Coping materno da Síndrome de Down: identificando estressores e estratégias de enfrentamento

Reis, Luciana Bicalho; Paula, Kely Maria Pereira de

doi:10.1590/1982-02752018000100008

Cited by 6 publications

(5 citation statements)

References 29 publications

(48 reference statements)

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“…Research that aimed to analyze the hope in mothers of children with DS and its association with coping behaviors adopted by the family and the quality of the relationship of these mothers with the parents indicated that belief in God or religiosity were significantly associated with greater hope and quality in the relationship among parents of children with DS (14) . Similar results are presented in research that shows that, faced with difficulties, families of children with DS resort to religious faith and become more involved with the care of their child (4) , seeking assistance from professionals and meeting with the pedagogical team of school to outline strategies that can solve or minimally allow to deal actively with the problem, increasing the sense of competence and indicating an active coping with the stressor (21) .…”

Section: Discussionsupporting

confidence: 70%

“…Studies devoted to understanding DS repercussions on siblings of children with DS have shown that they go through processes of acceptance, confusion, and various other complexities with which the syndrome is linked; yet, affective relationships and interaction competence between them are identified (21,22) . Support groups for siblings may help families to cope positively with challenges in situations involving the adaptation of siblings of children with DS (23) .…”

Section: Discussionmentioning

confidence: 99%

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Problem-solving and coping in family adaptation of children with Down Syndrome

Braga

Silva

Guimarães

et al. 2021

Rev. esc. enferm. USP

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Objective: To analyze problem-solving and coping strategies of parents of children with Down Syndrome in family adaptation. Method: This is a qualitative research that used the Resiliency Model of Family Stress, Adjustment, and Adaptation. Participants were mothers and/or fathers from 40 families of children aged 1 to 7 years diagnosed with DS. Directed content analysis was performed, supported by software and considering a code dictionary. Results: Problem-solving and coping proved to be a set of actions, behaviors, efforts, and communications that contributed to family adaptation and favored balance between the demands imposed by Down Syndrome and the acquisition of resources by the family. Conclusion: In the first moment, which corresponds to the time of news or diagnosis of the syndrome and the first days after birth, internal and external resources, which represent coping, are developed to accept and refocus ideas and feelings towards Down Syndrome. Over time these resources have an effect and cause changes in family functioning patterns and in the relationship of these families with the outside world, as they seek child development.

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Section: Discussionsupporting

confidence: 70%

Section: Discussionmentioning

confidence: 99%

Problem-solving and coping in family adaptation of children with Down Syndrome

Braga

Silva

Guimarães

et al. 2021

Rev. esc. enferm. USP

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“…O diagnóstico de deficiência ainda traz responsabilidades e exigências adicionais para os genitores que, além do cuidado, devem lidar com os tratamentos impostos pelo quadro clínico do bebê e com as expectativas sociais em relação a ele (Cunha, Blascovi-Assis, & Fiamenghi Jr., 2010;Scorgie, 2015), produzindo reverberações no próprio psiquismo dos pais (Reis & Paula, 2018). Nesse sentido, estudos que investigaram diferentes deficiências na faixa etária de 0 a 3 anos têm apontado para a importância de considerar a saúde mental dos responsáveis pelo bebê, cujas experiências são permeadas por altos níveis de cansaço, ansiedade e estresse (Chan et al, 2015;Goff et al, 2016;Razera, Trettene, Tabaquim, & Niquerito, 2017;Reis & Paula, 2018). Estudo realizado por Razera et al (2017), com mães de crianças com fissura labiopalatina, destacou o isolamento dos cuidadores em períodos de internação hospitalar, devido, em parte, à responsabilidade durante a recuperação da criança, ocasionando níveis elevados de estresse, fadiga e sobrecarga.…”

