A multinational investigation of healthcare needs, preferences, and expectations in supportive cancer care: co-creating the LifeChamps digital platform

Abstract

Purpose This study is to evaluate healthcare needs, preferences, and expectations in supportive cancer care as perceived by cancer survivors, family caregivers, and healthcare professionals. Methods Key stakeholders consisted of cancer survivors diagnosed with breast cancer, prostate cancer, or melanoma; adult family caregivers; and healthcare professionals involved in oncology. Recruitment was via several routes, and data were collected via either online surveys or telephone interviews in Greece, Spain, Sweden, and the UK. Framework analysis was applied to the dataset. Results One hundred and fifty-five stakeholders participated: 70 cancer survivors, 23 family caregivers, and 62 healthcare professionals (13 clinical roles). Cancer survivors and family caregivers’ needs included information and support on practical/daily living, as frustration was apparent with the lack of follow-up services. Healthcare professionals agreed on a multidisciplinary health service with a “focus on the patient” and availability closer to home. Most healthcare professionals acknowledged that patient-reported outcomes may provide “better individualised care”. Cancer survivors and family caregivers generally felt that the digital platform would be useful for timely personalised support and aided communication. Healthcare professionals were supportive of the “proactive” functionality of the platform and the expected advantages. Anticipated challenges were integration obstacles such as workload/infrastructure and training/support in using the new technology. Conclusions Obtaining key stakeholders’ insights provided a foundation for action to further co-create the LifeChamps digital platform to meet needs and priorities and deliver enhanced supportive care to “older” cancer survivors. Implications for cancer survivors Co-creation provided insight into gaps where digital support may enhance health and well-being.

Involving Patients into the LifeChamps Project: Preliminary Findings

“…Within LifeChamps we have actively engaged patients and the public as partners on an organizational level mainly through European Cancer Patient Coalition (ECPC) who has been an active consortium partner of the project participating in the design and dissemination of our work as wells as by getting in contact with national patient organizations who helped us with small focus groups in Sweden, Greece, Spain and UK for the co creation of the consortium's AI solution. Patients as data providers have been involved in LifeChamps within our qualitative study of 70 cancer survivors and 23 family caregivers for exploration of care needs [10].…”

Analytical exploratory tool for healthcare professionals to monitor cancer patients’ progress

“…The (32). During these interactions, the project scope was explained, and their needs for monitoring cancer patients' progress were collected.…”

“…During the preparation phase, 57 HCPs participated via an online survey or telephone/online interviews, part of the complete multinational study to evaluate healthcare needs, preferences, and expectations in supportive cancer care perceived by cancer survivors, family caregivers, and HCPs carried out in the context of LifeChamps project and presented in Marshall-McKenna et al. ( 32 ). During these interactions, the project scope was explained, and their needs for monitoring cancer patients’ progress were collected.…”