The local and global imperative to raise public awareness and knowledge about dementia

Lawlor, Brian A.

doi:10.1590/0004-282x20180118

Cited by 4 publications

(3 citation statements)

References 8 publications

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“…Awareness ( 17 , 20 , 21 ), knowledge ( 22 ), and stigma are commonly cited barriers to dementia prevention, treatment, and care in the global health context ( 17 , 23 , 24 ). Findings from our study also reinforced these challenges.…”

Section: Discussionmentioning

confidence: 99%

Facilitators and Barriers to Dementia Assessment and Diagnosis: Perspectives From Dementia Experts Within a Global Health Context

et al. 2022

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ObjectivesDementia poses one of the greatest global health challenges, affecting 50 million people worldwide. With 10 million new cases each year, dementia is a growing burden, particularly in low- and middle-income countries (LMIC). This study aimed to identify the facilitators and barriers to providing quality dementia assessment and care in LMICs from a global health perspective.Methods/DesignA qualitative semi-structured interview study with 20 dementia expert healthcare providers from 19 countries. To be included, providers had to: practice dementia assessment or care in LMICs where the population over age 60 is projected to more than double by 2050 and be recognized as a leading dementia expert in the region based on position, research publications, and/or policy leadership. Interviews were analyzed by a multidisciplinary team of researchers using thematic analysis.ResultsBarriers to dementia assessment and care included stigma about dementia, poor patient engagement in and access to healthcare, inadequate linguistic and cultural validation, limited dementia capable workforce, competing healthcare system priorities, and insufficient health financing. Facilitators included the rise in dementia awareness campaigns, dementia training for general practitioners, availability of family support and family caregivers, and national and international collaborations including coordinated policy efforts and involvement in international research initiatives.ConclusionsFindings from this study provide insights for prioritizing dementia assessment and care capacity-building in LMICs as a global health priority and for tailored public health approaches to strengthen dementia assessment and care at the individual, community, national, and multi-national levels.

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Section: Discussionmentioning

confidence: 99%

Facilitators and Barriers to Dementia Assessment and Diagnosis: Perspectives From Dementia Experts Within a Global Health Context

et al. 2022

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“…Research has shown that certain factors such as physical inactivity, diabetes, obesity, smoking, and hypertension may increase risk for AD [51]. However, a number of individuals are not aware of factors that could have preventative effects and believe that nothing can be done to prevent dementia [52] or perceive the disease as a natural part of aging [53]. The risk factors associated with an increased incidence of the disease are modifiable and have the potential of reducing the risk or delaying the onset of the disease [54, 55].…”

Section: Discussionmentioning

confidence: 99%

Reliability and Validity of the Polish Version of the Alzheimer’s Disease Knowledge Scale

Leszko

Carpenter

2021

Dement Geriatr Cogn Disord

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Introduction: In the context of increasing numbers of older adults and an increased prevalence of neurodegenerative diseases, the early diagnosis of dementia has become an important issue. Poland’s population is aging, and the growing number of individuals with Alzheimer’s disease (AD) may pose challenges for families and the health-care system. While creating effective psychoeducational interventions aiming at increasing caregivers’ knowledge may be beneficial, Poland lacks a standardized measurement for assessing knowledge about AD or a related form of dementia. Methods: The aim of our study was to translate and evaluate the Alzheimer’s Disease Knowledge Scale (ADKS) among Polish individuals. Results: The Polish ADKS was developed through a translation-back translation method. Psychometric evaluation was done with a sample of 942 individuals (caregivers, health-care professionals, and general population) who completed the questionnaire. Discussion: The results indicate that the scale produces acceptable psychometric properties and can be used to evaluate the effectiveness of educational interventions among caregivers, health-care professionals, and the general population.

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“…It has been estimated that about two thirds of dementia patients are not diagnosed at this first contact in developed countries 12 and in even greater proportions in developing country settings 3 . The lack of training of general practitioners with regard to diagnosing cognitive impairment and, especially, the lack of awareness of this condition in general population are major contributors to underdiagnosis of dementia 13 . Even in the tertiary-level care setting, cognitive decline has been demonstrated to be underdiagnosed 14 .…”

Section: Introductionmentioning

confidence: 99%

Prevalence of dementia and cognitive impairment with no dementia in a primary care setting in southern Brazil

Filho

Borelli

Sguario

et al. 2021

Arq. Neuro-Psiquiatr.

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Background: Cognitive decline is a common condition, but is still underrepresented in studies conducted in developing countries. Objective: To calculate the prevalence of cognitive decline and depression in an elderly community-dwelling population in a city in southern Brazil. Methods: We calculated the prevalences of dementia, cognitive impairment with no dementia (CIND) and symptoms of depression in an elderly population relying on the public healthcare system. This epidemiological study in Pelotas, Brazil, was conducted within the primary care setting. It included 299 older adults (mean age = 69.75 ± 7.6 years) who presented low levels of education (mean = 4.16 ± 3.17 years of education). They underwent cognitive screening and their medical records were analyzed. Results: Among these older adults, 142 (47.5%) presented cognitive decline: 104 (34.8%) matching the cognitive criteria for CIND and 38 (12.7%) matching the cognitive criteria for dementia. Among all the individuals who completed the cognitive screening, 141 (48.4%) were positive for symptoms of depression, of whom 99 (34%) did not have any previous diagnosis in their medical records. Conclusion: There was high prevalence of cognitive impairment among these older adults in a primary care setting. A large number of older adults were found to have symptoms of depression without any diagnosis.

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The local and global imperative to raise public awareness and knowledge about dementia

Cited by 4 publications

References 8 publications

Facilitators and Barriers to Dementia Assessment and Diagnosis: Perspectives From Dementia Experts Within a Global Health Context

Facilitators and Barriers to Dementia Assessment and Diagnosis: Perspectives From Dementia Experts Within a Global Health Context

Reliability and Validity of the Polish Version of the Alzheimer’s Disease Knowledge Scale

Prevalence of dementia and cognitive impairment with no dementia in a primary care setting in southern Brazil

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