Cross-cultural adaptation of the Social and Emotional Questionnaire on Dementia for the Brazilian population

Belfort, Tatiana; Bramham, Jessica; Neto, José Pedro Simões; Sousa, Maria Fernanda Barroso de; Santos, Raquel Luiza; Nogueira, Marcela Moreira Lima; Torres, Bianca; Rosa, Rachel Dias Lopes da; Dourado, Marcia Cristina Nascimento

doi:10.1590/1516-3180.2014.00180501

Cited by 8 publications

(8 citation statements)

References 25 publications

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“…However, it is not a self-assessment tool but an online tool which requires a login, and the questions and response options are not directed at service users themselves but depend on the subjective assessment of community workers, which meant that the tool was not considered appropriate for comparison. However, the procedure for crosscultural adaptation of a self-assessment tool used in the present study is in line with methods used in several other studies (Belfort et al, 2015;Coenen et al, 2021;Cygan ´ska et al, 2021).…”

Section: Discussionsupporting

confidence: 64%

Norwegian Cross-Cultural Adaptation of the Social and Communities Opportunities Profile-Mini for Persons with Concurrent Mental Health and Substance Use Disorders

Leonhardt

Kyrdalen

Holstad

et al. 2022

J. Psychosoc. Rehabil. Ment. Health

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Persons with concurrent mental health and substance use disorders often do not participate actively in society and remain marginalized. The promotion of social inclusion is important for the care of persons with concurrent disorders. To measure social inclusion, the Social and Communities Opportunities Profile (SCOPE) was developed, followed by its mini version for English-speaking people in Singapore. In Norway, there is no instrument available to measure social inclusion. Thus, the aim was cross-cultural adaptation of SCOPE Mini for persons with concurrent disorders. The Norwegian adaptation was performed using the systematic approach recommended by Beaton et al. After a forward–backward translation, the Norwegian SCOPE-Mini was pre-tested among 30 persons with a concurrent mental health and substance use disorder in three areas to check its psychometric properties. To evaluate comprehensibility and applicability, participants were asked five open questions. The Norwegian cross-cultural adaptation of SCOPE Mini showed acceptable psychometric properties and was considered comparable to the original version. The results of the pre-test showed no linguistic inconsistency, but some indications of the necessity of semantic adaptation regarding the cultural context and persons with concurrent disorders. The Norwegian SCOPE Mini may be a practical tool for health professionals, social workers, and researchers to measure social inclusion among a vulnerable group such as persons with a concurrent mental health and substance use disorder. However, given the relatively small sample size in our study, further research on the validity and reliability of the instrument is recommended.

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Section: Discussionsupporting

confidence: 64%

Norwegian Cross-Cultural Adaptation of the Social and Communities Opportunities Profile-Mini for Persons with Concurrent Mental Health and Substance Use Disorders

Leonhardt

Kyrdalen

Holstad

et al. 2022

J. Psychosoc. Rehabil. Ment. Health

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“…The ratings are scored on a five‐point Likert scale, from “strongly disagree” to “strongly agree” and was based on the degree of discrepancy between the PwAD and caregiver dyad responses. However, we used separately the scores of SEQ1: self‐reported PwAD ratings and SEQ2: caregivers' ratings about PwAD with the purpose to analyze independently PwAD and caregivers' points of view 18,19 …”

Section: Methodsmentioning

confidence: 99%

“…Social cognition SEQ is the same questionnaire applied in PwAD, but the caregivers answer about PwAD emotional and social current functioning (SEQ2). 18,19…”

Section: Caregivers Of Pwadmentioning

confidence: 99%

Social cognition: Patterns of impairments in mild and moderate Alzheimer's disease

Belfort

Neto

Santos

et al. 2020

Int J Geriat Psychiatry

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Objective: Social cognition (SC) deficits in Alzheimer's Disease (AD) are commonly associated with the progression of the disease, and mainly as a result of global cognition deterioration. We aimed to investigate the relationship between SC, global cognition, and other clinical variables in mild and moderate people with AD and their caregivers. We also investigated the differences between self-reported SC and family caregivers' ratings of SC. Methods: We included 137 dyads of people with AD (87 mild and 50 moderate) and caregivers. We evaluated social cognition, global cognition, quality of life, dementia severity, mood, functionality, neuropsychiatric symptoms, and caregiver burden. Results: SC presented a specific pattern of impairment, especially when related to global cognition deficits. Although the moderate AD group showed significant worsening in cognition, functionality and neuropsychiatric symptoms, when compared to the mild group, SC did not present significant differences between the groups. The multivariate regression analysis showed that in the mild group, self-reported SC was related to age and years of education. In the moderate group, SC was related to gender. For caregivers, in the mild group, SC was related to functionality and quality of life, while in the moderate group, was associated with quality of life. Conclusion: The pattern of impairment of SC may be more stable as it implies interaction with cognition, mainly in the mild stage, but also include subjective factors as a personal perception about oneself and others, values, and beliefs that evokes individual, social, cultural, and contextual factors.

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“…There are several publications related to the validation of tests in Spanish and Brazilian Portuguese (78)(79)(80)(81)(82)(83)(84)(85). It is also important to mention that a group at the Institute of Cognitive Neurology (INECO) in Argentina developed the INECO Frontal Screening (IFS) as a brief, sensitive, and specific tool to assess executive functions in dementia (86).…”

Section: Ftd Clinical and Neuropsychology Studies In Latin Americamentioning

confidence: 99%

Frontotemporal Dementias in Latin America: History, Epidemiology, Genetics, and Clinical Research

et al. 2021

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Introduction: The historical development, frequency, and impact of frontotemporal dementia (FTD) are less clear in Latin America than in high-income countries. Although there is a growing number of dementia studies in Latin America, little is known collectively about FTD prevalence studies by country, clinical heterogeneity, risk factors, and genetics in Latin American countries.Methods: A systematic review was completed, aimed at identifying the frequency, clinical heterogeneity, and genetics studies of FTD in Latin American populations. The search strategies used a combination of standardized terms for FTD and related disorders. In addition, at least one author per Latin American country summarized the available literature. Collaborative or regional studies were reviewed during consensus meetings.Results: The first FTD reports published in Latin America were mostly case reports. The last two decades marked a substantial increase in the number of FTD research in Latin American countries. Brazil (165), Argentina (84), Colombia (26), and Chile (23) are the countries with the larger numbers of FTD published studies. Most of the research has focused on clinical and neuropsychological features (n = 247), including the local adaptation of neuropsychological and behavioral assessment batteries. However, there are little to no large studies on prevalence (n = 4), biomarkers (n = 9), or neuropathology (n = 3) of FTD.Conclusions: Future FTD studies will be required in Latin America, albeit with a greater emphasis on clinical diagnosis, genetics, biomarkers, and neuropathological studies. Regional and country-level efforts should seek better estimations of the prevalence, incidence, and economic impact of FTD syndromes.

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Cross-cultural adaptation of the Social and Emotional Questionnaire on Dementia for the Brazilian population

Cited by 8 publications

References 25 publications

Norwegian Cross-Cultural Adaptation of the Social and Communities Opportunities Profile-Mini for Persons with Concurrent Mental Health and Substance Use Disorders

Norwegian Cross-Cultural Adaptation of the Social and Communities Opportunities Profile-Mini for Persons with Concurrent Mental Health and Substance Use Disorders

Social cognition: Patterns of impairments in mild and moderate Alzheimer's disease

Frontotemporal Dementias in Latin America: History, Epidemiology, Genetics, and Clinical Research

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