A Unexpected Fetal 0utcome during Pregnancy: A Humae Experience

Nakagomi, Satoko

doi:10.3418/jjam.13.2_5

Cited by 2 publications

(2 citation statements)

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“…While maintaining hope, they also experience periods of despair and hopelessness. Ambivalent reactions such as these were cited in past studies (Jones, Statham & Solomou, 2005;Nakagome, 2000). While experiencing such ambivalence however, women were also likely to find meaningful experiences in fighting against those values, social norms, ideologies and ethics that they thought were normal.…”

Section: Dilemmamentioning

confidence: 93%

“…Even after diagnosis, those who choose to continue their pregnancy experience feelings such as unconditional love (Abe, 2003), a strong sense of attachment regardless of birth defects (Hedrick, 2000), and a growing sense of closeness to their baby (Kamijo, 2003). Although they also felt some pressure at the prospect of raising a child with a birth defect, the idea of living together with that child helped women see how to reconstruct their lives (Nakagome, 2000).…”

Section: Attachmentmentioning

confidence: 99%

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The experiences of pregnant women diagnosed with a fetal abnormality

Araki

2010

J. Jpn. Acad. Midwif.

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PurposeThis paper first focuses on outlining currently available knowledge throughout the world regarding women who decide to continue with their pregnancy knowing that there will be something abnormal about their child. Secondly, it discusses making information applicable to the existing issues available to midwives who deal with those women. Finally, the paper looks at coming up with a future agenda for improving the care environment for those women, to be worked on in clinical practice. MethodsPublished literature concerning those women who choose to carry on a pregnancy after having been informed of a fetal abnormality was searched for using the following sources: PubMed, PsycINFO, CINAHL, and Ichu-shi WEB. A search was made for English language articles published in any country between 1998 and 2009, using the keywords "prenatal diagnosis" and "fetal abnormality". We considered each article's targets, research method and results in order to analyze how fetal diagnoses and mothers' experiences influence the framing of psychological experiences. ResultIn reviewing twelve domestic and international journal articles, five themes were highlighted that constitute pregnant women's experiences carrying a child with a congenital abnormality, namely: grief, attachment, dilemma, uncertainty and isolation. These themes became clear that the experiences of those women carrying a child with a known congenital abnormality cannot be described in any one way, as there are so many constituent factors to take into account. ConclusionThese themes can be helpful in understanding mothers' experiences. However, more studies need to be done in order to explore how they influence mothers' relationship with, and involvement in society. Understanding mothers' experiences from both psychological and social perspectives can help nurses improve their clinical practice, both in delivering the child and in caring for the mother. Future studies will yield further useful information, to help healthcare professionals assist mothers, children, and families cope with any challenge they may face.

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Section: Dilemmamentioning

confidence: 93%

Section: Attachmentmentioning

confidence: 99%

The experiences of pregnant women diagnosed with a fetal abnormality

Araki

2010

J. Jpn. Acad. Midwif.

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Randomized controlled trial of decision aids for women considering prenatal testing: The effect of the Ottawa Personal Decision Guide on decisional conflict

Arimori

2006

Japan Journal Nursing Sci

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Aim: The aim of this research study was to clarify the effect that counseling using the Ottawa Personal Decision Guide had on pregnant women in helping them to decide whether or not to undergo prenatal testing. It compared the "decisional conflict" of a group of women interviewed by a nurse using the guide with that of a second group who were only given standard genetic counseling. Methods: A group of pregnant women attending the hospital for genetic counseling was randomly divided into an intervention group and a control group. The women in the intervention group were given standard genetic counseling, followed by an interview based on the decision aid guide. The women in the control group were given only standard genetic counseling. Both groups were followed up. The primary outcome of the study was to determine the level of decisional conflict, as measured by the Japanese version of the Decisional Conflict Scale. The secondary outcome was self-esteem, based on the Rosenburg Self-Esteem Scale. The outcome indicators were obtained from responses given in patient questionnaires conducted after standard genetic counseling (pre-intervention) and after the conclusion of the decision-making process (postintervention). Results: The pre-intervention and postintervention changes in decisional conflict scores (primary outcome) indicated no significant difference between the two groups. However, with regard to postintervention decisional conflict, the rate of the response "mild to high decisional conflict" was lower for the intervention group than the control group. No significant difference between the two groups was detected for the secondary outcome of self-esteem. Conclusions:The reasons for the lack of a clear effect on the level of decisional conflict are that the preintervention responses for both groups were obtained after completion of the standard genetic counseling program and because follow-up conducted by the nurses took the form of care given in response to patients' needs. The use of decision aids to assist in the decision-making process had no effect on the level of selfesteem in the two groups. As a result, there was a similar level of intervention for both groups. However, as there was no clear indication that the use of the Ottawa Personal Decision Guide was harmful, it will be a useful tool in the medical care setting.

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A Unexpected Fetal 0utcome during Pregnancy: A Humae Experience

Cited by 2 publications

References 0 publications

The experiences of pregnant women diagnosed with a fetal abnormality

The experiences of pregnant women diagnosed with a fetal abnormality

Randomized controlled trial of decision aids for women considering prenatal testing: The effect of the Ottawa Personal Decision Guide on decisional conflict

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