Criança Em Tratamento Conservador Renal: Experiências Das Cuidadoras Familiares

Lise, Fernanda; Schwartz, Eda; Milbrath, Viviane Marten; Santos, Bianca Pozza dos; Feijó, Aline Machado; Garcia, Raquel Pötter

doi:10.1590/0104-07072017001110016

Cited by 5 publications

(6 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…In a study conducted with family caregivers of children undergoing renal conservative treatment in a pediatric nephrology service in southern Brazil, it was also shown that when the suspected malformation occurs during pregnancy, the mother begins to imagine various diseases, arousing unexpected feelings from confirmation of the diagnosis. 23 In a group of pregnant women, a sense of insecurity was also aroused by so many uncertain news, 16 matching the results found in this search.…”

Section: Discussionsupporting

confidence: 69%

“…How communication of the diagnosis of a congenital malformation or chronic disease occurs is very important for the family members. During this time, dialog must make explanations understandable, 10/14 while also providing solace for feelings of guilt, uncertainty, grief, and fear, 24 This did not happen in several statements of the interviewed mothers.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Congenital Zika Virus Syndrome: Knowledge and How to Communicate the Diagnosis

Hamad

Souza

2020

Texto contexto - enferm.

View full text Add to dashboard Cite

Objective: to know how mothers affected by the Zika virus during pregnancy became aware on the diagnosis of Congenital Zika Virus Syndrome in their child and to understand the way in which the communication of the diagnosis was transmitted. Method: a qualitative approach study, with interpretative research, based on the Resilience, Stress, Adjustment and Family Adaptation Model. The research was conducted in a Specialized Rehabilitation Center in a city of Paraíba (Brazil), from June to November 2017, with 40 mothers of children with congenital Zika virus syndrome. The empirical material was produced from a semi-structured script developed by the researcher, related to the different phases and components of the adaptation and resilience process. The findings were submitted to content analysis. Results: two thematic categories were unveiled: The discovery of Congenital Zika Virus Syndrome: period of diagnosis and maternal expectations, and How to communicate the diagnosis: implications for the discovery of Congenital Zika Virus Syndrome. Conclusion: Communication of the diagnosis and professional conduct at the time of information play important roles in re-signifying the meaning of congenital malformation. The interaction established by the health professional and their posture are directly related to the satisfaction about the information received.

show abstract

Section: Discussionsupporting

confidence: 69%

Section: Discussionmentioning

confidence: 99%

Congenital Zika Virus Syndrome: Knowledge and How to Communicate the Diagnosis

Hamad

Souza

2020

Texto contexto - enferm.

View full text Add to dashboard Cite

show abstract

“…Quando, inicialmente, a cronicidade da criança é desconhecida o seu diagnóstico gera medo às famílias, sendo mais difícil a aceitação da doença. O desconhecimento sobre a condição crônica da criança é caracterizado como uma situação de vulnerabilidade cultural, pois a carência de informações reflete em prejuízos emocionais, cognitivos, atitudinais e referentes às relações sociais (Collins et al, 2016;Lise et al, 2017).…”

Section: Discussionunclassified

Diagnóstico da condição crônica da criança: situações de vulnerabilidade vivenciadas pelos familiares/cuidadores

Vaz

Milbrath

Gabatz

et al. 2021

RSD

Self Cite

View full text Add to dashboard Cite

Objetivo: Conhecer as situações de vulnerabilidade vivenciadas pelos familiares/cuidadores na recepção do diagnóstico da condição crônica da criança. Metodologia: Trata-se de uma pesquisa descritiva exploratória com abordagem qualitativa da qual participaram 10 familiares/cuidadores de crianças com condição crônica, que estiveram hospitalizadas em unidades pediátricas de um município ao Sul do Brasil. As informações foram coletadas por meio de entrevista e analisadas a partir da Análise Temática. A pesquisa foi aprovada pelo Comitê de Ética em Pesquisa na Plataforma Brasil. Resultados: Identificou-se a presença da vulnerabilidade ontológica, ética, social e cultural. Desvelaram-se sentimentos como sofrimento, choque e angústia relacionados ao diagnóstico da condição crônica que impôs várias dificuldades a serem enfrentadas pelos familiares/cuidadores. Conclusão: Identificou-se que com o diagnóstico da condição crônica da criança ocorrem diversas mudanças nos hábitos dos familiares/cuidadores, necessitando muitas vezes que a família reorganize toda a sua estrutura, desde a alimentação até suas atividades externas, como trabalho e socialização.

show abstract

“…36 At the same time that they feel themselves without a support base, this confrontation becomes necessary, in terms of having the strength to take care of the child, as something imperative. 38 In addition, faced with the existential situation, there are countless uncertainties regarding the future of these children.…”

Section: Discussionmentioning

confidence: 99%

Special child, special mother: the sense of strength in mothers of children with congenital zika virus syndrome

Hamad

Souza

2019

Esc. Anna Nery

View full text Add to dashboard Cite

Objectives: To understand the meanings of having a child with the Congenital Zika virus Syndrome in the experience of women and, from this, what they would say to others who find themselves in the same situation. Method: Qualitative and interpretive study, based on the Model of Resilience, Stress, Adjustment and Family Adaptation proposed by McCubbin and McCubbin. 40 mothers from different cities in the state of Paraiba took part in the study. Results: The meanings found were classified in three thematic categories: the divine force that transforms life of the mothers; patience and love, double feelings as a source of overcoming; and the sense of mother’s strength beyond the disease. Conclusion and implication for practice: Caring for a child diagnosed with Congenital Zika virus Syndrome has involved emotional, social, spiritual and economic aspects, as well as a transformation and suffering process. The experiences may contribute to the qualification of healthcare professionals who deal directly with these mothers, and possibly, favor the confrontation and adaptation of them and their families and of the new families that may come to have children with

show abstract

Criança Em Tratamento Conservador Renal: Experiências Das Cuidadoras Familiares

Cited by 5 publications

References 17 publications

Congenital Zika Virus Syndrome: Knowledge and How to Communicate the Diagnosis

Congenital Zika Virus Syndrome: Knowledge and How to Communicate the Diagnosis

Diagnóstico da condição crônica da criança: situações de vulnerabilidade vivenciadas pelos familiares/cuidadores

Special child, special mother: the sense of strength in mothers of children with congenital zika virus syndrome

Contact Info

Product

Resources

About