A Qualitative Analysis of Best Self-management Practices: Sickle Cell Disease

Tanabe, Paula; Porter, Jerlym S.; Creary, Melissa S.; Kirkwood, Eric; Miller, S. J. H.; Ahmed-Williams, Efa; Hassell, Kathryn L.

doi:10.1016/s0027-9684(15)30730-6

Cited by 41 publications

(66 citation statements)

References 17 publications

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“…Provided training was the same for all patients in that study, however; unlike the present study, it did not provide needs assessment and goal-setting based on patients' needs, a significant number of individual and group sessions on pain management, or group discussions for experience sharing. Previous studies have found that patient-centered care, participatory decision-making (36), and group discussions for experience sharing (37) are associated with better self-management in sickle cell patients.…”

Section: Discussionmentioning

confidence: 98%

The Effectiveness of Self Management Program on Pain, Fatigue, Depression, Anxiety, and Stress in Sickle Cell Patients: A Quasi-Experimental Study

Ahmadi

Shariati

Poormansouri

et al. 2015

Jundishapur J Chronic Dis Care

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Background:Patients with sickle cell disease, who must manage serious and unpredictable complications related to their disease, particularly chronic pain, suffer from numerous psychosocial problems such as depression, anxiety, stress, and disruption of interpersonal relationships; these problems often lead to fatigue and poor quality of life. Objectives: This study aimed to determine the effectiveness of self-management programs targeting pain, fatigue, depression, anxiety, and stress in sickle cell patients. Patients and Methods:This was a quasi-experimental study; participants were 53 patients with sickle cell disease who were referred to the Thalassemia Clinic of Ahvaz Shafa Hospital. Participants were recruited by census in 2013. Participants received a self-management program that was implemented in five sessions over 12 weeks. Levels of fatigue, depression, anxiety, and stress were assessed before and 24 weeks after the intervention; pain was assessed during the intervention and at a 24 week post-intervention follow-up using the fatigue severity scale (FSS), DASS21, and a pain record. Descriptive statistics, Fisher's exact test, Chi-square, independent t-tests, paired t-tests, repeated measures tests and correlations were used to analyze the data. Results: Scores for fatigue, anxiety, depression, and stress after the intervention were significantly decreased compared to before the intervention (P < 0.001). Repeated measures testing showed that mean scores for frequency and duration of pain decreased significantly during the 12 weeks of intervention, as well as during the 24 weeks of follow-up (P < 0.001). Conclusions:The results suggest the effectiveness of self-management programs on the reduction of pain, fatigue, anxiety, depression, and stress in sickle cell patients. Therefore, self-management programs are advisable in order to empower patients and assist their management of health-related problems.

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Section: Discussionmentioning

confidence: 98%

The Effectiveness of Self Management Program on Pain, Fatigue, Depression, Anxiety, and Stress in Sickle Cell Patients: A Quasi-Experimental Study

Ahmadi

Shariati

Poormansouri

et al. 2015

Jundishapur J Chronic Dis Care

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“…Rather, the different coping strategies and interpersonal relationships fostered by EHHU and LHU patients contribute to problematic and effective engagement with health care services, respectively. LHU patients presented themselves as selfaware, 31 rational actors in control of their disease, working with medical providers instead of against them. Their activities included researching the disease, cultivating a relationship with one provider who would become their advocate, monitoring providers' work schedules to be assured that they would encounter someone familiar, maintaining a single prescriber of opioids, and obtaining evidence of phenomena such as swelling.…”

Section: Discussionmentioning

confidence: 99%

Sickle Cell Disease Patients With and Without Extremely High Hospital Use: Pain, Opioids, and Coping

Brown

Weisberg

Balf-Soran

et al. 2015

Journal of Pain and Symptom Management

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“…General SCD self-care strategies have been identified. In a study assessing strategies used by adults with SCD to manage their disease, themes included self-awareness, emotional support, career selection and success factors, nutrition, advocacy, knowledge, physical activity, and complementary and alternative medicine (Tanabe et al, 2010). In middle-aged and older adults, identified self-care recommendations were physiologic (warmth, hydration, rest, good food, and avoiding drinking, smoking, and using drugs), psychological (knowledge and understanding of the disease, listening to and learning about the body, prayer, and social support), and provider-related (knowledgeable health care providers and following providers’ orders) (Jenerette, Brewer & Leak, 2011).…”

Section: Literature Reviewmentioning

confidence: 99%

Role of Self-Care in Sickle Cell Disease

Matthie

Jenerette

McMillan

2015

Pain Management Nursing

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Background Self-care is an important aspect of managing a chronic disease. In sickle cell disease (SCD), home self-care contributes to individual pain management and thus pain crisis prevention. A better understanding of self-care can help health care providers equip patients with the resources and skills necessary to participate in their disease management. Aims To examine factors which influence self-care among young adults with SCD. Design A descriptive, cross-sectional study was conducted using secondary data analysis. Settings Participants were recruited from two SCD clinics in the southeastern United States. Participants The sample consisted of 103 young adults, ages 18–30 years, with SCD. Methods Bivariate correlations and regression analyses were used to evaluate the relationships among SCD self-efficacy, social support, socio-demographics, self-care, and hospital visits for pain crises. Results Study participants were primarily female (61.2%), unemployed or disabled (68%), lived with family (73.8%), and had an average of three hospital visits for pain crises annually. Participants, on average, had 12 years of education, an annual household income of $35,724, and were 24 years old. Social support (p=.001), SCD self-efficacy (p=.002), and years of education (p=.043) were significantly related to self-care. Of the hypothesized variables, only income was significantly associated with hospital visits for pain crises (r=−.219, p=.05). Conclusions Individuals with SCD may benefit from self-care interventions that enhance social support, SCD self-efficacy, and access to education. To inform intervention development, further investigation is needed regarding daily self-care behaviors used by young adults with SCD.

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A Qualitative Analysis of Best Self-management Practices: Sickle Cell Disease

Cited by 41 publications

References 17 publications

The Effectiveness of Self Management Program on Pain, Fatigue, Depression, Anxiety, and Stress in Sickle Cell Patients: A Quasi-Experimental Study

The Effectiveness of Self Management Program on Pain, Fatigue, Depression, Anxiety, and Stress in Sickle Cell Patients: A Quasi-Experimental Study

Sickle Cell Disease Patients With and Without Extremely High Hospital Use: Pain, Opioids, and Coping

Role of Self-Care in Sickle Cell Disease

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