Behavioral changes of elderly with Alzheimer's Disease and the burden of care for the caregiver

Marins, Aline Miranda da Fonseca; Hansel, Cristina Gonçalves; Silva, Jaqueline da

doi:10.5935/1414-8145.20160048

Cited by 15 publications

(20 citation statements)

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“…3,6 Studies have shown that over time, the functional capacity of older people tends to become more compromised, bringing progressively higher and more complex demands. 3,[28][29] Especially in the case of degenerative diseases, care may lead to distress due to increasingly distressing situations. 3 Similarly, a number of researches indicate that taking care of the elderly 24 hours a day also causes physical and mental fatigue due to continued exposure to stressors.…”

Section: Discussionmentioning

confidence: 99%

Caregiver Role Strain in Informal Caregivers for the Elderly

Vechia

Mamani

Azevedo

et al. 2019

Texto contexto - enferm.

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Objective: to analyze the frequency of the “caregiver role strain” nursing diagnosis in informal caregivers for the elderly, the defining characteristics and the related factors. Method: a cross-sectional, descriptive study carried out with 99 informal caregivers for elderly residents living in the areas covered by five units of the Family Health Strategy of Cuiabá, Mato Grasso, Brazil. Data collect took place between July and September 2017, through home interviews. A questionnaire elaborated from the literature on the diagnosis A questionnaire elaborated from the literature on the diagnosis caregiver role strain established by NANDA-International taxonomy II was used. A descriptive analysis with relative and absolute frequency was accomplished. Results: the frequency of the “caregiver role stress” nursing diagnosis found in caregivers was 98.0%. The most common defining characteristics were: difficulty in seeing the care receiver with the disease (69.1%); apprehension about the future health of the care recipient (66.0%); apprehension about the welfare of the care recipient, if the caregiver is unable to offer it (61.9%); apprehension about the future ability to provide care (60.8%); apprehension about the possible institutionalization of the care recipient (55.7%); concern with the routine care (55.7%) and social isolation (51.5%). The related factors most frequently found were: duration of care (92.8%); 24-hour a day care responsibilities (75.3%); dependence (77.3%) and alteration in the cognitive function was (73.2%) in the elderly; physical conditions (73.2%) and codependency of the caregiver (61.9%). Conclusion: the frequency of the “caregiver role strain” nursing diagnosis found in this study is high, its defining characteristics concerning mainly the caregiver's apprehension with the elderly and the related factors refer to the demands of the care provided. The nurse and other team’s professionals must pay attention to the caregivers as well as to the elderly being cared of in the health units, helping them to overcome the difficulties involved in performing their role.

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Section: Discussionmentioning

confidence: 99%

Caregiver Role Strain in Informal Caregivers for the Elderly

Vechia

Mamani

Azevedo

et al. 2019

Texto contexto - enferm.

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“…As proposed in the literature, it was verified in the present study that women assume the primary role in caring, since, in the total of the study sample, there are only 17 male caregivers, compared to 133 female caregivers. This can be explained in terms of socially established roles concerning men and women (Marins et al, 2016). Lemos et al (2006), mentioned that the family represents 90% of the caregivers, that is, informal caregivers.…”

Section: Discussionmentioning

confidence: 99%

“…The majority of caregivers are women (Garrido & Menezes, 2004). In fact, there is a direct relationship between caregiver overload and being a female, given the variety of social roles a woman has, such as that of a mother, wife, and housewife, as well as professional work (Marins, Hansel, & Silva, 2016).…”

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confidence: 99%

Caregrief scale confirmatory factor analysis in a sample of portuguese caregivers

