Adaptação transcultural dos Bancos de Itens de Ansiedade e Depressão do Patient-Reported Outcomes Measurement Information System (PROMIS) para língua portuguesa

Castro, Natália Fontes Caputo de; Rezende, Carlos Henrique Alves de; Mendonça, Tânia Maria; Silva, Carlos Henrique Martins da; Pinto, Rogério de Melo Costa

doi:10.1590/0102-311x00096113

Cited by 7 publications

(7 citation statements)

References 7 publications

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“…In many applications of patient-reported outcome measurement, a combination of generic and targeted (e.g., disease-specific) measures is used, enabling comparable information across all groups measured while also capturing important and salient aspects of health status that might be specific to individual patient groups. Many PROMIS® instruments have been translated to other languages [5][6][7][8], using an iterative process of forward and back translation, independent reviews by bilingual experts, and pretesting on a population with characteristics similar to the target population [9]. There are currently over 2000 active research studies using PROMIS®.…”

Section: Introductionmentioning

confidence: 99%

PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language

Kushalnagar

Paludneviciene

Kallen

et al. 2020

J Patient Rep Outcomes

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This paper describes the cultural adaptation, translation, test-retest administration, and psychometric methods used to make existing PROMIS® items and new communication items applicable to DHH people. We refer to this as the PROMIS®-Deaf Profile. We expect this measure to demonstrate that study participants with high Global Health status (better overall health) would have, on average, better PROMIS®-Deaf Profile domainspecific health status than those with low Global Health status (worse overall health). Methods Cultural adaption of existing items selected from PROMIS® item banksAfter obtaining permission from PROMIS® Health Organization and with consultation from an advisory committee (AC) consisting of field experts, a total of 40 existing items were drawn from PROMIS® item banks and used as candidates for the PROMIS®-Deaf Profile. Because existing PROMIS® items were written for and validated in the US general population, we followed a specific cultural adaptation process to ensure that these items were relevant and could be answered by DHH individuals. The AC first reviewed and identified items that required adaptation for DHH individuals. A core cultural adaptation leadership team then replaced specific language or colloquial wordings (e.g., "listen" was changed to "pay attention") and presented all revised items to the full AC for review and approval prior to linguistic translation. Development of new communication health and early life communication experience itemsUsing the grounded theory approach to item generation [11], communication health items were developed for the DHH population to assess perceived quality of life

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Section: Introductionmentioning

confidence: 99%

PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language

Kushalnagar

Paludneviciene

Kallen

et al. 2020

J Patient Rep Outcomes

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“…No Brasil, não foi encontrado nenhum banco de itens calibrado com o objetivo de avaliar o TDM. O único banco disponível, é um conjunto de itens que teve sua adaptação apenas a nível transcultural, não disponibilizando informações sobre as características psicométricas dos itens (Castro et al, 2014). Assim, devido essa carência e pela relevância do problema, o objetivo dessa pesquisa foi construir um banco de itens para avaliar o TDM.…”

Section: Discussionunclassified

Desenvolvimento de um banco de itens para avaliar o transtorno depressivo maior

2018

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“…Assim como em outros estudos de tradução 15,17,18,19 , poucos itens foram reajustados após a aplicação da versão pré-teste. No processo de tradução do banco de Itens Interferências da Dor do PROMIS pediátrico para o holandêsflamengo, nenhum item foi modificado após essa etapa 15 .…”

Section: Fundamentação Teóricaunclassified

Tradução e adaptação transcultural para a língua portuguesa do banco de itens interferência da dor do Patient-Reported Outcomes Measurement Information System pediátrico

Santos¹

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Introduction: Pain is a symptom of difficult assessment and management, especially in the pediatric population. The use of PROMs tools (measures of results reported by patients) have been shown to be a significant resource in the evaluation of this symptom and its impact on the quality of life of these patients. From the PROMs concept, the Patient-Reported Outcome Measurement System (PROMIS), a multidimensional instrument that assesses the interference of pain in the daily activities of children and adolescents, was developed. Objective: To translate and adapt cross-culturally to the Portuguese language the pediatric "Pain Interference" item bank. Methods: The scale translation was performed using the Functional Assessment of Chronic Illness Therapy (FACIT) methodology, which complies with the international standards for translation and adaptation of questionnaires and the recommendations of the PROMIS statistical center. A pre-test version was obtained from the transcultural translation and adaptation processes and applied to nine children followed in an outpatient clinic of pediatric specialties. Considering data obtained from a cognitive interview with the participants and from the observations about the comprehensibility of the scale during its application, a final version of the Portuguese language version was formulated. Results: Fron the thirteen items that make up the scale, eight items were readjusted so that the semantic, conceptual and cultural equivalence was achieved. Overall, items were easily read and understood by study participants. Expressions and grammatical particulars were revised and subtly altered so that a version for Portuguese language was guaranteed. Conclusion: Transcultural translation and adaptation ensured that the semantic, conceptual and cultural equivalence of the translated version was achieved. In this way, the pediatric "Pain Interference" bank of the Pediatric PROMIS can undergo validation and psychometric calibration studies so that its Portuguese version can be used in research and clinical trials that evaluate the interference of pain in children and adolescents.

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Adaptação transcultural dos Bancos de Itens de Ansiedade e Depressão do Patient-Reported Outcomes Measurement Information System (PROMIS) para língua portuguesa

Cited by 7 publications

References 7 publications

PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language

PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language

Desenvolvimento de um banco de itens para avaliar o transtorno depressivo maior

Tradução e adaptação transcultural para a língua portuguesa do banco de itens interferência da dor do Patient-Reported Outcomes Measurement Information System pediátrico

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