Dusted Community: Piloting a Virtual Peer-to-Peer Support Community for People with an Asbestos-Related Diagnosis and Their Families

Kozlowski, Desirée; Provost, Steve; Tucker, Julie; Zwan, Rick van der

doi:10.1080/07347332.2014.917142

Cited by 7 publications

(10 citation statements)

References 41 publications

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“…Four studies originated from Australia. 7,13,15,16 one from the United States 12 and one from the United Kingdom. 14 Grey literature yielded no additional results.…”

Section: Resultsmentioning

confidence: 99%

“…All of these were professionally led, although three had consumer input. 13,16,14 This input was either through direct involvement or in an advisory capacity.…”

Section: Initiative Featuresmentioning

confidence: 99%

“…The primary aim of most initiatives was to promote psychosocial well-being among carers through stress management, 12 promoting positive emotions 15 and overall support. 7,13,14,16 One study aimed to meet carers’ informational needs through an educational initiative. Three studies explicitly utilised peer support.…”

Section: Initiative Featuresmentioning

confidence: 99%

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Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

2018

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Background: Public health approaches to palliative care prioritise community-focused initiatives to support people with palliative care needs and their families. The nature and extent of these initiatives have not previously been reported. Aim: To identify community-led and/or focused initiatives that have been developed to support family carers of people with palliative care needs and for which evaluation information is reported in the empirical literature. Design: An integrative study design was undertaken using systematic methods. Data sources: CINAHL, Medline, PsycINFO, Embase, Cochrane, Sociological Abstracts, Proquest Social Science Database, and grey literature were searched using standardised search terms. Results: Two quantitative, two qualitative and two mixed method studies were identified ( n = 6). All community initiatives identified were professionally led, although three had consumer input. Most aimed to improve carer psychosocial well-being and all were reported to have been beneficial. Conclusions: This integrative review identified only six community-focused and evaluated initiatives supporting family carers in the international palliative care research literature. Further evaluation is needed. However, appropriate evaluation methods and reporting require further discussion and debate between all stakeholders. Service users and communities themselves must be central to this process.

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“…Four studies originated from Australia. 7,13,15,16 one from the United States 12 and one from the United Kingdom. 14 Grey literature yielded no additional results.…”

Section: Resultsmentioning

confidence: 99%

“…All of these were professionally led, although three had consumer input. 13,16,14 This input was either through direct involvement or in an advisory capacity.…”

Section: Initiative Featuresmentioning

confidence: 99%

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Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

2018

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“…A psychoanalytic therapeutic group (Bion, 1961) seems to be the most suitable setting for the expression and articulation of the pain of an entire community, as it allows the participants to place their illness within a historical framework and creates multiple narratives of suffering, which preserves the unique features of the different ways in which it was experienced (Granieri, 2011a). These were the main reasons for proposing a group therapy intervention for the Casale Monferrato community (see also Klein & Schermer, 2000;Kozlowski et al, 2014;Mucci, 2013;Pearlman, 2013). In particular, we felt that multifamily groups (Garc ıa Badaracco, 1989Badaracco, , 2000 would be a particularly suitable approach to treat mesothelioma patients, because it would allow them the freedom to choose whether they wished to participate in the group and to decide the duration of their participation.…”

Section: A Multifamily Group For the Traumatized Communitymentioning

confidence: 95%

Massive Trauma in A Community Exposed to Asbestos: Thinking and Dissociation among the Inhabitants of Casale Monferrato

Borgogno¹,

Franzoi²,

Barbasio³

et al. 2015

Brit J Psychotherapy

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“…This can lead to a feeling of danger in relationships, particularly within a family (Granieri et al, 2018;Padilha Baran et al, 2019). Living in an environment where the risk of exposure to the toxic agent is omnipresent, together with the awareness of the large number of victims and outcome of MM, can cause individuals to enter a state of social and emotional detachment (Guglielmucci et al, 2014;Kozlowski et al, 2014), which is similar to the feelings aroused by COVID-19.…”

Section: And Covid-19: Differences and Similarities In Etiologymentioning

confidence: 99%

SARS-CoV-2 and Asbestos Exposure: Can Our Experience With Mesothelioma Patients Help Us Understand the Psychological Consequences of COVID-19 and Develop Interventions?

et al. 2020

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Since its emergence, the novel coronavirus disease of 2019 (COVID-19) has had enormous physical, social, and psychological impacts worldwide. The aim of this article was to identify elements of our knowledge on asbestos exposure and malignant mesothelioma (MM) that can provide insight into the psychological impact of the COVID-19 pandemic and be used to develop adequate interventions. Although the etiology of Covid-19 and MM differs, their psychological impacts have common characteristics: in both diseases, there is a feeling of being exposed through aerial contagion to an “invisible killer” without boundaries that can strike even the strongest individuals. In both cases, affected persons can experience personality dysfunction, anxiety, depression, and posttraumatic symptoms; helplessness, hopelessness, and projection of destructive thoughts onto external forces often emerge, while defense mechanisms such as denial, splitting, repression, and reduced emotional expression are used by individuals to contain their overwhelming anxieties. We believe that in both diseases, an integrated multidimensional intervention offered by hospitals and other public health services is the most effective approach to alleviating patients’ and caregivers’ psychological distress. In particular, we emphasize that in the context of both MM and COVID-19, Brief Psychoanalytic Group therapy can help patients and caregivers attribute meaning to the significant changes in their lives related to the experience of the disease and identify adaptive strategies and more realistic relational modalities to deal with what has happened to them. We also highlight the importance of developing a surveillance system that includes individual anamnestic evaluation of occupational risk factors for COVID-19 disease.

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Dusted Community: Piloting a Virtual Peer-to-Peer Support Community for People with an Asbestos-Related Diagnosis and Their Families

Cited by 7 publications

References 41 publications

Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

Massive Trauma in A Community Exposed to Asbestos: Thinking and Dissociation among the Inhabitants of Casale Monferrato

SARS-CoV-2 and Asbestos Exposure: Can Our Experience With Mesothelioma Patients Help Us Understand the Psychological Consequences of COVID-19 and Develop Interventions?

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