A theory of meaning of caregiving for parents of mentally ill children in Taiwan, a qualitative study

Yen, Wen‐Jiuan; Teng, Ching-Hwa; Huang, Xuan‐Yi; Ma, Wei‐Fen; Lee, Sheuan; Tseng, Hsiu-Chih

doi:10.1111/j.1365-2702.2009.02984.x

Cited by 17 publications

(19 citation statements)

References 14 publications

(11 reference statements)

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“…In Yen et al . 's study (), the parents ‘searched for meaning of caregiving to persuade themselves to accept the caregiver role’. In this study, they also expressed a need to rationalize and explain what underpinned their decisions and actions.…”

Section: Discussionmentioning

confidence: 99%

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Parents' experience of living with and caring for an adult son or daughter with schizophrenia at home in Ireland: a qualitative study

McAuliffe

O’Connor

Meagher

2013

Psychiatric Ment Health Nurs

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Accessible summary• This paper reports a study that explored the experience of now older parents living with and caring for, an adult child with schizophrenia in Ireland.• Parents reported mixed emotions that gave insight into the severe psychological distress they experienced when their son or daughter was diagnosed with schizophrenia. The period immediately after diagnosis can be particularly stressful. On the contrary; parents also experienced acceptance of their new caring role underpinned by their sense of love and responsibility for their son or daughter with schizophrenia.• There is a lack of studies on the experience and needs of parents of a son or daughter with schizophrenia in Ireland. This study offers insights from legitimate experts in illuminating what the experience is really like.• A family-centred approach is required to deal with the uniqueness of individual parents' circumstances. Assessment and care planning should take into account the family as a unit. AbstractThis study explored the experience of parents living with, and caring for, an adult son or daughter with schizophrenia. There is increasing emphasis on the involvement of carers and users in the care for people with schizophrenia. 'A Vision for Change' highlights the need for a partnership approach and emphasizes that carers are an integral part in the planning and delivery of mental health services. In order to meet such requests, it was necessary to explore the meaning of caregiving for Irish families. A descriptive qualitative design was used to enable parents to describe their experiences. Semi-structured, in-depth interviews with a convenience sample of six parents in Ireland were carried out in 2007. The study encompassed four major themes: psychological tsunami, caring activities, coping with enduring illness and an uncertain pathway. Parents reported severe psychological distress when their son or daughter was diagnosed with schizophrenia. Their deep sense of loss was followed by acceptance of the situation. Feelings of love and a sense of responsibility helped to give meaning to their caring role. This study gave a voice to some parents of a son or daughter with schizophrenia. A family-centred approach should be at the core of care planning for this vulnerable population.

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Section: Discussionmentioning

confidence: 99%

“…In another Taiwanese study, Yen et al . () used a grounded theory approach to explore the meaning of caregiving for parents of mentally ill children. As with the previous study, the meaning of caring was heavily influenced by cultural and spiritual beliefs.…”

Section: Introductionmentioning

confidence: 99%

Parents' experience of living with and caring for an adult son or daughter with schizophrenia at home in Ireland: a qualitative study

McAuliffe

O’Connor

Meagher

2013

Psychiatric Ment Health Nurs

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“…Specifically, the value of familial interdependence in Chinese traditional Confucian culture strongly affects illness adaptations and therapeutic strategies for relatives with mental illness [1].…”

Section: Introductionmentioning

confidence: 99%

Psychometric Evaluation of Family Illness Perceptions of Relatives with Schizophrenia

Lee¹,

Lin²,

Chang³

et al. 2018

Neuropsychiatry

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“…Assigning meaning to care‐giving is a process of evaluation of an event. The meaning that a person ascribes to an event results in both an emotional and a behavioural response (Yen et al. 2010).…”

Section: Introductionmentioning

confidence: 99%

“…Through cognitive appraisal, the person evaluates the significance of what is happening to his or her well‐being (Lazaurs 1999). The meaning of care‐giving, as described by caregivers, may influence their overall sense of well‐being (Yen et al. 2010).…”

Section: Introductionmentioning

confidence: 99%

The development and testing of a scale of Taiwanese caregiver meaning

Yen¹,

Ma²,

Lu³

et al. 2011

Journal of Clinical Nursing

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A theory of meaning of caregiving for parents of mentally ill children in Taiwan, a qualitative study

Abstract: The theory contributes knowledge about the meaning of care-giving for parents of mentally ill children in Taiwan. It should be useful reference for mental health professionals, who provide counselling services to ethnically Taiwanese care-givers.

Cited by 17 publications

References 14 publications

Parents' experience of living with and caring for an adult son or daughter with schizophrenia at home in Ireland: a qualitative study

Parents' experience of living with and caring for an adult son or daughter with schizophrenia at home in Ireland: a qualitative study

Psychometric Evaluation of Family Illness Perceptions of Relatives with Schizophrenia

The development and testing of a scale of Taiwanese caregiver meaning

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