Experiencing Chronic Illness

Charmaz, Kathy

doi:10.4135/9781848608412.n18

Cited by 232 publications

(115 citation statements)

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“…The impact of felt (perceived) or enacted (experienced) stigma in chronic illness has also received much attention (see for example Charmaz, 2000;Jacoby, 1994;Scambler & Hopkins, 1986, 1988.…”

Section: Introductionmentioning

confidence: 99%

Only when I Cough? Adults’ Disclosure of Cystic Fibrosis

Lowton

2004

Qual Health Res

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Cystic fibrosis has traditionally been conceptualised as a fatal childhood disease. In contrast, survival age has been increasing steadily such that adults now routinely seek to gain employment and form close relationships, situations that may require telling others about the disease. Here three situations of disclosure are examined, based on interviews with 31 adults with the disease. Firstly, in a low risk situation, for example a short period of social contact, a low level of intimacy exists between the adult with cystic fibrosis and another. Here the disease may be concealed easily with little risk of discovery. Secondly, in a medium risk situation the perceived reaction of the other begins to influence the decision to disclose, as the level of intimacy becomes higher. Lastly, in high-risk situations such as employment, the consequences of disclosing or concealing CF are most severe. However, a multiplicity of factors, including perceived social support and disease progression, are seen to influence adults' decisions to disclose their disease.

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Section: Introductionmentioning

confidence: 99%

Only when I Cough? Adults’ Disclosure of Cystic Fibrosis

Lowton

2004

Qual Health Res

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“…There is, however, a need to go "further outward into the social" when considering illness experiences [6]. Family and friends have been found to play a significant role in diabetes self-management [24].…”

Section: Articulating Social Contexts Of Diabetesmentioning

confidence: 99%

“…People with diabetes may lack the information, education, or problem-solving skills necessary to balance these self-care behaviors and integrate them with daily life [3,4]. The daily struggles and unpredictable outcomes of self-care, moreover, may impact psychosocial adjustment in these individuals [5,6,7]. Understanding how people with diabetes comprehend and make sense of their experiences may inform interventions and suggest changes in the types and nature of psychological, social, and self-management support provided to them.…”

Section: Introductionmentioning

confidence: 99%

Narrative inquiry in diabetes research: Illuminating the psychosocial aspects of diabetes

Acuff

Paulus²

2016

PLAID

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“…Research on the biographical and temporal experiences of spousal caregivers is important given the widespread recognition that an individual's chronic illness significantly impacts family members (Bury 1982;Charmaz 2000;Corbin and Strauss 1987;Rajaram 1997;Radley 1989;Riemann and Schütze 1991). That said, few studies explore the biographical trajectories of spouses who are caregivers (Lawton 2003).…”

Section: Introductionmentioning

confidence: 99%

Caregivers’ Interpretations of Time and Biography

Barken

2014

Journal of Contemporary Ethnography

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Parkinson's disease is a disabling, chronic condition with an uncertain trajectory. It disrupts taken-for-granted routines and biographical expectations among sufferers and spousal caregivers alike. Biographical disruption and biographical work are guiding frameworks among researchers studying the experiences of people with chronic illness. Time is a fundamental component of biographical trajectories, but little research explicitly engages George Herbert Mead's nonlinear theory of time to make sense of biographies. Using qualitative interviews with eight caregivers and participant observation with a Parkinson's support group, this paper shows how Mead's conception of time allows for a fluid, processual understanding of biography. My research suggests that caregivers do biographical and time work when a spouse is ill. They reinterpret the past, present, and future to sustain biographical continuity and a meaningful sense of self and other.

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Experiencing Chronic Illness

Cited by 232 publications

References 0 publications

Only when I Cough? Adults’ Disclosure of Cystic Fibrosis

Only when I Cough? Adults’ Disclosure of Cystic Fibrosis

Narrative inquiry in diabetes research: Illuminating the psychosocial aspects of diabetes

Caregivers’ Interpretations of Time and Biography

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