Strategies of Families in the Care of Children With Chronic Diseases

Salvador, Marli; Gomes, Giovana Calcagno; Oliveira, Pâmela Kath de; Gomes, Vera Lúcia de Oliveira; Busanello, Josefine

doi:10.1590/0104-07072015000300014

Cited by 32 publications

(55 citation statements)

References 22 publications

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“…Given the problems in the organization of the work process of the family health team in the care for children with chronic diseases, studies demonstrate the need for clarity of the specific role of each category. Additionally, there is a need for better distribution of activities among professionals, so that they may be aware of their competences in caring for children/families living with any chronic disease, and help them from an inter-and multi-professional perspective (32)(33) .…”

Section: Discussionmentioning

confidence: 99%

Social network of children with cronic disease: knowledge and practice of nursing

2020

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Objectives:To identify the knowledge and practice of primary care nurses about the social network approach for fa milies of children with chronic diseases. Methods: Qualitative research, conducted by means of interviews with 23 family health nurses, from one municipality in Paraíba and one in Rio de Janeiro, from June to July of 2017. The data were interpreted using thematic analysis. Results: Social network meant institutional support offered by services outside the unit, and socioeconomic problems involved the family context. In practice, nurses find it difficult to provide comprehensive care and establish ties with families. When referring to other professionals, a weakness in the counter-referral to the family health unit is found. Final considerations: Some gaps were found regarding the knowledge and practice of nurses regarding the social network approach, which requires professional training to strengthen social relationships and the necessary support for families of children with chronic diseases.

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Section: Discussionmentioning

confidence: 99%

Social network of children with cronic disease: knowledge and practice of nursing

2020

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“…In complex care management, another issue emerges, as the actions and services available (UBS, Home Care Service, among others) often do not guarantee the provision or support for care and, in many cases, the maintenance of gastrostomies, tracheostomies, bladder tubes, among other complex procedures are under the responsibility of the caregiver, who is not always instructed to perform it (26) . Therefore, providing such care at home requires adjustments to the daily routine due to technical procedures that have to be performed, such as bladder catheterization, continuous drug delivery, prevention of skin injury, and use of orthosis (27) . In this process, hospitalization is the solution for proper care provision.…”

Section: Then Admission Occurs 3 Times a Year Or Morementioning

confidence: 99%

Predictive model of hospitalization for children and adolescents with chronic disease

et al. 2020

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Objectives: Describe a predictive model of hospitalization frequency for children and adolescents with chronic disease. Methods: A decision tree-based model was built using a database of 141 children and adolescents with chronic disease admitted to a federal public hospital; 18 variables were included and the frequency of hospitalization was defined as the outcome. Results: The decision tree obtained in this study could properly classify 80.85% of the participants. Model reading provided an understanding that situations of greater vulnerability such as unemployment, low income, and limited or lack of family involvement in care were predictors of a higher frequency of hospitalization. Conclusions: The model suggests that nursing professionals should adopt prevention actions for modifiable factors and authorities should make investments in health promotion for non-modifiable factors. It also enhances the debate about differentiated care to these patients. RESUMOObjetivos: Descrever um modelo preditor de frequência de internação hospitalar para crianças e adolescentes com doença crônica. Métodos: Foi construído um modelo baseado em árvore de decisão, a partir do banco de dados de 141 crianças e adolescentes, com doença crônica, internados em um hospital público federal. Para construção do modelo, foram incluídas 18 variáveis e a frequência de internação foi definida como desfecho. Resultados: Obteve-se uma árvore de decisão capaz de classificar corretamente 80,85% dos participantes. A leitura do modelo proporcionou o entendimento de que as situações de maior vulnerabilidade, como desemprego, baixa renda, restrições e ausência de envolvimento da família no cuidado, foram preditoras da maior frequência de internação hospitalar. Conclusões: O modelo sugere à enfermagem e equipe ações de prevenção para os fatores modificáveis e investimentos em promoção à saúde para os fatores não modificáveis e fortalece o debate sobre o cuidado diferenciado para esse público. RESUMENObjetivos: Describir un modelo predictor de frecuencia de internación hospitalaria para niños y adolescentes con enfermedades crónicas. Métodos: Se construyó un modelo basado en árboles de decisión, utilizando un banco de datos de 141 niños y adolescentes con enfermedades crónicas internados en hospital público federal. Para elaborar el modelo fueron consideradas 18 variables, la frecuencia de internación fue definida como desenlace. Resultados: Se obtuvo un árbol de decisiones capaz de clasificar correctamente al 80,85% de los participantes. La lectura del modelo permitió entender que las situaciones de mayor vulnerabilidad, como desempleo, bajos ingresos, restricciones y ausencia de compromiso familiar para el cuidado, actuaron como predictoras de mayor frecuencia de internación hospitalaria. Conclusiones: El modelo sugiere a la enfermería y equipo acciones preventivas para aquellos factores modificables, e inversión en promoción de salud para los factores no modificables; fortaleciendo también el debate sobre el cuidado diferenciado para esta población.

