Assessment of quality of life and participation within an outpatient rehabilitation setting

Ackerley, Suzanne J.; Gordon, Heather J.; Elston, Alison F.; Crawford, Lorna M.; McPherson, Kathryn

doi:10.1080/09638280802356419

Cited by 76 publications

(18 citation statements)

References 44 publications

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“…The ability of the WHOQOL-BREF to evaluate change over time was investigated in a study within an outpatient rehabilitation setting. That study concluded that the questionnaire was a useful instrument for outcome measurement [ 17 ]. Also, statistically significant differences were found in all but the social domain, using raw data, between admission and discharge.…”

Section: Discussionmentioning

confidence: 99%

“…This model is the foundation of the multidisciplinary treatment approach in rehabilitation. Today the International Classification of Functioning (ICF) is adopted as a framework for rehabilitation, and an important goal in rehabilitation is to increase QOL of patients [ 16 , 17 ]. Currently no normal values for QOL of Dutch rehabilitation outpatients are available, which are essential for a correct comparison between rehabilitation outpatients, the general Dutch population and psychiatric outpatients.…”

Section: Introductionmentioning

confidence: 99%

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Quality of life in rehabilitation outpatients: normal values and a comparison with the general Dutch population and psychiatric patients

Schrier

Geertzen

et al. 2015

Qual Life Res

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Purpose To provide Dutch normal values for rehabilitation outpatients with chronic pain or musculoskeletal diseases utilizing the World Health Organization Quality of Life questionnaire abbreviated version (WHOQOL-BREF) and analyse influence of diagnosis and patient characteristics on normal values and increase understanding in those values.Methods Five hundred and forty-two outpatients were referred to a rehabilitation psychologist. Referral diagnoses were “musculoskeletal”, “chronic pain”, “neurological” and “miscellaneous”. Comparisons between groups were made for each of the four domains of the WHOQOL-BREF (scoring range 4–20). ResultsDomain scores of rehabilitation outpatients were physical domain 11.0 (±2.7), psychological domain 13.6 (±2.4), social domain 14.8 (±3.4) and environmental domain 14.2 (±2.2). Outpatients with chronic pain reported the lowest scores on the WHOQOL-BREF when compared to the “musculoskeletal”, “neurological” and “miscellaneous” groups. Increased age, lower education, living alone and unemployment had a negative impact on WHOQOL-BREF scores. Compared to the general Dutch population, rehabilitation outpatients scored, unadjusted for age, significantly lower difference for the physical domain 4.5 [95 % confidence interval (CI) 4.2; 4.8], the environment domain 1.7 (95 % CI 1.5; 2.0), the psychological domain 1.1 (95 % CI 0.4; 1.2) and the social domain 0.4 (95 % CI 0.0; 0.8). ConclusionsWHOQOL-BREF scores of rehabilitation outpatients are lower and differed significantly from normal values of a Dutch population in all four domains. Therefore, the WHOQOL-BREF can be used to measure the subjective impact of their disease or injury. The subjective impact of chronic pain was found to be particularly high.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Quality of life in rehabilitation outpatients: normal values and a comparison with the general Dutch population and psychiatric patients

Schrier

Geertzen

et al. 2015

Qual Life Res

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“…11 Mobility is considered an important rehabilitation goal, [12][13][14][15] but additional factors also affect the functioning and well-being of amputees. Quality of life (QoL) is increasingly being recognized as an important outcome of rehabilitation programmes, 16,17 and also as an indicator to assess adjustment to prosthesis. 18 QoL has mainly been used to compare the efficacy of interventions, such as limb salvage procedure versus amputation, [19][20][21][22] or to compare amputees and other diseased populations.…”

Section: Introductionmentioning

confidence: 99%

Factors affecting quality of life in lower limb amputees

Sinha

Heuvel²,

Arokiasamy³

2011

Prosthetics &Amp; Orthotics International

264

217

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Background: Quality of life (QoL) is increasingly being recognized as an important outcome for rehabilitation programs, and has mainly been used to compare the efficacy of interventions or to compare amputees with other diseased populations. There is relatively a limited number of studies primarily focusing on analyzing the multitude of factors influencing QoL in amputees. Objectives: To identify important background and amputation related factors which affect quality of life (QoL) in lower limb amputees, and to compare QoL profile of amputees' to that of general population. Study design: Cross-sectional. Methods: Lower limb amputees 18 years and above from a rehabilitation centre, a limb-fitting centre and four limb-fitting camps were interviewed (n ¼ 605). Structured questionnaires included patient background and amputation characteristics, and the MOS short-form health survey (SF-36) for assessing QoL. The SF-36 was administered to a general adult population using purposive sampling (n ¼ 184). Results: SF-36 PCS and MCS scores were found to be significantly lower for amputees when compared to those for the general population. In this study, employment status, use of an assistive device, use of a prosthesis, comorbidities, phantomlimb pain and residual stump pain were found to predict both PCS and MCS scores significantly, and explained 47.8% and 29.7% of variance respectively. Age and time since amputation accounted for an additional 3% of variance in PCS scores. Conclusions: The abovementioned factors should be addressed in order to ensure holistic reintegration and participation, and to enable the amputees to regain or maintain QoL. Prospective longitudinal studies are recommended to systematically study the change in QoL over time and to assess its determinants. Clinical relevanceProper appraisal of abovementioned factors in the rehabilitation programme would assist in establishing a treatment protocol, which would adequately address QoL in amputees.

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“…Assessing the individual's participation rate in terms of education, social activities, and leisure time is required for the development of interventions, which enable a long life with a good QoL ( 32 ). In future studies on BOI and QoL, standardized instruments to measure participation such as questionnaires for patients and carers could be used ( 33 , 34 ).…”

Section: Discussionmentioning

confidence: 99%

Burden of Illness and Quality of Life in Tuberous Sclerosis Complex: Findings From the TOSCA Study

et al. 2020

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Research on tuberous sclerosis complex (TSC) to date has focused mainly on the physical manifestations of the disease. In contrast, the psychosocial impact of TSC has received far less attention. The aim of this study was therefore to examine the impact of TSC on health, quality of life (QoL), and psychosocial well-being of individuals with TSC and their families. Questionnaires with disease-specific questions on burden of illness (BOI) and validated QoL questionnaires were used. After completion of additional informed consent, we included 143 individuals who participated in the TOSCA (TuberOus SClerosis registry to increase disease Awareness) study. Our results highlighted the substantial burden of TSC on the personal lives of individuals with TSC and their families. Nearly half of the patients experienced negative progress in their education or career due to TSC (42.1%), as well as many of their caregivers (17.6% employed; 58.8% unemployed). Most caregivers (76.5%) indicated that TSC affected family life, and social and working relationships. Further, well-coordinated care was lacking: a smooth transition from pediatric to adult care was mentioned by only 36.8% of adult patients, and financial, social, and psychological support in 21.1, 0, and 7.9%, respectively. In addition, the moderate rates of pain/discomfort (35%) and anxiety/depression (43.4%) reported across all ages and levels of disease demonstrate the high BOI and low QoL in this vulnerable population.

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Assessment of quality of life and participation within an outpatient rehabilitation setting

Cited by 76 publications

References 44 publications

Quality of life in rehabilitation outpatients: normal values and a comparison with the general Dutch population and psychiatric patients

Quality of life in rehabilitation outpatients: normal values and a comparison with the general Dutch population and psychiatric patients

Factors affecting quality of life in lower limb amputees

Burden of Illness and Quality of Life in Tuberous Sclerosis Complex: Findings From the TOSCA Study

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