Aspectos psicológicos da síndrome da fibromialgia juvenil: revisão de literatura

Goulart, Rubens; Pessoa, Cinthia; Lombardi, Império

doi:10.1016/j.rbr.2015.07.008

Cited by 12 publications

(12 citation statements)

References 36 publications

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“…Children with JFMS have high rates of school absenteeism [17] and psychological co-morbidities, including anxiety, depression, and post-traumatic stress disorder [18–21]. Family members of adolescents with JFMS are also affected by the child’s pain [22, 23]. Specifically, mothers of children with chronic pain have been found to have poor health-related quality of life (HRQoL), which correlates significantly with their child’s pain severity [24].…”

Section: Introductionmentioning

confidence: 99%

Patient-proxy agreement on health-related quality of life in juvenile fibromyalgia syndrome

Gmuca¹,

Xiao²,

Sherry³

2019

Pediatr Rheumatol

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Background Health-related quality of life (HRQoL) measures serve as important indicators of pain-related physical and psychosocial function in youth with juvenile fibromyalgia syndrome (JFMS). While the administration of parent-proxy reported HRQoL measures in the assessment of JFMS is common, its added clinical value to patient self-reports is unclear. We aimed to determine the level of agreement on HRQoL among patients with JFMS as well as their parent-proxies and to determine factors associated with this agreement. Methods We performed a retrospective, cross-sectional cohort study of children aged 8 to 17 years diagnosed with JFMS and presenting for initial evaluation to a pediatric rheumatology pain clinic between April 2017 and May 2018. All patients and proxies were administered the Pediatric Quality of Life Short Form 15 Generic Core Scales (PedsQL SF-15) as part of routine clinical care. We calculated absolute discrepancy scores (absolute value of parent-proxy score minus patient score) to describe the extent of difference in HRQoL scores between parent-proxies and patients. We examined agreement between parent-proxy report and patient self-report via intraclass correlation coefficients (ICCs), stratified by age and sex, as well as Bland-Altman plots. We also used multivariate regression models to determine factors associated with level of agreement. Results A total of 65 patient-proxy pairs were included in this study. ICCs demonstrated good to excellent agreement between all parent-proxy and patient measures of HRQoL irrespective of the patient’s age or sex. The level of agreement was not associated with pain duration or pain severity but less agreement on psychosocial HRQoL was associated with older patient age (β = 1.30; p < 0.05). Conclusions This study in youth with JFMS demonstrated good to excellent patient-proxy agreement across all domains of the PedsQL SF-15 irrespective of patient’s age or sex. Our findings suggest that parent-proxy reports do not provide additional information beyond that obtained from the patient self-report of HRQoL according to the PedsQL SF-15. In order to facilitate children and adolescents with JFMS becoming partners in their own healthcare, and to decrease the burden of multiple questionnaires, we propose focusing on patients’ own perceptions of HRQoL in the clinical setting.

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Section: Introductionmentioning

confidence: 99%

Patient-proxy agreement on health-related quality of life in juvenile fibromyalgia syndrome

Gmuca¹,

Xiao²,

Sherry³

2019

Pediatr Rheumatol

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“…Não há estudos conclusivos sobre as possíveis causas ou fatores que desencadeiam a SFM, pesquisadores argumentam que é bem provável existir uma relação entre os aspectos genéticos e metabólitos envolvidos com a doença, porem há uma carência de evidencias cientificas, por conta disso, houve um consenso na literatura de que o melhor recurso para o alivio da fibromialgia, deve ser multiprofissional e focado em intervenções não farmacológicas, mas todavia o uso de medicamentos apenas para o controle dos sintomas e comorbidades, sendo assim o tratamento deve envolver outro métodos terapêuticos como a fisioterapia, técnicas manuais, exercícios e psicoterapia (GOULART et al, 2016).…”

Section: Resultados E Discussõesunclassified

Os efeitos da massagem terapêutica manual em pacientes com a síndrome da fibromialgia

