Enhancing the care navigation model: potential roles for health sciences librarians

Huber, Jeffrey T.; Shapiro, Robert M.; Burke, Heather; Palmer, Aaron Zeff

doi:10.3163/1536-5050.102.1.011

Cited by 8 publications

(5 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Additionally, the qualitative content analysis employed in this paper comes to many of the same conclusions as those methods reviewed earlier in chapter two: medical health and information specialists have the ability to rise to the demands placed on medical libraries, medical facilities, and libraries in general, armed with an array of informative resources. The data certainly highlight what Huber et al (2014) point out, which is that both the library science and medical fields clearly overlap. The collaboration is evident by the very fact that the MLA, an organization for medical librarians, included such a thorough COVID-19 resource guide for medical workers and librarians alike.…”

Section: Discussionsupporting

confidence: 61%

The Medical Library Association’s Role in Disseminating Information Related to the COVID-19 Pandemic

Buscher¹

2020

SLIS

View full text Add to dashboard Cite

The Medical Library Association (MLA) has been part of the library and information science field since 1898 (The Medical Library Association, 2020). According to the website, the mission of the organization is to promote library and information science knowledge and make it available and accessible to medical information specialists and the general public. This content analysis examines the Medical Library Association’s (MLA) role in the 2019/2020 COVID-19 public health crisis, specifically the ways in which the MLA has provided resources about the pandemic to libraries and librarians as well as the public.

show abstract

Section: Discussionsupporting

confidence: 61%

The Medical Library Association’s Role in Disseminating Information Related to the COVID-19 Pandemic

Buscher¹

2020

SLIS

View full text Add to dashboard Cite

show abstract

“…Therefore, a new approach to expanding medical libraries or patient education centers is needed. For example, Huber and colleagues proposed expanding a patient navigator program by including library and information science professionals who are “tasked with the selection and dissemination of understandable, relevant, culturally appropriate information.” Likewise, medical librarians could work with PHR teams or patient navigator teams to help solicit relevant personal health documents from patients, perform as mediated searchers, and train users of PHR systems [ 32 , 33 ].…”

Section: Discussionmentioning

confidence: 99%

Characteristics of personal health information management groups: findings from an online survey using Amazon’s mTurk

Kim

Huber

2017

jmla

Self Cite

View full text Add to dashboard Cite

Objective:The study characterized three groups with different levels of familiarity with personal health information management (PHIM) in terms of their demographics, health knowledge, technological competency, and information sources and barriers. In addition, the authors examined differences among PHIM groups in subjective self-ratings and objective test scores for health literacy.Methods:A total of 202 survey participants were recruited using Amazon’s Mechanical Turk (mTurk) service, a crowdsourcing Internet service. Using K-means clustering, three groups with differing levels of familiarity with PHIM were formed: Advanced, Intermediate, and Basic.Results:The Advanced group was the youngest, and the Basic group contained the highest proportion of males, whereas the Intermediate group was the oldest and contained the fewest males. The Advanced group was significantly more likely to engage in provider- or hospital-initiated PHIM activities such as emailing with providers, viewing test results online, and receiving summaries of hospital visits via email or websites than the other groups. The Basic group had significantly lower information management skills and Internet use than the other groups. Advanced and Basic groups reported significant differences in several information barriers. While the Advanced group self-reported the highest general literacy, they scored lowest on an objective health literacy test.Conclusions:For effective personal health records management, it is critical to understand individual differences in PHIM using a comprehensive measure designed to assess personal health records–specific activities. Because they are trained to perform an array of information management activities, medical librarians or patient educators are well positioned to promote the effective use of personal health records by health consumers.

show abstract

“…In their task of guiding patients through the system, care navigators focus on the needs of individuals. Studies in the cancer care setting have shown the benefits of care navigators [9-11]. However, despite having a positive effect on patients’ satisfaction, quality of life, and functionality [7,12], the high cost of care navigators remains a barrier to their wider employment [13].…”

Section: Introductionmentioning

confidence: 99%

Understanding Care Navigation by Older Adults With Multimorbidity: Mixed-Methods Study Using Social Network and Framework Analyses

et al. 2018

View full text Add to dashboard Cite

Background Health and social care systems were designed to be used primarily by people with single and acute diseases. However, a growing number of older adults are diagnosed with multiple long-term conditions (LTCs). The process of navigating the intricacies of health and social care systems to receive appropriate care presents significant challenges for older people living with multiple LTCs, which in turn can negatively influence their well-being and quality of life. Objective The long-term goal of this work is to design technology to assist people with LTCs in navigating health and social care systems. To do so, we must first understand how older people living with LTCs currently engage with and navigate their care networks. No published research describes and analyses the structure of formal and informal care networks of older adults with multiple LTCs, the frequency of interactions with each type of care service, and the problems that typically arise in these interactions. Methods We conducted a mixed-methods study and recruited 62 participants aged ≥55 years who were living in England, had ≥2 LTCs, and had completed a social network analysis questionnaire. Semistructured interviews were conducted with roughly a 10% subsample of the questionnaire sample: 4 women and 3 men. On average, interviewees aged 70 years and had 4 LTCs. Results Personal care networks were complex and adapted to each individual. The task of building and subsequently navigating one’s personal care network rested mainly on patients’ shoulders. It was frequently the patients’ task to bridge and connect the different parts of the system. The major factor leading to a satisfying navigation experience was found to be patients’ assertive, determined, and proactive approaches. Furthermore, smooth communication and interaction between different parts of the care system led to more satisfying navigation experiences. Conclusions Technology to support care navigation for older adults with multiple LTCs needs to support patients in managing complex health and social care systems by effectively integrating the management of multiple conditions and facilitating communication among multiple stakeholders, while also offering flexibility to adapt to individual situations. Quality of care seems to be dependent on the determination and ability of patients. Those with less determination and fewer organization skills experience worse care. Thus, technology must aim to fulfill these coordination functions to ensure care is equitable across those who need it.

show abstract

Enhancing the care navigation model: potential roles for health sciences librarians

Cited by 8 publications

References 20 publications

The Medical Library Association’s Role in Disseminating Information Related to the COVID-19 Pandemic

The Medical Library Association’s Role in Disseminating Information Related to the COVID-19 Pandemic

Characteristics of personal health information management groups: findings from an online survey using Amazon’s mTurk

Understanding Care Navigation by Older Adults With Multimorbidity: Mixed-Methods Study Using Social Network and Framework Analyses

Contact Info

Product

Resources

About