Adding two culture-specific ‘bolt-on’ dimensions on the Thai version of EQ-5D-5L: an exploratory study in patients with diabetes

Kangwanrattanakul, Krittaphas; Gross, Cynthia R.; Sunantiwat, Montaya; Thavorncharoensap, Montarat

doi:10.1080/14737167.2019.1525294

Cited by 10 publications

(14 citation statements)

References 43 publications

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“…Of the 28 articles that were included, 3 articles were studies that identified possible bolt-ons (category A "identification or development of possible suitable bolt-ons"), [23][24][25] 13 articles were psychometric performance studies (category B "psychometric performance studies"), 8,26-37 and 6 articles were valuation studies of EQ-5D 1 bolt-on (category C "health state valuation studies"). 19,20,[38][39][40][41][42] Furthermore, 3 articles were categorized as both categories A and B, [43][44][45] and 3 articles as both categories A and C. 13,21,38 Study populations consisted of a healthy population (n = 17 articles: general public, 13,[19][20][21]24,25,27,30,36,38,[40][41][42][43] random households, 44,45 faculty members 39 ) and patients (n = 11 articles: individuals with a chronic condition, 23 visitors of an outpatient eye clinic, 26 cognitive impaired elderly patients, 18 patients with diabetes, 28 general injury patients, 29,31,35 patients listed for cataract surgery, 32,34 stroke patients, …”

Section: Study Characteristicsmentioning

confidence: 99%

“…Overall, only 1 study scored "doubtful" on the COSMIN Risk of Bias checklist, whereas all other studies scored "inadequate." Considering the quality of studies per subject, 1 study scored "adequate" on PROM development, 38 3 studies scored doubtful, 21,28,42 and 24 studies scored inadequate. Furthermore, content validity was found to be inadequate again in 25 studies and doubtful in the remaining 3 studies.…”

Section: Quality Of Studiesmentioning

confidence: 99%

“…Furthermore, content validity was found to be inadequate again in 25 studies and doubtful in the remaining 3 studies. 21,28,45 The third subject that was tested with the COSMIN was reliability, which was found to be inadequate in all studies.…”

Section: Quality Of Studiesmentioning

confidence: 99%

“…Based on the self-developed checklist for bolt-on studies, 3 studies in category A1 ("studies that identified possible suitable bolt-ons") scored doubtful, 23,24,44 and 3 studies adequate, 25,43,45 whereas for category A2 ("studies that developed possible suitable bolt-ons") 1 study was inadequate 40 and 2 studies were very good. 21,38 For category B, 3 studies scored inadequate, 26,34,36 6 studies doubtful, 18,27,28,30,32,33 and 4 studies adequate. 29,31,35,37 Furthermore, 1 study in category C was judged inadequate, 19 3 studies doubtful, 21,38,39 1 study adequate, 41 and 4 studies very good.…”

Section: Quality Of Studiesmentioning

confidence: 99%

“…The main reason for adding this bolt-on was that relationships were expected to be an important part of health that is not measured with the EQ-5D, but is relevant in, for example, chronically ill patients or in some specific cultures. 23,27,28,30,45 Studies that investigated a sleep bolton were more consistent in terminology. 19,23,25,27,41,44,45 Furthermore, the sleep bolt-on originated from a literature review and existing HRQoL instruments (eg, AQoL 8D, 15D), with the concern that health is not fully covered within the EQ-5D as main reason for adding a sleep bolt-on.…”

Section: Suggested and Tested Bolt-on Dimensionsmentioning

confidence: 99%

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Methods Used to Identify, Test, and Assess Impact on Preferences of Bolt-Ons: A Systematic Review

et al. 2021

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The question of whether additional dimensions should be added to the EQ-5D, so-called bolt-ons, has been researched since the 1990s. Several candidate bolt-ons have been tested. The aim of this systematic review was to provide an overview of EQ-5D bolt-on studies, including the origin of possible suitable bolt-ons, their format, and methods that were used to examine their value. Methods: Studies were identified through database search and reference screening and assessed based on a set of inclusion criteria. All studies that investigated bolt-ons for the EQ-5D were eligible for inclusion. Two reviewers independently extracted information from all included studies on objectives, study design, EQ-5D version used, the investigated bolt-ons, methods used to achieve objectives, and outcomes. Results: Of 308 initially identified studies, 28 studies met the inclusion criteria. Of these studies, 3 identified potentially suitable bolt-on dimensions, 13 investigated the psychometric performance of EQ-5D 1 bolt-on(s), and 6 investigated the impact of the bolt-on on health state preferences. In total, 26 bolt-ons were identified, of which cognition was the most frequently mentioned. A wide variety of bolt-on identification methods, psychometric performance tests, and health state valuation methods were used in the included studies. Conclusion: A range of bolt-on dimensions has been investigated using diverse methods. Guidelines are needed to standardize the wording of the bolt-on dimension and response options, evaluate minimal important gain of the bolt-on, and facilitate quality assessment of bolt-on studies. Subsequently, guidelines will facilitate decision making on whether or not to implement a bolt-on dimension to the EQ-5D.