Gondim¹,

Almeida²

2018

IDonline

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Resumo: A síndrome da fibromialgia (SFM), possui origem desconhecida e diagnóstico incerto, acomete milhares de pessoas principalmente mulheres, tendo como características principais: dores musculoesqueléticas associadas a distúrbio do sono e psíquicos, rigidez matinal, cefaleia crônica e alterações de humor. Fatores psicológicos e biológicos simultaneamente fazem com que o indivíduo diminua sua capacidade de saber lidar com a dor e como decorrência disso muitos apresentam sintomas de ansiedade e depressão. O objetivo desse trabalho de revisão da literatura é de reunir referências recentes sobre a fibromialgia e informar aos leitores sobre a importância de tratamentos alternativos como a massagem terapêutica e seus efeitos sendo esta conceituada como técnicas de manobras para alívio de dores em pacientes com fibromialgia, para que haja melhora na qualidade de vida dos mesmos.Palavra-chave: Massagem terapêutica; síndrome da fibromialgia; qualidade de vida. The effects of manual massage therapy in patients with fibromyalgia syndromeAbstract: Fibromyalgia syndrome (FMS) is of unknown origin, an uncertain diagnosis that affects thousands of people, mainly in women, with characteristics such as: musculoskeletal pain associated with sleep and psychic disorders, morning stiffness, chronic headache and mood changes. Psychological and biological factors simultaneously cause the individual to reduce his ability to deal with pain and as a result many have symptoms of anxiety and depression The objective of this review work in the literature is to gather recent references on fibromyalgia and also to inform the Readers the importance of alternative treatments such as massage therapy and its effects being this conceptualized as maneuver techniques for pain relief in patients with fibromyalgia, so that there is improvement in their quality of life.

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“…Table 1 shows that almost half of the patients (42.85%) presented analgetic state ranging from 6 to 10 years, but there is no consensus regarding their etiology or a specific factor or agent related to the onset of FMS. FMS symptoms are insidious, especially in adult life, and are preceded by skeletal muscle pain episodes, infection diseases,surgical procedures, physical or emotional trauma, Yunus and Aldag (2012), Goulart, Pessoa, and Lombardi Junior, (2016), Freitas et al (2017).…”

Section: Discussionmentioning

confidence: 99%

“…Although still speculative, there is a possibility that traumatic episodes are associated with FMS. However, to establish this association, additional studies are needed to obtain more data on the classification of the type of trauma; duration and intensity of the traumatic episode (single or repetitive event); the age of the patient when the traumatic incident occurred; time interval between emotional trauma and the onset of FMS symptoms; in order to evaluate whether the memory of the traumatic event, if in thought or in dialogue, could trigger or intensify the state of pain, Filippon et al (2013), Goulart et al (2016). Thus, it would be possible to identify the etiology or factors that, if controlled, can minimize the progression of FMS.…”

Section: Discussionmentioning

confidence: 99%

Factors related to the painful conditions of patients with fibromyalgia in Maringá, Paraná state, Brazil

Leal

Bertoglio

Esper

et al. 2020

Acta Sci. Health Sci.

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This study aimed to obtain personal and clinical characteristics of patients with fibromyalgia, and to identify the factors responsible for the initiation, recurrence or intensification of painful state in each patient. The information was collected using General Characterization Form of Fibromyalgia Patients, consisting of 32 questions about personal data, location, and type of pain, identification of factors or circumstances related to the algetic state, physical activity, and pharmacological treatment. Among 14 patients included in this study, 85.71% were female. The pain intensity and time spam varied among patients, and 42.85% of them presented pain (algetic state) lasting between 6 to 10 years. Emotional trauma was the factor or circumstance related to the onset of symptoms of 71.43% of the patients. All patients reported that stressful situations resulting from conflicts in the family, social or work environment are factors responsible for reactivating and intensifying the symptoms of fibromyalgia. Factors and circumstances related to the onset, recurrence, and intensity of fibromyalgia symptoms reveal that it is necessary to inform patients that it is a benign disease, despite the painful condition,since the way they respond to daily events is a determining factor in the course of the disease.Improving physical conditioning and conducting cognitive-behavioral therapy, along with pharmacological treatments, can be successful in treating or minimizing the symptoms of fibromyalgia.

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Aspectos psicológicos da síndrome da fibromialgia juvenil: revisão de literatura

Cited by 12 publications

References 36 publications

Patient-proxy agreement on health-related quality of life in juvenile fibromyalgia syndrome

Patient-proxy agreement on health-related quality of life in juvenile fibromyalgia syndrome

Os efeitos da massagem terapêutica manual em pacientes com a síndrome da fibromialgia

Factors related to the painful conditions of patients with fibromyalgia in Maringá, Paraná state, Brazil

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