The impact of the oral condition of children with sickle cell disease on family quality of life

Fernandes, Maria Luiza da Matta Felisberto; Kawachi, Ichiro; Corrêa‐Faria, Patrícia; Paiva, Saul Martins; Pordeus, Isabela Almeida

doi:10.1590/1807-3107bor-2016.vol30.0021

Cited by 9 publications

(17 citation statements)

References 24 publications

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“…ASD is a widely recognized disease that can have varying impacts on people and on their well-being and quality of life [4][5][6][7][8][9][10]. Investigations have shown that health problems such as dental caries can affect individuals functionally, psychologically, and socially, causing pain and discomfort in children and adolescents with special healthcare needs [4][5][6][7][8][9][10]. In individuals with ASD, oral healthrelated quality of life (OHRQoL) could have a different impact on families when compared to healthy children [4,5].…”

Section: O R I G I N a L A R T I C L Ementioning

confidence: 99%

Parental perceptions of oral health-related quality of life of Brazilian children and adolescents with autism spectrum disorder

Cancio

Faker²,

Tostes³

2019

BDS

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Objective:This paper aimed to assess the oral health-related quality of life (OHRQoL) of children and adolescents with autism spectrum disorder (ASD) using the parental/caregiver perceptions questionnaire (PCPQ). Materials and methods: Children aged 2 to 14 years, enrolled in the ACOLHER/PNE project at the Fluminense Federal University, RJ, Brazil, were assessed. The main independent variable was dental caries experience, diagnosed according to the World Health Organization (WHO) criteria. The variable was categorized as caries-free when dmft/DMFT=0 and caries experience when dmft/DMFT ≥ 1. Caregiver schooling, age, sex, and socioeconomic factors (Brazilian minimum wage – BMW) were the other independent variables. Quality of life (QoL) was measured using PCPQ subscales and total score. Mann-Whitney U, Kruskal-Wallis, and multivariate Poisson regression correlation analysis were performed. Results: The median age of patients was 8 (SD= 3.76). The study group consisted of 57 (76.0%) males and 18 (24.0%) females. Fifty parents (66.7%) have more than eight years of education and 35 (46.7%) earn less than 2 BWM. The impact values were significantly higher in male individuals in the oral symptoms (OS) domain and in individuals without caries experience in the social well-being (SW) domain (p<0.05). Conclusions: these results seem to suggest that individuals with ADS without caries experience in permanent dentitions in the SW domain and males in the OS domain had a higher impact quality of life.

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Section: O R I G I N a L A R T I C L Ementioning

confidence: 99%

Parental perceptions of oral health-related quality of life of Brazilian children and adolescents with autism spectrum disorder

Cancio

Faker²,

Tostes³

2019

BDS

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“…Parents tend to be the primary caregivers of children with DS . The emotional well‐being of parents is fundamental to promote a good quality of life and the health maintenance of children/adolescents with DS .…”

Section: Introductionmentioning

confidence: 99%

“…10 Parents tend to be the primary caregivers of children with DS. 6,11 The emotional well-being of parents is fundamental to promote a good quality of life and the health maintenance of children/adolescents with DS. 10,11 However, the task of looking after someone may lead to personal and family conflicts and even stress, embarrassment, fatigue, and depression for guardians and may consequently influence their quality of life.…”

Section: Introductionmentioning

confidence: 99%

“…6,11 The emotional well-being of parents is fundamental to promote a good quality of life and the health maintenance of children/adolescents with DS. 10,11 However, the task of looking after someone may lead to personal and family conflicts and even stress, embarrassment, fatigue, and depression for guardians and may consequently influence their quality of life. 11 Several studies have evaluated the effects of oral disorders among children/adolescents without DS 4,8,9 and among individuals with others special needs 5 on their families' OHRQoL.…”

Section: Introductionmentioning

confidence: 99%

“…10,11 However, the task of looking after someone may lead to personal and family conflicts and even stress, embarrassment, fatigue, and depression for guardians and may consequently influence their quality of life. 11 Several studies have evaluated the effects of oral disorders among children/adolescents without DS 4,8,9 and among individuals with others special needs 5 on their families' OHRQoL. Though relevant, as far as we know, no study has evaluated the impact of oral conditions of children/adolescents with DS on their families' OHRQoL.…”

Section: Introductionmentioning

confidence: 99%

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Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

Carrada

Scalioni

Abreu

et al. 2019

Special Care in Dentistry

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Aims To assess the impact of oral conditions among children/adolescents with Down syndrome (DS) on the Oral Health‐related Quality of Life (OHRQoL) of their families in comparison with a group without DS. Methods and results Families of 144 children/adolescents with DS aged 4‐18 years were compared with families of individuals without DS. Dental caries experience (DMFT/dmft), clinical consequences of untreated dental caries (PUFA/pufa), gingival bleeding (GBI), visible plaque (VPI), and malocclusion were evaluated. Parents/caregivers answered the Family Impact Scale (FIS) and questionnaires on sociodemographic conditions and the health of children/adolescents. Data analysis included chi‐square test and Poisson regression. There was no difference between groups regarding the impact of the children's/adolescents' oral condition on their families’ OHRQoL for all domains and the total FIS score (P > 0.05). A negative impact on the OHRQoL of families of children/adolescents with DS was determined by dental caries (PR = 3.95, CI = 2.09‐7.46), clinical consequences of untreated dental caries (PR = 1.83, CI = 1.18‐2.84), defined malocclusion (PR = 2.75, CI = 1.23‐6.13), and severe malocclusion (PR = 2.82, CI = 1.02‐7.74). Conclusion There is no difference on the OHRQoL of families of children/adolescents with and without DS. Dental caries experience, clinical consequences of untreated dental caries, defined malocclusion, and severe malocclusion determined the negative impact on the OHRQoL of families of children/adolescents with DS.

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Dental tissues of sickle cell anemia and its impact on the quality of life related to oral health

Makolo,

Mutombo,

Bushabu

et al. 2023

Hematology, Transfusion and Cell Therapy

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The impact of the oral condition of children with sickle cell disease on family quality of life

Cited by 9 publications

References 24 publications

Parental perceptions of oral health-related quality of life of Brazilian children and adolescents with autism spectrum disorder

Parental perceptions of oral health-related quality of life of Brazilian children and adolescents with autism spectrum disorder

Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

Dental tissues of sickle cell anemia and its impact on the quality of life related to oral health

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