A systematic review of factors influencing decision-making in adults living with chronic kidney disease

Murray, Mary; Brunier, Gillian; Chung, Jenny Oey; Craig, Lee Ann; Mills, Cynthia; Thomas, Alison; Stacey, Dawn

doi:10.1016/j.pec.2008.12.010

Cited by 107 publications

(140 citation statements)

References 43 publications

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“…A recent systematic review found that 14 studies used qualitative methods to understand dialysis modality preferences (19). Prior qualitative research examined reasons for not choosing any form of dialysis (20), perceived positives and negatives of dialysis modalities (21), patient involvement and dialysis decision-making interventions (22), and overall knowledge of dialysis options (23). A Dutch study found that the most commonly cited barriers to PD choice were social reasons and expected incapability of patients to perform PD independently (10).…”

Section: Discussionmentioning

confidence: 99%

Neighborhood Socioeconomic Status and Barriers to Peritoneal Dialysis

Prakash

Perzynski

Austin

et al. 2013

Clinical Journal of the American Society of Nephrology

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Section: Discussionmentioning

confidence: 99%

Neighborhood Socioeconomic Status and Barriers to Peritoneal Dialysis

Prakash

Perzynski

Austin

et al. 2013

Clinical Journal of the American Society of Nephrology

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“…But they also evaluate their own priorities and capacity in terms of acquiring skills and undertaking the crucial responsibility of care at home (20,21,24,27,36,37,42). Financial costs are also considered, but are secondary to personal convenience or preference and lifestyle considerations.…”

Section: Discussionmentioning

confidence: 99%

“…Earlier research concluded that lifestyle and psychosocial considerations are pivotal in guiding decision-making about a dialysis modality and that those factors may rank higher than medical considerations (20)(21)(22). Identified factors that may act as either facilitators or barriers for the various dialysis modalities include availability of social support or concerns about social isolation, 281 PDI may 2013 -Vol.…”

mentioning

confidence: 99%

Perspectives of Patients, Families, and Health Care Professionals on Decision-Making about Dialysis Modality—the Good, the Bad, and the Misunderstandings!

Griva

Lai

et al. 2012

Perit Dial Int

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♦ Objectives: This study explored the factors influencing decision-making about dialysis modality, integrating the perspectives of patients, their families, and health care professionals within an Asian population. The study further sought to understand the low penetration rate of peritoneal dialysis (PD) in Singapore. ♦ Methods: A sample of 59 participants comprising pre-dialysis patients, dialysis patients, caregivers, and health care professionals (HCPs) participated in semistructured interviews to explore the decision-making process and their views about various dialysis modalities. Data were thematically analyzed using NVivo9 (QSR International, Doncaster, Australia) to explore barriers to and facilitators of various dialysis modalities and decisional support needs. ♦ Results: Fear of infection, daily commitment to PD, and misperceptions of PD emerged as barriers to PD. Side effects, distance to dialysis centers, and fear of needling and pain were barriers to hemodialysis (HD). The experiences of other patients, communicated informally or opportunistically, influenced the preferences and choices of patients and family members for a dialysis modality. Patients and families value input from HCPs and yet express strong needs to discuss subjective experiences of life on dialysis (PD or HD) with other patients before making a decision about dialysis modality. ♦ Conclusions: Pre-dialysis education should expand its focus on the family as the unit of care and should provide opportunities for interaction with dialysis patients and for peer-led learning. Barriers to PD, especially misperceptions and misunderstandings, can be targeted to improve PD uptake.

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“…This process did not specifically seek input from patients (only 7% of responses were received from individuals identifying themselves as lay-people), and no patients were involved in the second phase of work, during which the top priorities were selected. Indeed, few studies have elicited the research priorities of patients receiving dialysis (6), and none have done so systematically or have attempted to yield questions that relate to all facets of the disease (7,8).…”

Section: Introductionmentioning

confidence: 99%

Setting Research Priorities for Patients on or Nearing Dialysis

Manns

Hemmelgarn

Lillie

et al. 2014

Clinical Journal of the American Society of Nephrology

266

262

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With increasing emphasis among health care providers and funders on patient-centered care, it follows that patients and their caregivers should be included when priorities for research are being established. This study sought to identify the most important unanswered questions about the management of kidney failure from the perspective of adult patients on or nearing dialysis, their caregivers, and the health care professionals who care for these patients. Research uncertainties were identified through a national Canadian survey of adult patients on or nearing dialysis, their caregivers, and health care professionals. Uncertainties were refined by a steering committee that included patients, caregivers, researchers, and clinicians to assemble a short-list of the top 30 uncertainties. Thirty-four people (11 patients; five caregivers; eight physicians; six nurses; and one social worker, pharmacist, physiotherapist, and dietitian each) from across Canada subsequently participated in a workshop to determine the top 10 research questions. In total, 1570 usable research uncertainties were received from 317 respondents to the survey. Among these, 259 unique uncertainties were identified; after ranking, these were reduced to a short-list of 30 uncertainties. During the in-person workshop, the top 10 research uncertainties were identified, which included questions about enhanced communication among patients and providers, dialysis modality options, itching, access to kidney transplantation, heart health, dietary restrictions, depression, and vascular access. These can be used alongside the results of other research priority-setting exercises to guide researchers in designing future studies and inform health care funders.

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A systematic review of factors influencing decision-making in adults living with chronic kidney disease

Cited by 107 publications

References 43 publications

Neighborhood Socioeconomic Status and Barriers to Peritoneal Dialysis

Neighborhood Socioeconomic Status and Barriers to Peritoneal Dialysis

Perspectives of Patients, Families, and Health Care Professionals on Decision-Making about Dialysis Modality—the Good, the Bad, and the Misunderstandings!

Setting Research Priorities for Patients on or Nearing Dialysis

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