2008
DOI: 10.12968/ijpn.2008.14.2.28597
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Abstract: This paper reports on a research study of five patients diagnosed with mesothelioma. The study used a phenomenological approach to explore patients' lived experience using in-depth interviews. The findings identify that patients have many unmet psychosocial and emotional needs and that there was a lack of information provided to patients about specialist supportive and palliative care services. A number of the patients found specialist supportive care by chance rather than by referral. In addition, patients we… Show more

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Cited by 45 publications
(82 citation statements)
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“…Only five papers reporting qualitative studies exploring aspects of the patient experience of mesothelioma were identified (Lebovits et al 1981(Lebovits et al , 1983Hawley et al 2004;Clayson et al 2005, Hughes & Arber 2008. Only five papers reporting qualitative studies exploring aspects of the patient experience of mesothelioma were identified (Lebovits et al 1981(Lebovits et al , 1983Hawley et al 2004;Clayson et al 2005, Hughes & Arber 2008.…”
Section: Resultsmentioning
confidence: 99%
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“…Only five papers reporting qualitative studies exploring aspects of the patient experience of mesothelioma were identified (Lebovits et al 1981(Lebovits et al , 1983Hawley et al 2004;Clayson et al 2005, Hughes & Arber 2008. Only five papers reporting qualitative studies exploring aspects of the patient experience of mesothelioma were identified (Lebovits et al 1981(Lebovits et al , 1983Hawley et al 2004;Clayson et al 2005, Hughes & Arber 2008.…”
Section: Resultsmentioning
confidence: 99%
“…Data from the qualitative studies, however, give greater insight into how the disease specifically affects people's social functioning. The disease and associated physical morbidity necessitates family members, usually the spouse, assuming a significant care-giving role (Hawley et al 2004;Clayson et al 2005;Hughes & Arber 2008). I can't do the job I did, the job I loved, so that is different.…”
Section: Social Consequencementioning
confidence: 99%
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“…The inner world of inhabitants was thus populated by helplessness, hopelessness, and shared aggressive fantasies directed toward the source of the trauma (Hughes & Arber, 2008;Laub, 2005). Moreover, the fact that illness and death are due to a profit-driven logic, perpetrated by a major economic contributor to the community, exacerbates the ways in which victims experience an already traumatic situation (Varvin, 2013, personal communication).…”
Section: Asbestos Poisoning Gives Rise To the Unconscious Conflict Bementioning
confidence: 99%
“…Similar to other patients with cancer, patients with MPM experience emotional difficulties such as the shock of diagnosis , anxiety and depression (Dooley, 2010;van Zandwijk et al, 2010). In addition, patients with MPM experienced anger toward their employers who did not alert them to the hazard of asbestos ), ambivalence about working in an unhealthy environment versus loyalty to company that gave them longtime employment , and the stress of dealing with lawsuits (Hughes and Arber, 2008).…”
mentioning
confidence: 99%