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Section: Study Characteristicsmentioning

confidence: 99%

Section: Quality Of Studiesmentioning

confidence: 99%

Section: Quality Of Studiesmentioning

confidence: 99%

Section: Quality Of Studiesmentioning

confidence: 99%

Section: Suggested and Tested Bolt-on Dimensionsmentioning

confidence: 99%

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Methods Used to Identify, Test, and Assess Impact on Preferences of Bolt-Ons: A Systematic Review

et al. 2021

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The remarkably frequent use of EQ-5D in non-economic research

et al. 2021

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Introduction EQ-5D is an instrument which has been utilized for a variety of purposes, including in health-economic appraisals as an input into quality-adjusted life year (QALY) calculations. Indeed, it is the most-widely applied instrument for health-economic appraisal worldwide, and is recommended for use in QALY calculations by many national Health Technology Assessment (HTA) agencies. There is also a growing body of evidence for its usefulness in a variety of settings other than economic appraisals, but such use has not been well-documented. This study addresses this issue and documents how EQ-5D has been applied in both the non-economic and economic contexts. Methods The PubMed database was searched using the terms ‘EQ-5D’, ‘EQ-5D AND cost’, and ‘EQ-5D AND cost AND QALY’ from 1 January 1980 to 31 December 2019. We concentrated on 2019 publications for more detailed analyses. All the data collected for 2019 were downloaded and collected in EndNote. For 2019 only, we classified economic and non-economic use based on the inclusion of ‘cost’. We also checked by manual inspection whether the search terms were suitable in correctly identifying economic and non-economic use. Variants of the non-economic use of EQ-5D were classified as follows: (a) as a quality of life outcome measure; (b) as a tool for methodological research; (c) methodological issues of EQ-5D itself; (d) comparisons with other quality of life questionnaires; (e) mapping studies; (f) value sets; (g) alongside costs but no QALY calculated; and (h) other. Results The first publication found was from 1990. Up to and including 2019, 10,817 publications were identified, of which more than two in three did not contain any reference to costs or QALYs. In 2019, a total of 1409 manuscripts were identified, of which 239 were specifically for EQ-5D-5L. Four hundred and seven (28.9%) included some form of ‘costs’ and 157 (11.1%) both ‘costs’ AND ‘QALYs’ terms. For EQ-5D-5L, the corresponding numbers were 104 (43.5%) and 29 (12.1%), respectively. After manually checking all the 1409 papers, three were duplicated records, which were omitted. In the remaining 1406 papers, only 40 (2.8%) contained the term ‘cost’, but not ‘cost per QALY’, and only 117 (8.3%) were identifiable as economic evaluations using the term ‘cost per QALY’. Most non-economic use of EQ-5D was as a quality-of-life outcome measure (72.8%). Other applications were: as a tool for methodological research (6.7%); comparison studies (3.7%); EQ-5D methodological issues (3.5%); containing costs but not QALYs (2.8%); mapping (1.3%); value sets (0.4%); and other papers (0.4%). Conclusions The majority of the studies retrieved, covering a wide variety of research areas, reported upon the non-economic use of EQ-5D. Despite being the most-used instrument worldwide for QALY calculations, economic appraisal accounted for only a small, but important, part of published use.

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Psychometric properties comparison between EQ-5D-5L and EQ-5D-3L in the general Thai population

Kangwanrattanakul

Parmontree

2020

Qual Life Res

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Adding two culture-specific ‘bolt-on’ dimensions on the Thai version of EQ-5D-5L: an exploratory study in patients with diabetes

Cited by 10 publications

References 43 publications

Methods Used to Identify, Test, and Assess Impact on Preferences of Bolt-Ons: A Systematic Review

Methods Used to Identify, Test, and Assess Impact on Preferences of Bolt-Ons: A Systematic Review

The remarkably frequent use of EQ-5D in non-economic research

Psychometric properties comparison between EQ-5D-5L and EQ-5D-3L in the general Thai population

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