Section: Introductionunclassified

“…jul./set., 40(110), 2045PsicolArgum. -2070 dependência por cuidados e a rotina intensa de tratamentos (Couto et al, 2007;Oliveira-Menegotto & Lopes, 2009;Razera et al, 2017;Reis & Paula, 2018). Por isso, neste estudo entende-se como exigências emocionais as demandas psíquicas, bem como aquelas advindas do desgaste físico, que podem estar presentes no atendimento às necessidades do bebê e, consequentemente, no seu cuidado durante os primeiros meses de vida (ex.…”

Section: Introductionunclassified

Exigências emocionais para a parentalidade no cuidado ao bebê com síndrome de Down: estudo longitudinal

et al. 2022

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Este estudo teve como objetivo investigar as exigências emocionais para a parentalidade frente aos cuidados do bebê com síndrome de Down aos três e oito meses. Foi realizado um estudo de caso múltiplo, de caráter longitudinal, no qual participaram três casais, cujos filhos foram diagnosticados com síndrome de Down no momento do nascimento. Os genitores responderam a entrevistas sobre maternidade, paternidade e desenvolvimento do bebê. A análise qualitativa, a partir do relato clínico, evidenciou que o diagnóstico da síndrome de Down gerou nos genitores um processo de negação que se estendeu até o oitavo mês do bebê, mesmo que com menor intensidade. Era preciso negar as limitações que a deficiência poderia trazer ao bebê a longo prazo para que os genitores conseguissem identificar as suas necessidades e atendê-las. Os cuidados especializados contínuos, como estimulação precoce e atendimento médico por problemas de saúde, eram especialmente desafiadores e exigentes. Provocavam desorganização psíquica e da rotina, para além do que um bebê por si só exige nos seus primeiros meses de vida. Tais aspectos, associados a recursos pessoais e financeiros precários, traziam sobrecarga emocional, indicando a importância de espaços de escuta para genitores de bebês com deficiência, a fim de favorecer o desenvolvimento emocional do bebê e da família.\

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“…We chose this period because most families of children with DS consider it to be a critical event, with implications for their acceptance, adaptation, and willingness to follow recommendations for care. 7 Investigations in the Brazilian and international context have indicated that at the time of diagnosis, families usually experience negative feelings, such as tension, anxiety, stress, denial, punishment, 8 disorientation, loss of the idealized child during gestation, anxiety, [9][10] shock, 8,10,11 fear, sadness, anger, and frustration, 8,12 concern with society's response in the future. 15 A few families mentioned positive feelings.…”

Section: Introductionmentioning

confidence: 99%

Family Appraisal of the Down Syndrome Diagnosis

Schettini

Riper²,

Duarte

2020

Texto contexto - enferm.

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Objective: to analyze the family appraisal about the Down syndrome diagnosis. Method: this is a qualitative, exploratory study, guided by the Resiliency Model of Family Stress, Adjustment, and Adaptation. Semi-structured interviews were conducted with 20 Brazilian parents of children with Down syndrome (19 mothers and 1 father). The data were collected between February and June 2016 and were analyzed using a directed content analysis approach and MAXQDA ©, version 12.2.0 software was used to help manage the data. Results: the moment of suspected or confirmed diagnosis of Down syndrome occurred predominantly in the postnatal period. Parents viewed the experience of being informed of their child’s diagnosis as a negative experience and were mostly dissatisfied with how professionals informed them. Parents reported that, over time, their view of having a child with Down syndrome became more positive. Conclusion: the family's perception of how they were informed of their child’s diagnosis plays a critical role in the family adaptation process and may ultimately contribute to how well they adapt. Findings from this study will help in the identification of key competencies needed by health professionals who engage in informing families about their child's diagnosis of Down syndrome.

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Coping materno da Síndrome de Down: identificando estressores e estratégias de enfrentamento

Cited by 6 publications

References 29 publications

Problem-solving and coping in family adaptation of children with Down Syndrome

Problem-solving and coping in family adaptation of children with Down Syndrome

Exigências emocionais para a parentalidade no cuidado ao bebê com síndrome de Down: estudo longitudinal

Family Appraisal of the Down Syndrome Diagnosis

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