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“…6 It is understood that, in the care process, attention should not be focused on pathology, but priority should be given to the promotion, maintenance and recovery of health. 7 It is understood that the child with HIV / AIDS needs to live with the disease and can go through difficult situations and confused understanding needing special care of their family caregiver. It is added that, in this sense, this needs to be properly instrumentalized for effective coping with everyday situations and moments of guilt, shame, among other negative feelings, can interfere both in their daily life and in the care given to their children.…”

Section: Original Articlementioning

confidence: 99%

Folder educativo para cuidadores de crianças com hiv/aids

Mourão

Barbosa

Chaves

et al. 2018

Rev enferm UFPE on line.

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RESUMO Objetivo: construir uma tecnologia educativa para cuidadores de crianças com HIV/AIDS. Método: trata-se de estudo quantitativo, tipo metodológico, realizado a partir da construção do material educativo, com posterior validação por nove juízes e avaliação de 15 cuidadores. Estabeleceu-se a validação de conteúdo a partir do Índice de Validade de Conteúdo com concordância igual ou maior que 0,78. Resultados: compôs-se o folder por oito páginas e embasaram-se os seus textos na literatura e em entrevistas realizadas com cuidadores para apreender parte da subjetividade destes sobre a percepção e a expectativa que permeiam os cuidados à criança com HIV/Aids. Avaliaram-se os itens como adequados alcançando o IVC total de 0,90. Evidenciou-se que o percentual de concordância dos cuidadores foi de 100% na maioria dos itens. Conclusão: construiu-se e validou-se o folder podendo este ser utilizado na educação em saúde com cuidadores proporcionando o empoderamento ao cuidado de crianças com HIV/Aids. Descritores: Cuidadores; Criança; HIV; Tecnologia; Educação em Saúde; Sorodiagnóstico da AIDS.ABSTRACT Objective: to construct an educational technology for caregivers of children with HIV / AIDS. Method: this is a quantitative study, methodological type, made from the construction of educational material, with subsequent validation by nine judges and evaluation of 15 caregivers. Content validation was established from the Content Validity Index with concordance equal to or greater than 0.78. Results: the folder was composed of eight pages and based on literature and interviews with caregivers to capture part of their subjectivity about the perception and expectation that permeate the care of children with HIV / AIDS. The items were assessed as adequate to reach the total IVC of 0.90. It was evidenced that the percentage of agreement of the caregivers was of 100% in the majority of the items. Conclusion: the folder was constructed and validated, and it can be used in health education with caregivers, providing the empowerment to care for children with HIV / AIDS. Descriptors: Caregivers; Child; HIV; Technology; Health Education; AIDS Serodiagnosis.RESUMENObjetivo: construir una tecnología educativa para cuidadores de niños con VIH / SIDA. Método: se trata de estudio cuantitativo, tipo metodológico, realizado a partir de la construcción del material educativo, con posterior validación por nueve jueces y evaluación de 15 cuidadores. Se estableció la validación de contenido a partir del Índice de Validez de Contenido con concordancia igual o mayor que 0,78. Resultados: se compuso el folleto por ocho páginas y basaron sus textos en la literatura y en entrevistas realizadas con cuidadores para aprehender parte de la subjetividad de éstos sobre la percepción y la expectativa que permean los cuidados al niño con VIH / SIDA. Se evaluaron los ítems como adecuados alcanzando el IVC total de 0,90. Se evidenció que el porcentaje de concordancia de los cuidadores fue del 100% en la mayoría de los ítems. Conclusión: se construyó y validó el folleto pudiendo este ser utilizado en la educación en salud con cuidadores proporcionando el empoderamiento al cuidado de niños con VIH / SIDA. Descriptores: Cuidadores; Niño; VIH; Tecnología; Educación en Salud; Serodiagnóstico del SIDA.

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Strategies of Families in the Care of Children With Chronic Diseases

Cited by 32 publications

References 22 publications

Social network of children with cronic disease: knowledge and practice of nursing

Social network of children with cronic disease: knowledge and practice of nursing

Predictive model of hospitalization for children and adolescents with chronic disease

Folder educativo para cuidadores de crianças com hiv/aids

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