Netnografia e análise bioética de blogs de turismo terapêutico com células-tronco

Sá, Natan Monsores de; Lopes, Cecilia; Bezerra, Edilnete Maria Bessa; Silva, Natasha Lunara

doi:10.1590/1413-812320152110.16422016

Cited by 3 publications

(5 citation statements)

References 29 publications

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“…For example, patients can fall victims to treatments not yet scientifically proven or with fraudulent features, clinical trials, or compassionate use of drugs. 37 Therefore, based on the Basic Map of the Stakeholders Theory, 31 a summary is presented below with the stakeholders identified in a preliminary scheme of the CDM, which are distributed in two layers, having the patient in the center, thus formatting the Basic Map of Stakeholders in the CDM, as shown in Figure 1.…”

Section: Stakeholder Engagement In Patient-centered Carementioning

confidence: 99%

“…Broad access to the Internet has allowed patients and families to use social media to form a network of mutual support, in which they share information about diseases, about available treatments and new therapeutic options. 37 However, in addition to this mobilization potential, social media can offer a risk. For example, patients can fall victims to treatments not yet scientifically proven or with fraudulent features, clinical trials, or compassionate use of drugs.…”

Section: Cdmmentioning

confidence: 99%

“…For example, patients can fall victims to treatments not yet scientifically proven or with fraudulent features, clinical trials, or compassionate use of drugs. 37…”

Section: Cdmmentioning

confidence: 99%

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Co-created decision-making: From co-production to value co-creation in health care

Amorim

Ventura

2023

The Journal of Medicine Access

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Rare diseases are characterized by a wide diversity of signs and symptoms and vary not only from disease to disease but also from person to person, and living with a disease leads patients to peculiar experiences, without limits of time and space, as they extend to various environments and relationships of their lives. Therefore, the objective of this study is the theoretical interaction between value co-creation (VC) and the stakeholder theory (ST) with the shared decision-making (SDM) health care theory, to enable the analysis of the relationships between patients and their stakeholders in the co-creation of value for decision-making focused on the patient’s quality of life. It is configured as a multi-paradigmatic proposal by enabling the analysis of multiple perspectives of different stakeholders in health care. Thus, co-created decision-making (CDM) emerges with emphasis on interactivity of the relationships. As previous studies have already highlighted the importance of holistic care, seeing the patient as a whole and not just the body, studies with CDM will be beneficial for analyses that go beyond the clinical office and doctor–patient relationships, extending to all environments and interactions that add value to the patient’s treatment. It was concluded that the essence of this new theory proposed here is neither in patient-centered care nor in patient self-care, but in co-created relationships with and between stakeholders, including non-health care environments that are important to the patient, such as relationships with friends, family, other patients with the same disease, social media, public policies, and the practice of pleasurable activities.

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Section: Stakeholder Engagement In Patient-centered Carementioning

confidence: 99%

Section: Cdmmentioning

confidence: 99%

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Co-created decision-making: From co-production to value co-creation in health care

Amorim

Ventura

2023

The Journal of Medicine Access

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“…As a last consideration in this initial classification of secondary stakeholders in the CDM view, social media has become a major influence in health care. Broad access to the Internet has allowed patients and families to use social media to form a network of mutual support, in which they share information about diseases, about available treatments and new therapeutic options [36]. However, in addition to this mobilization potential, social media can offer a risk.…”

Section: Secondary Stakeholdersmentioning

confidence: 99%

“…For example, patients can fall victims to treatments not yet scientifically proven or with fraudulent features, clinical trials or compassionate use of drugs [36].…”

Section: Secondary Stakeholdersmentioning

confidence: 99%

Co-created Decision Making: From Co-production to Value Co-creation in Health Care

Amorim¹,

Ventura²

2022

Preprint

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Rare diseases are characterized by a wide diversity of signs and symptoms and vary not only from disease to disease, but also from person to person, and living with a disease leads patients to peculiar experiences and treatments, without limits of time and space, as they extend to various environments and relationships of their lives. The objective of this study is the theoretical interaction between Value Co-creation (VC) and the Stakeholder Theory (ST) with the Shared Decision Making (SDM) health care theory. It is configured as a multiparadigmatic proposal by enabling the analysis of multiple perspectives of different stakeholders in health care. Thus, Co-created Decision Making (CDM) emerges in a logic dominated by service, with emphasis on intangible aspects and the interactivity of the relationships. It goes beyond the clinical office and the doctor-patient relationships, as studied in SDM, extending to all environments and interactions that add value to the patient's treatment. It was concluded that the essence of this new theory proposed here is neither in patient-centered care nor in patient self-care, but in co-created relationships with and between stakeholders in both directions, including non-health care environments that are important to the patient, such as relationships with friends, family, other patients with the same disease, social media, public policies, and the practice of pleasurable activities.

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Proposta de indicadores financeiros sobre a judicialização da saúde no município de Chapecó (SC)

Scheren

Wernke

Zanin

2018

Rev. Cat. Cien. Cont.

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Esta pesquisa objetivou propor indicadores financeiros que permitam a análise e a comparabilidade dos gastos com medicamentos oriundos da judicialização da saúde no âmbito do município de Chapecó. Foi utilizada metodologia classificável como quantitativa de descrição, onde o levantamento dos dados abrangeu 3.843 dispensas de medicamentos por determinação judicial no período entre 2008 e 2015. Os valores monetários despendidos com esse fornecimento de remédios no período e obtidos os montantes de fatores relacionados com três perspectivas: receitas municipais, despesas municipais e despesas com a “Função Saúde”. Esses valores foram corrigidos pelo IPCA e utilizados para calcular quinze indicadores sugeridos para avaliar a evolução da judicialização da saúde. Os índices apurados permitiram concluir que entre 2008 e 2011 ocorreram aumentos gradativos a cada período, enquanto que no ano de 2012 houve um crescimento elevado (mais que dobrando em praticamente todos os índices em relação ao ano precedente). No último triênio ocorreram majorações significativas, visto que três dos indicadores do grupo vinculado às receitas chegaram a crescer mais que 2.000% em 2015 se comparados com 2008. No caso dos parâmetros da “Função Saúde”, os três principais indicadores tiveram variações da ordem de 1.800% sobre o ano inicial da série, enquanto que no âmbito das métricas de despesas a evolução sobre o ano inicial também foi expressiva (de 1.474,8% a 2.165,5% conforme o indicador). A análise desses índices evidenciou, então, uma realidade preocupante do ponto de vista das finanças do município pela tendência de agravamento da situação vista nos últimos anos da série abrangida.

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Netnografia e análise bioética de blogs de turismo terapêutico com células-tronco

Abstract: Netnografia e análise bioética de blogs de turismo terapêutico com células-troncoNetnography and the bioethical analysis of therapeutic tourism blogs for stem cells

Cited by 3 publications

References 29 publications

Co-created decision-making: From co-production to value co-creation in health care

Co-created decision-making: From co-production to value co-creation in health care

Co-created Decision Making: From Co-production to Value Co-creation in Health Care

Proposta de indicadores financeiros sobre a judicialização da saúde no município de Chapecó (SC)

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