Vasconcelos-Raposo

Ribeiro²,

Silva³

et al. 2019

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There is a great deal of information about caregivers' suffering, however, there is a lack of scales in Portugal that evaluate this dimension of human behavior. The purpose of this study was to validate and adapt the Caregiver Grief Scale (CGS), developed by Franziska Meichsner, Denise Schinköthe and Gabriele Wilz (2016) for the German population, in order to assess the degree of suffering of caregivers. In order to analyze the psychometric properties of the instrument, we used confirmatory factorial analysis with a sample of 150 caregivers (formal and informal). The results did not confirm the proposal of a 4-factor model (emotional pain, relational loss, absolute loss, and loss acceptance), as proposed by the German study. Subsequently, we used the exploratory factorial analysis that suggested a unifactorial model, which confirmatory factorial analysis showed was more adequate for the study sample, with values of: χ² / df = 2.023; CFI = .970; GIF = .923; RMSEA = .083; AIC = 110,724. In addition, the internal consistency analysis indicated a Cronbach alpha of .936 and the Composite Reliability was .934. It was concluded that the multifactorial structure suggested for German caregivers was not replicated and that for the Portuguese population suffering is a unifactorial construct. It is recommended that future studies, in Portugal, be carried out with a differentiated sample of caregivers. RESUMOHá muita informação sobre o sofrimento dos cuidadores informais e formais. No entanto, em Portugal faltam escalas que avaliem esta dimensão do comportamento humano. O objectivo deste estudo foi validar e adaptar a Caregiver Grief Scale (CGS), desenvolvida por Franziska Meichsner, Denise Schinköthe e Gabriele Wilz (2016) para a população alemã, a fim de avaliar o grau de sofrimento dos cuidadores. Para analisar as propriedades psicométricas do instrumento, recorremos à análise factorial confirmatória com uma amostra de 150 cuidadores (formais e informais). Os resultados não confirmaram a proposta de um modelo de quatro factores (dor emocional, perda relacional, perda absoluta e aceitação de perda), tal como proposto na amostra alemã. Posteriormente, utilizou-se a análise factorial exploratória que sugeriu um modelo unifactorial, cuja análise factorial confirmatória mostrou-se mais adequada para a amostra do estudo, com valores de: χ² / df = 2.023; CFI = .970; GIF = .923; RMSEA = .083; AIC = 110.724. Além disso, a análise de consistência interna indicou um alfa de Cronbach de .936 e a Fiabilidade Compósita foi .934. Concluiu-se que a estrutura multifactorial sugerida para cuidadores alemães não foi replicada e que para a população portuguesa o sofrimento se apresenta como um constructo unifactorial. Recomenda-se que futuros estudos, em Portugal, sejam realizados com amostra diferenciadas de cuidadores

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“…Most researchers have highlighted issues of family functioning (Santos & Pavarini, 2012;Santos, Pavarini, & Barham, 2011), including care-giver overload, care-giver sickness, and the impacts of care on the care-giver's life (Caldas, 2002;Dias, Castiglioni, Tognola, & Bianchin, 2018;Leite et al, 2017;Lopes & Cachioni, 2013;Marins, Hansel, & Silva, 2016;Oliveira & Caldana, 2012;Oliveira, Ferreira, Fonseca, & Paes, 2016;Seima & Lenardt, 2011). Most researchers have highlighted issues of family functioning (Santos & Pavarini, 2012;Santos, Pavarini, & Barham, 2011), including care-giver overload, care-giver sickness, and the impacts of care on the care-giver's life (Caldas, 2002;Dias, Castiglioni, Tognola, & Bianchin, 2018;Leite et al, 2017;Lopes & Cachioni, 2013;Marins, Hansel, & Silva, 2016;Oliveira & Caldana, 2012;Oliveira, Ferreira, Fonseca, & Paes, 2016;Seima & Lenardt, 2011).…”

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confidence: 99%

“…An analysis of research concerned with family care-giving in a Brazilian context shows wide discussion around the social and family impacts related to dementia. Most researchers have highlighted issues of family functioning (Santos & Pavarini, 2012;Santos, Pavarini, & Barham, 2011), including care-giver overload, care-giver sickness, and the impacts of care on the care-giver's life (Caldas, 2002;Dias, Castiglioni, Tognola, & Bianchin, 2018;Leite et al, 2017;Lopes & Cachioni, 2013;Marins, Hansel, & Silva, 2016;Oliveira & Caldana, 2012;Oliveira, Ferreira, Fonseca, & Paes, 2016;Seima & Lenardt, 2011). Notably in these studies, changes in family care-givers' everyday life are taken for granted as imposed by the demands of care for a relative with dementia.…”

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confidence: 99%

The significance of overlooked objects: Materiality and care at home for people with dementia

et al. 2019

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An increase in the number of older people with dementia is currently a trend around the world. In low and middle countries, effective public health services are not yet well‐developed, and family care‐givers may be overwhelmed by the requirements of care. This paper has two purposes: to share findings from an ethnographic study about family dementia care practices in Brazil and to draw attention to the significance of the materiality of care practices in the family context. The study was conducted in Belo Horizonte, Brazil. We describe the care trajectory of one family and, analysing data using the insights of Actor Network Theory, show the significance of objects in a networked relation of care. In particular, we show how incontinence products such as adult diapers assume different positions in the network, acting as either mediator or intermediary of care in relation to other elements of the network composed of family members and their living situation, the person with dementia herself, the doctor, and Brazilian health policies. Although the diaper is often seen as an ordinary object for care providers, its participation in a care network shapes relations, activating conflict, financial constraint, and disciplining the body of the person with dementia.

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Behavioral changes of elderly with Alzheimer's Disease and the burden of care for the caregiver

Cited by 15 publications

References 5 publications

Caregiver Role Strain in Informal Caregivers for the Elderly

Caregiver Role Strain in Informal Caregivers for the Elderly

Caregrief scale confirmatory factor analysis in a sample of portuguese caregivers

The significance of overlooked objects: Materiality and care at home for people with dementia

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