“…3 A policy call to address the challenges hindering the provision of targeted care for rare kidney diseases has been recently published. 4 The European Renal Association-European Dialysis and Transplantation Association registry reveals that every three out of five children undergoing KRT suffer from kidney failure due to a rare kidney disease. 5 The burden of rare kidney diseases in low middle-income countries (LMICs), consisting of about 132 countries, is not well reported.…”