Dilemas e conflitos de ser mãe na vigência do HIV/Aids

Abstract

Objetivou-se apreender os dilemas e conflitos revelados por mulheres que engravidaram na vigência da infecção pelo HIV/Aids. Estudo qualitativo com oito mulheres atendidas em ambulatório em Fortaleza-CE. Mediante entrevistas observou-se que as mulheres gestam com expectativa do resultado da sorologia do concepto; depois de nascidos vivenciam incertezas e mantêm superproteção da criança. Relatam maneiras inadequadas da comunicação do diagnóstico e pouca orientação para gestar em face do HIV. As mulheres transformam o desejo de ser mãe em realidade. Para elas, lidar com uma criança com possibilidade de contrair infecção pelo HIV é algo além de sua capacidade. Conclui-se ser essencial oferecer suporte emocional e social para essas mulheres independente das fases da vida.

Maternity perception by pregnant women living with HIV

“…They externalized fear of vertical HIV transmission during pregnancy, the side effects of medication, prejudice about the disease, and at the same time voiced feelings of overcoming through self-care, confidence in adhering to their therapy, and attempting to overcome prejudice and the diagnosis of HIV recently discovered prenatally, even if absorbing this is not an easy task. 1,[6][7][8][9][10] Studies have shown that although HIV-positive pregnant women have reported experiencing a normal pregnancy, peculiar situations are evidenced in the daily life of pregnant women who acquired this infection.…”

“…In the case of pregnant women living with HIV, pregnancy has played a motivational role, in which the child becomes a reason for living and overcoming the adversity of living with an incurable and stigmatizing disease. 1,[6][7] In contrast, the desire to become pregnant brings the fear of pregnancy, as evidenced in the interviews, insofar as different perspectives were portrayed regarding the uncertain future and the possibility of vertical transmission. Feelings such as hope that all progresses well in the pregnancy, being able to have a child, being capable of taking the medication, witnessing the healing of AIDS, having a long life, having a "normal" life, and raising a healthy child are also commonly found in other studies.…”

“…1,6,7 Clearly, social and cultural pulls permeate the lives of women, influencing them to experience motherhood; the construct of this role configures in the social imaginary their self-realization as women, and the possibility of continuing their life and that of their family. In the case of pregnant women living with HIV, pregnancy has played a motivational role, in which the child becomes a reason for living and overcoming the adversity of living with an incurable and stigmatizing disease.…”

Experience of family members providing care for HIV-exposed children: beginning of the trajectory

“…Fear of transmitting the virus to the child is very present and causes despair (3) . Pregnancy with HIV sero-positivity is characterized as a moment of apprehension in relation to contaminating the child (3)(4) . This apprehension lasts until the child's diagnosis results and the mother must also deal with the uncertainty, guilt and demands during care to prevent VT (5)(6).…”

“…There are recommendations of extending scientifi c explorations on the subjectivity of the experience of living with HIV (11) . Most studies have investigated the perception of mothers (3)(4)(5)(7)(8)(12)(13) on subjects related to pregnancy, being a mother with HIV and breastfeeding, although it should also be considered that the experience of HIV/AIDS is not limited to those who are infected with the virus, but also to those who live with and assume the role of carers of children.…”