2010
DOI: 10.1590/s1413-81232010000200022
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Abstract: A hospitalização e o adoecimento pela perspectiva de crianças e jovens portadores de fibrose cística e osteogênese imperfeitaThe hospitalization and the process of becoming ill through the children's and adolescents' perspective with cystic fibrosis and osteogenesis imperfecta

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Cited by 17 publications
(13 citation statements)
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“…Play functions as a strategy which establishes trust and confidence between the child, the health service and its profissionals. 23 The existence of a recreation room makes the hospital more pleasant for school children, because it gives them the opportunity to have fun, to relax and to forget the experience of illness and hospitalization.…”
mentioning
confidence: 99%
“…Play functions as a strategy which establishes trust and confidence between the child, the health service and its profissionals. 23 The existence of a recreation room makes the hospital more pleasant for school children, because it gives them the opportunity to have fun, to relax and to forget the experience of illness and hospitalization.…”
mentioning
confidence: 99%
“…A transição para a adolescência dos pacientes com FC representa a sobrevivência a uma doença letal, geralmente acompanhada com o declínio das condições de saúde. Conquistar etapas, passar da infância para adolescência consiste em vivenciar muitas fragilidades e comprometimentos físicos, como: emagrecimento, necessidade de oxigenioterapia, sonda nasogástrica, realização de gastrostomia e de fisioterapia várias vezes ao dia 21 .…”
Section: Discussionunclassified
“…Para os pacientes com FC participarem ativamente do seu tratamento, é necessário que, desde a confirmação do diagnóstico, eles tenham consciência da doença, dos sinais e sintomas e da gravidade da doença 21 .…”
Section: Discussionunclassified
“…Therefore, there have been several studies that focused on the experience of this chronic illness from the perspective of children and adolescents (Moreira;Macedo, 2003;Ramos;Queiroz;Jorge, 2008;William et al, 2009;Moreira;Macedo, 2009;Protudjer et al, 2009;Vieira;Dupas;Ferreira, 2009;Moreira, 2010;Carvalho, 2012;Moreira;Souza;Corsaro, 2015). To enrich and broaden discussions in this field of knowledge, this article focuses on the participation of young people in the process of living with and managing CKD, investigating how relationships are established between the disease and health professionals, who are identified in this study as key actors in both the treatment of CKD and in the recognition of young people as protagonists of their conditions.…”
Section: Introductionmentioning
confidence: 99%