Reorganizações familiares no contexto do cuidado ao bebê com Síndrome Congênita do Zika Vírus

Azevedo, Creuza da Silva; Freire, Imara Moreira; Moura, Luana Nogueira de Farias

doi:10.1590/interface.190888

Cited by 3 publications

(1 citation statement)

References 11 publications

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“…Estudo indica que entre os desejos das mães está o de prover a independência da criança, ainda que não seja integralmente. 21 As decisões judiciais beneficiaram as crianças com SCZ e suas famílias, fundamentadas no direito à saúde, direito à vida e proteção, e o direito de ir e vir.…”

Section: Discussionunclassified

Impetrações judiciais de mães de crianças com síndrome congênita do vírus zika: Das motivações aos desfechos

Santana

Vale²,

Lisboa³

et al. 2023

Enferm. Actual Costa Rica (en línea)

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Introdução: as famílias de crianças com Síndrome Congênita do Zika (SCZ) convivem com dificuldades para suprir suas necessidades de saúde, portanto acionam o poder judiciário para gozar do seu direito à saúde. Objetivo: apreender as principais motivações das impetrações judiciais requeridas por mães de crianças com SCZ e seus desfechos. Metodologia: Estudo exploratório documental com abordagem qualitativa, realizado no sítio eletrônico JusBrasil e coleta procedida em março de 2020. Foram incluídas 15 impetrações judiciais publicadas entre janeiro de 2016 e junho de 2019. A análise lexical através do software IRaMuTeQ e a análise de conteúdo temática foram realizadas. Resultados: O acesso às tecnologias assistivas é a principal motivação para impetrações judiciais, com vistas a assegurar melhora no desenvolvimento da criança e consequente independência da criança. As decisões judiciais beneficiaram as crianças com SCZ, fundamentadas no direito à saúde, direito à vida e proteção, e o direito de ir e vir. Conclusão: Para mitigar os impactos da judicialização da saúde as autoridades sanitárias e judiciárias podem investir em melhor vigilância e monitoramento dos fatores de risco e morbidades; rigor nos protocolos sanitários que envolvem migração de pessoas em zonas fronteiriças; ofertas de condições ambientais e de moradia dignas; realização de cuidados preventivos com destaque para a eficiência da imunização; além da organização e funcionamento de uma rede de atenção à saúde eficaz com abordagem interdisciplinar.

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Section: Discussionunclassified

Impetrações judiciais de mães de crianças com síndrome congênita do vírus zika: Das motivações aos desfechos

Santana

Vale²,

Lisboa³

et al. 2023

Enferm. Actual Costa Rica (en línea)

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Access to information on oral hygiene and mothers' practices of children with microcephaly caused by Zika virus

Vaz¹,

Sobrinho

Athayde

et al. 2022

Int J Dental Hygiene

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Objective: To verify whether access to information about oral hygiene influenced the practices of caregivers of children with microcephaly caused by Zika virus (ZIKV).Methods: A case series study was developed at the Mens Sana Rehabilitation Center, in the municipality of Arcoverde, Pernambuco, Brazil. The study universe included the mothers of 32 children with microcephaly caused by Zika virus. Data collection took place in June 2018 and was carried out through a structured questionnaire.The variables studied comprised socioeconomic issues, habits, diet, and knowledge about oral hygiene. Fisher's Exact and Pearson's Chi-square tests were used with a significance level of 5%.Results: Out of 32 individuals eligible to participate in the study, only 27 were selected.Most mothers reported receiving information about oral hygiene from their infants (63.0%). Fisher's Exact and Pearson's Chi-square tests showed that access to oral hygiene information was associated with mother's education, family income, regular visits to the dentist, frequency of tooth brushing, age at which the infant started brushing, and brushing time (p < 0.05). Conclusion:Access to information about oral hygiene positively influenced the oral health care of mothers with their children with microcephaly caused by ZIKV.

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Burden in caregivers of children with congenital Zika syndrome in Pernambuco, Brazil: analysis and application of the Zarit burden interview scale

Filho

Sena

Wajnsztejn

2023

PeerJ

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With the increase in cases of microcephaly caused by the Zika virus, the demand for special care and a better quality of life for the child and caregiver increased proportionally. Objective This study aimed to analyze the burden on caregivers of children with congenital Zika syndrome associated with viral infections in the state of Pernambuco, Brazil using the Zarit Burden interview scale. Method A quantitative study was conducted at the Oswaldo Cruz University Hospital, Recife City, State of Pernambuco, Brazil. By convenience sampling, 56 mothers, two grandmothers, and two caregivers were enrolled, all are female. Data were collected from July 2019 to January 2020. In the analysis, the percentage frequencies were calculated. The normality was identified using the Kolmogorov–Smirnov test, and participant profiles were compared using Student’s t-test and analysis of variance. In descriptive statistics, quantitative variables are described by the median and interquartile range and categorical variables by proportions using the Chi-square test. Results In the comparative analysis, all factors evaluated were significant, except for the “gestational period in which the disease occurred” (p < 0.111). The significance of differences in all activities was evaluated. In the mean comparison test, only the factor “has a job” was significant (p < 0.043). When comparing the average of caregivers’ responses to the categories of the Zarit burden interview scale, the highest level of burden was regarding the feeling that the child is dependent on the caregiver (3.62 points). Caregiver burden was classified as absence, light, moderate, and high. Conclusion The consequences of contracting the Zika virus in the first trimester of pregnancy, lack of paid work, financial scarcity, full-time dedication to the child, and lack of time for themselves increase the burden on caregivers. Thus, caregivers have mild burden.

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Reorganizações familiares no contexto do cuidado ao bebê com Síndrome Congênita do Zika Vírus

Cited by 3 publications

References 11 publications

Impetrações judiciais de mães de crianças com síndrome congênita do vírus zika: Das motivações aos desfechos

Impetrações judiciais de mães de crianças com síndrome congênita do vírus zika: Das motivações aos desfechos

Access to information on oral hygiene and mothers' practices of children with microcephaly caused by Zika virus

Burden in caregivers of children with congenital Zika syndrome in Pernambuco, Brazil: analysis and application of the Zarit burden interview scale

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