“Mata de tristeza!”: representações sociais de pessoas com vitiligo atendidas na Farmácia Universitária da Universidade Federal do Rio de Janeiro, Brasil

Abstract

Vitiligo é caracterizado por manchas brancas na pele. Na dispensação do metoxisaleno utilizado para tratá-lo, na Farmácia Universitária/UFRJ, os portadores relatavam mal-estares devido à terapia e à doença. A busca pela compreensão da experiência do adoecer conduziu este estudo que adota perspectiva teórico-metodológica socioantropológica. A apreensão da visão de mundo dos sujeitos foi captada em entrevistas entre usuários da FU/ UFRJ. A partir do diagnóstico, os sujeitos consideram o vitiligo "um castigo", sentemse alvo de "chacotas", "preconceito", "discriminações". A experiência da doença impõe rever seus conceitos e filiação religiosa. O fato de o vitiligo não ser concebido como doença grave estabelece um não-lugar para o sofrimento dos portadores. Aspectos simbólicos, emocionais e socioculturais que circunscrevem a doença devem ser considerados para melhorar a atenção à saúde e vida desses sujeitos. Os profissionais de saúde precisam concebê-los para além de suas "manchas".Palavras-chave: Vitiligo. Representações sociais. Pesquisa qualitativa. Metoxisaleno. Atenção farmacêutica.

Representational Structure of Vitiligo: Non-Restrictive Skin Marks

“…Our results are consistent with studies dealing with implications found with dermatitis, in which the self-esteem and quality of life of people with dermatological alterations are impaired due to a sensation of transmitting a negative image to other people (Ajose, et al, 2014;Azevêdo, 2016;Correia & Bortoli, 2013;Noh, Kim, Park, Hann & Oh, 2013). Szabo and Brandão (2016) also show that the concerns of men and women having Vitiligo are related to the transfi gurations that the disease causes, and share dysfunctional beliefs that the disease makes them less attractive to their loving partners, and constitutes an impediment to obtaining one.…”

“…Using the SRT dimensional approach to a holistic understanding of Vitiligo, we highlight the three solitary Brazilian studies existence, found in the national and international literature (Andrade, Ferraz, Coelho, & Pinto, 2016;Do Bú et al, 2017;Szabo & Brandão, 2016). These seek, from the realities of those affl icted by the disease, to understand the constructed and socially shared meanings developed in the face of this event.…”

The white human stain: Assessing prejudice towards people with Vitiligo.

“…In this process, people without the disease would attribute negative stereotypes to people with Vitiligo (Dovidio et al, 2010;Fiske, 2000), leading to a social comparison used to maintain the positive status of the first group's social identity (Tajfel, 1981) and keep the latter group apart (Phelan et al, 2008). Among the variables observed in studies on Vitiligo and social discrimination, characteristics as the person's skin color, as well as the white patches' exposure (caused by the disease) are determinant in the way that people with Vitiligo represent their self-image and talk about the inconvenience of having the illness Do Bú & Coutinho, 2018Firooz et al, 2004;Szabo & Brandão, 2016). In addition, research that focused on analyzing the quality of life of this group has shown, in different cultures, that people with Black skin and white patches more easily recognized by the society have lower quality-of-life indices compared to people with White skin and spots that are not perceived by the social context (Bonotis et al, 2016;Do Bú et al, 2021;Ezzedine et al, 2019;Karelson et al, 2012;Mattoo et al, 2001;Morales-Sánchez et al, 2017;Sampogna et al, 2008;Sarhan et al, 2016;Simons et al, 2020;Talsania et al, 2010).…”

“…Prejudice towards people with Vitiligo has been widely indicated in studies as one of these attitudes, showing, from the perspective of those who have the illness, its negative implications and difficulties when establishing relationships in social interactions (e.g., Do Bú & Coutinho, 2019;Do Bú et al, 2017Pahwa et al, 2013;Szabo & Brandão, 2016). Nevertheless, to the best of our knowledge, there is no validated instrument to measure prejudice against this population.…”

Vitiligo e o impacto na imagem da mulher

“…Efeitos adversos podem ocorrer como a atrofia epidérmica, acne induzida por corticoides, equimoses, estrias e rosácea, sendo que os pacientes possuem maior risco de atrofia quando usam corticoides mais potentes. Lesões localizadas na face e pescoço devem ser tratadas com corticoides de média potência, já no restante do corpo utiliza-se corticoides de alta potência (SZABO; BRANDÃO, 2016).…”