Validation of an exercise booklet for children with acute lymphoblastic leukemia

Abstract

Introduction: Leukemia is the most common childhood cancer, and acute lymphoblastic leukemia (ALL) accounts for 75 to 80% of all such cases in this population. Survival has increased among children and adolescents due to advances in diagnosis and treatment, with a growing emphasis on the need for rehabilitation to improve functionality and quality of life, mitigating the long-term effects of treatment. Objective: To describe the process of compiling and validating an exercise booklet for children and adolescents during and after treatment for acute lymphoblastic leukemia. Methods: Methodological study using the Delphi technique for validation. The panel of experts consisted of seven healthcare professionals and three mothers of children without ALL. The booklet was evaluated using a form containing 15 items scored on a 5-point Likert scale, and by qualitative assessment. The frequency of the expert ratings, percentage agreement and content validity index (CVI) were presented for each item and the instrument as a whole. Analyses were performed in R 3.5.1 software. Results: The booklet containing stretching, aerobics, strength and relaxation exercises was validated in the second round, reaching 100% consensus. When assessed only by the mothers, 93.33% consensus was achieved in a single round. Conclusion: The exercises booklet was validated for use in the population studied.

Effectiveness assessment of a home-based exercise intervention in mitigating HTLV-1 associated disabilities: A validation study

“…During the validation stage by judges, the CVI of the study technology ranged from 93.4 to 94.3%. This finding corroborates other methodological studies carried out in Brazil that obtained similar results, such as the validation of content with guidance on exercises for children with acute lymphocytic leukemia—with a CVI of 100% [ 29 ]—, the validation of a booklet to prevent metabolic syndrome in adolescents—with CVI of 100% in most analyzed items [ 30 ], the validation of an exercise program for women undergoing breast cancer surgery—with a CVI of 75% [ 31 ], the validation of an educational booklet on pelvic exercises for women with urinary incontinence—with CVI from 71 to 100% [ 32 ]—, and the validation of an educational booklet with physical exercises to prevent falls in older adults—with a CVI of 89% [ 24 ].…”

“…children with acute lymphocytic leukemia-with a CVI of 100% [29]-, the validation of a booklet to prevent metabolic syndrome in adolescents-with CVI of 100% in most analyzed items [30], the validation of an exercise program for women undergoing breast cancer surgery -with a CVI of 75% [31], the validation of an educational booklet on pelvic exercises for women with urinary incontinence-with CVI from 71 to 100% [32]-, and the validation of an educational booklet with physical exercises to prevent falls in older adults-with a CVI of 89% [24]. The groups of judges in this research consisted of multidisciplinary professionals, which, according to Alves [33] and Lima [24], is an advantage since practice faces great difficulty maintaining a single language regarding interdisciplinary guidance in health.…”

“…Studies have used the home approach toward physical exercise due to its feasibility, longterm maintenance [28][29][30][31], and more accessible approach to exercise plans that can be performed at home and without special equipment. Home exercise allows removing the accessibility of training facilities [38], is economical [39][40][41] and reduces barriers to expenditure of locomotion time [39].…”

Validação de conteúdo e análise da adesão ao uso da cartilha “Orientações para a Manutenção da Qualidade de Vida – Espinha Bífida” em crianças e adolescentes deambuladores e não deambuladores com espinha bífida

“…According to Silva et al 17 , the home exercise booklet allows the patient and their caregiver to consult the material for guidance whenever necessary, providing greater security, confidence, adherence, comfort, and family involvement and helping to ensure that the exercises are performed correctly. Through the answers given by patients and their caregivers, the booklet "Orientações para a Manutenção da Qualidade de Vida -Espinha Bífida" presented a pleasing appearance and content, thus enclosing the expectations for an exercise booklet.…”

Modificações no comportamento alimentar de crianças e adolescentes com leucemia: experiências de cuidadores familiares

“…O câncer infantojuvenil é considerado raro em comparação ao câncer no adulto e quando fora das possibilidades de cura os cuidados paliativos (CP) são a melhor opção (SILVA REG, et al, 2021). O processo de adoecimento e a rotina do tratamento oncológico são complexos, gerando sofrimento para o paciente e sua família (BICALHO C, et al, 2019).…”