Qualidade de vida em pacientes pediátricos com dermatite atópica

Abstract

Objective: To measure the impact of atopic dermatitis (AD) on the quality of life of pediatric patients and their families, establishing correlations with scores of disease severity. Methods:This was an observational study of the correlations between clinical indicators of severity and two questionnaires on quality of life: IDQOL and DFI. The study also included scoring of eczema severity -EASI. Fortytwo children with AD, fulfilling established diagnostic criteria, and 44 children with other dermatologic diseases were investigated for the effect of eczema on quality of life. Pearson's correlation was used for the correlation analysis and the comparison between the groups was carried out using the Mann-Whitney test.Results: Data analysis demonstrated significant differences between the scores for the two groups. The mean score in the eczema group was 9.2 (range 1-19) for IDQOL and 8.5 (range 0-17) for DFI. The highest scoring questions for IDQOL referred to itching and scratching, mood changes and problems caused by treatment. For the FDI, the highest impact domains were treatment-related expenditure and sleep disturbance affecting family members.Conclusions: AD has a negative impact on the quality of life of pediatric patients and their families. Data obtained in studies of quality of life in AD should be used to guide clinical practice in order to identify individual treatment strategies and should lead to the adoption of measures to reduce the impact of the disease on patients and their families.J Pediatr (Rio J). 2009;85(5):415-420: Quality of life, atopic dermatitis, children.

Assessment of the quality of life in children and adolescents with asthma

“…The examination of the correlation between the quality of life and the degree of asthma control in our study showed that children with good asthma control have a better quality of life compared to children with a poor control of the illness. The results obtained coincide with the literature data (Cerović, et al, 2009;Ricci, et al, 2009;Al-Gewely, et al, 2013). A study by Serbian authors whose goal was to examine the significance of the Serbian version of the PAQLQ questionnaire in clinical practice suggests that this questionnaire showed a good correlation with the clinical and functional indexes that are usually evaluated in monitoring children with asthma.…”

“…Other studies dealing with this problem reported similar results (Al-Gewely, et al, 2013;Zahrani, et al, 2014). According to the guidelines (GINA Global Strategy for Asthma Management and Prevention, 2015) and statements by other authors, the expression of the symptoms of asthma is directly connected to achieving a complete control of asthma.…”

“…The methodology of work with the PAQLQ instrument is widely accepted amongst the pediatric population regarding the assessment of the quality of life in children with asthma and is also used by a large number of authors (Al-Akour & Khader, 2008;Cerović, et al, 2009;Al-Gewely, et al, 2013;Nair, et al, 2014). On account of this, we opted to research this problem as asthma is a disease of high-prevalence, while the quality of life is a concept that advocates a holistic approach which, as such, is deeply incorporated in all areas of health care.…”

“…Moreover, asthma is a public health problem that negatively affects different aspects of the quality of life. The effect of asthma on the quality of life of patients, as well as its cost, is very high (Papadopoulos, et al, 2012;Al-Gewely, et al, 2013). The quality of life in children with asthma depends on several factors, among which the most significant are asthma severity and the level of asthma control.…”

Fatores desencadeantes em dermatoses crônicas de crianças com perfis internalizante e externalizante segundo relato materno

“…Essas doenças podem estar presentes desde a infância e afetam a qualidade de vida do paciente ao interferir negativamente nos âmbitos físico, social e emocional de sua vida (Alvarenga & Caldeira, 2009;Barbarot et al, 2007;Gon, Gon, & Zazula, 2013;Manzoni et al, 2012;Silva, Fortes, Miot, & Marques, 2013;Tejada, Mendoza-Sassi, Almeida, Figueiredo, & Tejada, 2011;Torres, Silva, Magalhães, Morcillo, & Velho, 2011;Weber, Lorenzini, Reinehr, & Lovato, 2012). Rotina de tratamento, cuidados constantes com a pele, restrição na participação em atividades esportivas e de lazer e exposição a situações de estigmatização pela visibilidade das lesões podem dificultar a adaptação à doença e tornar-se um evento estressor recorrente (Castro & Piccinini, 2002;Gon, Rocha, & Gon, 2005;Pires & Cestari, 2005).…”