caregivers in the UK and US, have explored caregivers' characteristics and family constellation variables as risk and protective factors for affiliate stigma. This study aimed to fill this gap. Moreover, we believe this study is only second to explore these relationships among caregivers of children with autism spectrum disorder (ASD), a group particularly vulnerable to affiliate stigma. A sample of n=192 caregivers of children with ASD completed an online survey assessing caregivers' characteristics and family factors, and affiliate stigma. Non-partnered caregivers were more likely to report affiliate stigma, as were caregivers with shorter sleep duration. These findings might help clinicians and other health professionals identify caregivers at risk for affiliate stigma and concomitant psychological distress.

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Section: Introductionmentioning

confidence: 77%

Caregivers’ characteristics and family constellation variables as predictors of affiliate stigma in caregivers of children with ASD

Lovell

Wetherell

2018

Psychiatry Research

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“…The included studies represented a total sample of 1442 informal caregivers (predominantly mothers) across three cultural regions: East Asia including China (Ting et al 2018 ) and Hong Kong (Chan and Lam 2017 , 2018 ; Mak and Kwok 2010 ; Wong et al 2016 ), the Middle East including Israel (Werner and Shulman 2013 ), West Bank (Dababnah and Parish 2013 ), the United Arab Emirates (Crabtree 2007 ) and Iran (Dehvani et al 2011 ), and the Western culture including the United States (Resch et al 2010 ) and Australia (Broady et al 2018 and; Gray 2002 ).…”

Section: Resultsmentioning

confidence: 99%

Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health

Papadopoulos

Lodder

Constantinou

et al. 2018

J Autism Dev Disord

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Families play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma’s impact on informal caregivers’ mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed.

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“…This could be achieved through the provision of parenting/coping skills or establishment of mutual support groups to enhance their sense of control and social support [27], which in turn may reduce their negative emotion or excessive assistance in their children's activity participation. Also, collaborations with nongovernment organizations and government sectors may be necessary to provide public education and exposure to ASD [24,30]. Public stigma towards children with ASD and their families could be reduced accordingly and these children may be involved more in community activities.…”

Section: Discussionmentioning

confidence: 99%

“…Affiliate stigma could lead the parents to react behaviorally by hiding their children's condition from others, withdrawing from social relations, or alienating themselves from the stigmatized individuals to avoid association [28,29]. There are a few studies that have reported a high level of affiliate stigma in the parents of children with ASD [27,[30][31][32][33]. Affiliate stigma is also found to negatively affect psychological well-being in these parents, leading to a reduced quality of life [24,27,30].…”

Section: Introductionmentioning

confidence: 99%

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

Lam

Tsang

et al. 2020

IJERPH

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Children with autism spectrum disorder (ASD) are reported to participate less in everyday activities, and their parents face stigma on account of having a child with ASD, which they often internalize as affiliate stigma. Studies have examined the impact of affiliate stigma on parents’ psychological well-being and social behaviors, but little is known about how affiliate stigma impacts their children’s activity participation. This study aimed to investigate the relationship between parents’ affiliate stigma and activity participation of their children with ASD. Sixty-three parents of children with ASD (aged 2–6 years) were recruited. They completed questionnaires, which captured affiliate stigma, their child’s participation (frequency and involvement) in home, preschool, and community activities, and demographic characteristics. Results indicated that these parents had a moderate level of affiliate stigma, which did not correlate with the frequency of their children’s participation in activities. However, the parents’ affiliate stigma was found to have negative impacts on their children’s involvement in overall community participation and participation in one particular activity at home. The findings highlight the importance of destigmatization of parents of children with ASD in order to promote their children’s participation in community activities.

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Affiliate stigma and depression in caregivers of children with Autism Spectrum Disorders in China: Effects of self-esteem, shame and family functioning

Cited by 111 publications

References 39 publications

Caregivers’ characteristics and family constellation variables as predictors of affiliate stigma in caregivers of children with ASD

Caregivers’ characteristics and family constellation variables as predictors of affiliate stigma in caregivers of children with ASD

Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

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